Form 990 for tax year 2022
Filed by ANGELMAN SYNDROME FOUNDATION INC.
Totals
- Total revenue
- $3,638,325
- Total expenses
- $3,635,328
- Contributions and grants received
- $2,516,563
- Grants paid
- $493,512
- Program service revenue
- $1,017,496
- Investment income
- $100,472
- Other revenue
- $3,794
- Total assets, end of year
- $2,274,369
- Total liabilities, end of year
- $287,498
- Net assets or fund balances, end of year
- $1,986,871
- Program services expenses (Part IX)
- $2,749,272
- Management and general expenses
- $261,308
- Fundraising expenses
- $624,748
- Program service expenses (Part III)
- $2,749,272
Program services were 75.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$2,516,563
-
1g · Noncash contributions included above
$177,827
-
2a · Program service revenue: WALK-A-THON
total $980,347 · related or exempt $980,347
-
2b · Program service revenue: BIENNIAL CONFERENCE
total $37,149 · related or exempt $37,149
-
3 · Investment income
total $100,472 · related or exempt $14,943 · excluded $85,529
-
11a · Other revenue: MISCELLANEOUS INCOME (LOSS)
total $3,794 · excluded $3,794
-
11e · Other revenue, total
$3,794
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $344,012 · program services $344,012
-
3 · Grants to foreign organizations and individuals
total $149,500 · program services $149,500
-
7 · Other salaries and wages
total $495,999 · program services $207,072 · management and general $114,286 · fundraising $174,641
-
10 · Payroll taxes
total $53,584 · program services $18,904 · management and general $14,549 · fundraising $20,131
-
11g · Fees: other
total $204,095 · program services $69,158 · management and general $68,336 · fundraising $66,601
-
12 · Advertising and promotion
total $97,564 · program services $43,660 · management and general $1,344 · fundraising $52,560
-
13 · Office expenses
total $97,445 · program services $10,470 · management and general $6,717 · fundraising $80,258
-
16 · Occupancy
total $4,296 · program services $1,511 · management and general $1,044 · fundraising $1,741
-
17 · Travel
total $48,044 · program services $18,386 · management and general $3,348 · fundraising $26,310
-
19 · Conferences, conventions and meetings
total $53,840 · program services $53,840
-
22 · Depreciation, depletion and amortization
total $115,181 · program services $112,783 · management and general $811 · fundraising $1,587
-
23 · Insurance
total $24,587 · program services $3,378 · management and general $4,550 · fundraising $16,659
-
24a · Other expenses: CLINICS AND DATABASE
total $1,301,850 · program services $1,301,850
-
24b · Other expenses: PROGRAM EXPENSES
total $336,255 · program services $336,255
-
24c · Other expenses: FEES
total $85,669 · management and general $7,432 · fundraising $78,237
-
24d · Other expenses: MISCELLANEOUS
total $52,135 · management and general $19,231 · fundraising $32,904
-
24e · All other expenses
total $171,272 · program services $78,493 · management and general $19,660 · fundraising $73,119
Balance sheet
Part X, book values.
-
2 · Savings and temporary cash investments
beginning of year $1,214,348 · end of year $758,252
-
3 · Pledges and grants receivable
beginning of year $50,000 · end of year $39,889
-
8 · Inventories for sale or use
end of year $13,391
-
9 · Prepaid expenses and deferred charges
beginning of year $49,326 · end of year $62,147
-
10a · Land, buildings and equipment: cost or other basis
$579,381
-
10b · Land, buildings and equipment: accumulated depreciation
$539,670
-
10c · Land, buildings and equipment, net
beginning of year $149,935 · end of year $39,711
-
11 · Investments: publicly traded securities
beginning of year $786,039 · end of year $1,360,979
-
17 · Accounts payable and accrued expenses
beginning of year $265,774 · end of year $247,006
-
19 · Deferred revenue
end of year $40,492
-
27 · Net assets without donor restrictions
beginning of year $1,389,409 · end of year $1,234,241
-
28 · Net assets with donor restrictions
beginning of year $594,465 · end of year $752,630
Mission and programs · 2022
Mission
THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS BASIC SCIENCE RESEARCH AND CLINICAL TRIALS.
-
THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS AS-SPECIFIC RESEARCH TO FIND VIABLE THERAPEUTICS AND A CURE FOR AS.
Revenue $1,017,496
-
CONFERENCE AND GRANT PROGRAM
Expenses $2,749,272 · Grants $493,512
As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
AMANDA MOORE
CEO
- Total calculated
- $123,212
- From this org
- $123,212
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
MARIANNE BENET
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ANNA BLANDING
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
REBECCA BURDINE
SAC CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
MICHAEL CECERE
TREASURER
- Total calculated
- $0
- Hours/week
- 1.5
-
PETER ENGLAND
SECRETARY
- Total calculated
- $0
- Hours/week
- 1.5
-
TAYLOR GEATHERS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DAN HARVEY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
CHARLES WINSLO III
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MINDY MCBRIBE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
SHANNON MOYER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
LESLEY MCCULLOUGH MCCALISTER
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
ANDREW OBERWAGER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
LIA PERRYMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
STEVE PILUSO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
WILLIAM RAKOCZY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
KYLE ROONEY
PRESIDENT
- Total calculated
- $0
- Hours/week
- 2
-
DAVID ROUTH
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JOHN SUGDEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ERIC WRIGHT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS
$143,155
RESEARCH
-
UNIVERSITY OF NORTH CAROLINA CHAPEL HILL
$100,970
RESEARCH
-
CHILDREN'S MERCY - KANSAS CITY
$99,887
RESEARCH
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 10 January 2024
- IRS schema version
- 2022v5.0
- Source object
- 202430169349303883
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