Form 990 for tax year 2022
Filed by HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN.
Totals
- Total revenue
- $3,567,800
- Total expenses
- $3,671,274
- Contributions and grants received
- $3,567,726
- Grants paid
- $0
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $74
- Total assets, end of year
- $739,599
- Total liabilities, end of year
- $86,694
- Net assets or fund balances, end of year
- $652,905
- Program services expenses (Part IX)
- $3,454,697
- Management and general expenses
- $167
- Fundraising expenses
- $216,410
- Program service expenses (Part III)
- $3,454,697
Program services were 94.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1a · Federated campaigns
$46,540
-
1c · Fundraising events
$2,502,254
-
1f · All other contributions, gifts and grants
$1,018,932
-
1g · Noncash contributions included above
$89,358
-
8a · Fundraising events: gross income
$360,612
-
8a · Fundraising events: contributions included on line 1c
$2,502,254
-
8b · Fundraising events: direct expenses
$360,612
-
8c · Net income from fundraising events
total $0
-
11a · Other revenue: MISCELLANEOUS
total $74 · related or exempt $74
-
11e · Other revenue, total
$74
Functional expenses
Part IX, the statement of functional expenses.
-
11b · Fees: legal
total $269,965 · program services $269,594 · fundraising $371
-
13 · Office expenses
total $30,362 · program services $17,940 · fundraising $12,422
-
16 · Occupancy
total $2,580 · program services $2,580
-
19 · Conferences, conventions and meetings
total $71,513 · program services $64,021 · fundraising $7,492
-
21 · Payments to affiliates
total $3,003,678 · program services $3,003,678
-
22 · Depreciation, depletion and amortization
total $2,592 · program services $2,592
-
23 · Insurance
total $817 · program services $284 · fundraising $533
-
24a · Other expenses: BANK AND CREDIT CARD FE
total $44,101 · program services $258 · management and general $167 · fundraising $43,676
-
24b · Other expenses: PRINTING & PUBLICATIONS
total $36,833 · program services $7,488 · fundraising $29,345
-
24c · Other expenses: POSTAGE AND SHIPPING
total $23,972 · program services $6,389 · fundraising $17,583
-
24d · Other expenses: TELEPHONE
total $5,645 · program services $5,549 · fundraising $96
-
24e · All other expenses
total $179,216 · program services $74,324 · fundraising $104,892
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $0 · end of year $0
-
2 · Savings and temporary cash investments
beginning of year $757,736 · end of year $725,194
-
3 · Pledges and grants receivable
beginning of year $10,994 · end of year $3,700
-
8 · Inventories for sale or use
beginning of year $14,063 · end of year $9,013
-
10a · Land, buildings and equipment: cost or other basis
$19,328
-
10b · Land, buildings and equipment: accumulated depreciation
$17,636
-
10c · Land, buildings and equipment, net
beginning of year $2,784 · end of year $1,692
-
17 · Accounts payable and accrued expenses
beginning of year $18,215 · end of year $53,710
-
19 · Deferred revenue
beginning of year $10,983 · end of year $32,984
-
27 · Net assets without donor restrictions
beginning of year $624,652 · end of year $535,756
-
28 · Net assets with donor restrictions
beginning of year $131,727 · end of year $117,149
Mission and programs · 2022
Mission
HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A HEALTH AND WELFARE ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES
Activities or mission (Part I)
DEDICATED TO IMPROVING THE LIVES OF PEOPLE AND FAMILIES LIVING WITH HUNTINGTON'S DISEASE.
-
PATIENT AND FAMILY SERVICES - PROVIDES COUNSELING AND REFERRAL SERVICES TO PATIENTS WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.
Expenses $3,291,475
-
COMMUNITY OUTREACH - PROVIDES WORKSHOPS, SEMINARS, AND SYMPOSIUMS ON HUNTINGTON'S DISEASE THROUGH A NETWORK OF CHAPTER AFFILIATES AND BRANCHES THROUGHOUT THE UNITED STATES.
Expenses $110,972
-
EDUCATION - PROVIDES INFORMATION AND EDUCATION THROUGH PUBLICATION AND DISTRIBUTION OF NEWSLETTERS, BROCHURES AND SCIENCE UPDATES.
Expenses $52,250
As filed on the 2022 return.
Listed in Part VII
-
VICTOR SUNG MD
CHAIR
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
TERESA SRAJER
CHAIR-ELECT
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
KAMRAN ALAM
TREASURER
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
JENNE COLER-DARK
SECRETARY
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
EJ GARNER
PAST CHAIR
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
ANGELA ALLEN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
DANIEL BRENNAN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
JEFF CARROLL
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
MARK COE
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
STACY COEN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
WENDY ERLER
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
ERIN FURR-STIMMING MD
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
BETH HOFFMAN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
JAY HUGHES
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
JONATHAN KLEIN ESQ
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
KELSEY PORTER
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
DOMINIQUE THOMAS
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
LESLIE M THOMPSON PHD
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
VICKI WHEELOCK MD
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
LOUISE VETTER
CHIEF EXECUTIVE OFFICER
- Total calculated
- $401,948
- From this org
- $0
- From related orgs
- $349,249
- Other
- $52,699
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $349,249 related
- Bonus
- $0
- Other
- $0
- Deferred
- $0 + $15,250 related
- Nontaxable benefits
- $0 + $37,449 related
- Filer's total
- $0 + $401,948 related
-
ROSEMARY COLUCCIO
CHIEF OPERATIONS OFFICER
- Total calculated
- $276,062
- From this org
- $0
- From related orgs
- $249,757
- Other
- $26,305
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $249,757 related
- Bonus
- $0
- Other
- $0
- Deferred
- $0 + $12,667 related
- Nontaxable benefits
- $0 + $13,638 related
- Filer's total
- $0 + $276,062 related
-
ARIK JOHNSON
CHIEF MISSION OFFICER
- Total calculated
- $198,114
- From this org
- $0
- From related orgs
- $195,400
- Other
- $2,714
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $195,400 related
- Bonus
- $0
- Other
- $0
- Deferred
- $0 + $1,463 related
- Nontaxable benefits
- $0 + $1,251 related
- Filer's total
- $0 + $198,114 related
-
JAMISON SKALA
DIRECTOR, NATIONAL DEVELOP
- Total calculated
- $177,900
- From this org
- $0
- From related orgs
- $165,915
- Other
- $11,985
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $165,915 related
- Bonus
- $0
- Other
- $0
- Deferred
- $0 + $8,574 related
- Nontaxable benefits
- $0 + $3,411 related
- Filer's total
- $0 + $177,900 related
-
DEBRA LOVECKY
DIRECTOR OF EDUCATION PROG
- Total calculated
- $184,371
- From this org
- $0
- From related orgs
- $161,407
- Other
- $22,964
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $161,407 related
- Bonus
- $0
- Other
- $0
- Deferred
- $0 + $8,427 related
- Nontaxable benefits
- $0 + $14,537 related
- Filer's total
- $0 + $184,371 related
-
CHRISTOPHER COSENTINO
DIRECTOR OF MARKETING & CO
- Total calculated
- $181,008
- From this org
- $0
- From related orgs
- $143,417
- Other
- $37,591
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $143,417 related
- Bonus
- $0
- Other
- $0
- Deferred
- $0 + $7,534 related
- Nontaxable benefits
- $0 + $30,057 related
- Filer's total
- $0 + $181,008 related
-
DEBORAH BOYD
REGIONAL DEVELOPMENT DIREC
- Total calculated
- $131,817
- From this org
- $0
- From related orgs
- $113,225
- Other
- $18,592
- Hours/week
- 3 + 35 related
-
REBECCA CHAN
CONTROLLER
- Total calculated
- $143,196
- From this org
- $0
- From related orgs
- $106,797
- Other
- $36,399
- Hours/week
- 3 + 35 related
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Form 990 of other organizations
- 3 · Written employment contract
- 3 · Compensation survey or study
- 3 · Approval by the board or compensation committee
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
The filer's explanations (Part III)
- PART I, LINE 3
- COMPENSATION PRACTICES - PAID BY RELATED ORGANIZATION: COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION BY THE BOARD.
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
No itemized grants to organizations on this return.
Related organizations on this return
Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.
-
HUNTINGTON'S DISEASE SOCIETY OF AMERICA
501(C)(3) · PROG SRVC · NY
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 16 May 2023
- IRS schema version
- 2022v5.0
- Source object
- 202301369349302420
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