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Nonprofiteer
← INTERNATIONAL ESSENTIAL TREMOR FOUNDATION

Form 990 for tax year 2025

Filed by INTERNATIONAL ESSENTIAL TREMOR FOUNDATION.

Totals

Total revenue
$1,495,117
Total expenses
$1,031,771
Contributions and grants received
$976,264
Grants paid
$325,000
Program service revenue
$11,285
Investment income
$504,223
Other revenue
$3,345
Total assets, end of year
$10,665,862
Total liabilities, end of year
$89,708
Net assets or fund balances, end of year
$10,576,154
Program services expenses (Part IX)
$820,389
Management and general expenses
$177,022
Fundraising expenses
$34,360
Program service expenses (Part III)
$820,389

Program services were 79.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $0

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $976,264

  • 1g · Noncash contributions included above

    $7,162

  • 2a · Program service revenue: Industry Partner Email Communication Fee

    total $11,125 · related or exempt $11,125 · unrelated business $0 · excluded $0

  • 2b · Program service revenue: Special Edition - Tremor Talk

    total $160 · related or exempt $160 · unrelated business $0 · excluded $0

  • 2f · All other program service revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $265,240 · related or exempt $0 · unrelated business $0 · excluded $265,240

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 7a · Gross sales of assets other than inventory

    securities $3,469,744 · other assets $0

  • 7b · Less cost or other basis and sales expenses

    securities $3,230,761 · other assets $0

  • 7c · Gain or loss

    securities $238,983 · other assets $0

  • 7d · Net gain or loss

    total $238,983 · related or exempt $0 · unrelated business $0 · excluded $238,983

  • 8a · Fundraising events: contributions included on line 1c

    $0

  • 11a · Other revenue: Insurance Premium Rebate

    total $3,345 · related or exempt $3,345 · unrelated business $0 · excluded $0

  • 11d · All other revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $3,345

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $250,000 · program services $250,000

  • 2 · Grants to domestic individuals

    total $75,000 · program services $75,000

  • 3 · Grants to foreign organizations and individuals

    total $0 · program services $0

  • 4 · Benefits paid to or for members

    total $0 · program services $0

  • 5 · Compensation of officers, directors and key employees

    total $148,974 · program services $119,179 · management and general $22,346 · fundraising $7,449

  • 6 · Compensation of disqualified persons

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 7 · Other salaries and wages

    total $113,826 · program services $91,061 · management and general $17,074 · fundraising $5,691

  • 8 · Pension plan contributions

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 9 · Other employee benefits

    total $6,234 · program services $4,987 · management and general $935 · fundraising $312

  • 10 · Payroll taxes

    total $18,331 · program services $14,665 · management and general $2,750 · fundraising $916

  • 11a · Fees: management

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11b · Fees: legal

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11c · Fees: accounting

    total $39,094 · program services $0 · management and general $39,094 · fundraising $0

  • 11d · Fees: lobbying

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11e · Fees: professional fundraising services

    total $0 · fundraising $0

  • 11f · Fees: investment management

    total $45,039 · program services $0 · management and general $45,039 · fundraising $0

  • 11g · Fees: other

    total $158,495 · program services $126,796 · management and general $23,774 · fundraising $7,925

  • 12 · Advertising and promotion

    total $17,170 · program services $13,736 · management and general $2,576 · fundraising $858

  • 13 · Office expenses

    total $26,365 · program services $18,370 · management and general $3,446 · fundraising $4,549

  • 14 · Information technology

    total $25,793 · program services $20,635 · management and general $3,869 · fundraising $1,289

  • 15 · Royalties

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 16 · Occupancy

    total $24,973 · program services $19,978 · management and general $3,746 · fundraising $1,249

  • 17 · Travel

    total $51 · program services $41 · management and general $8 · fundraising $2

  • 18 · Travel or entertainment for public officials

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 19 · Conferences, conventions and meetings

    total $15,740 · program services $12,592 · management and general $2,361 · fundraising $787

  • 20 · Interest

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 21 · Payments to affiliates

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 22 · Depreciation, depletion and amortization

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 23 · Insurance

    total $5,119 · program services $4,096 · management and general $768 · fundraising $255

  • 24a · Other expenses: Postage and Prining

    total $45,523 · program services $36,418 · management and general $6,829 · fundraising $2,276

  • 24b · Other expenses: Copier Lease Payment

    total $16,044 · program services $12,835 · management and general $2,407 · fundraising $802

  • 24e · All other expenses

    total $0 · program services $0 · management and general $0 · fundraising $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $141,202 · end of year $128,663

  • 2 · Savings and temporary cash investments

    beginning of year $350,840 · end of year $102,728

  • 3 · Pledges and grants receivable

    beginning of year $0 · end of year $0

  • 4 · Accounts receivable

    beginning of year $96,044 · end of year $1,720

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 7 · Other notes and loans receivable

    beginning of year $0 · end of year $0

  • 8 · Inventories for sale or use

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $0 · end of year $3,058

  • 10a · Land, buildings and equipment: cost or other basis

    $87,239

  • 10b · Land, buildings and equipment: accumulated depreciation

    $87,239

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $8,846,118 · end of year $10,378,302

  • 12 · Investments: other securities

    beginning of year $0 · end of year $0

  • 13 · Investments: program-related

    beginning of year $0 · end of year $0

  • 14 · Intangible assets

    beginning of year $0 · end of year $0

  • 15 · Other assets

    beginning of year $80,471 · end of year $51,391

  • 17 · Accounts payable and accrued expenses

    beginning of year $13,238 · end of year $40,365

  • 18 · Grants payable

    beginning of year $0 · end of year $0

  • 19 · Deferred revenue

    beginning of year $0 · end of year $0

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $78,424 · end of year $49,343

  • 27 · Net assets without donor restrictions

    beginning of year $6,118,905 · end of year $7,480,083

  • 28 · Net assets with donor restrictions

    beginning of year $3,304,108 · end of year $3,096,071

Mission and programs · 2025

Mission

The IETF provides hope to the ET community worldwide through awareness, education, support, and research.

Activities or mission (Part I)

The International Essential Tremor Foundation (the Foundation), was incorporated on June 25, 1992, in the state of Illinois as a nonprofit organization. The mission of the Foundation is to provide funding for research on tremor disorders, educational information, services, and support to individuals who have been diagnosed with essential tremor (ET), their families, and health care providers. The Foundation is the only worldwide organization dedicated to meeting the needs of those whose daily lives are challenged by essential tremor.

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $820,389 · Grants $325,000 · Revenue $11,285

As filed on the 2025 return. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

  • Patrick McCartney

    Executive Director

    Total calculated
    $142,702
    From this org
    $126,213
    From related orgs
    $0
    Other
    $16,489
    Hours/week
    40

  • Kelly Lyons

    President

    Total calculated
    $0
    Hours/week
    5

  • Shari Finsilver

    Vice President

    Total calculated
    $0
    Hours/week
    5

  • Paul Rodden

    Secretary

    Total calculated
    $0
    Hours/week
    5

  • Nathan Fiser

    Treasurer

    Total calculated
    $0
    Hours/week
    5

  • Patrick Reidy

    Board Member

    Total calculated
    $0
    Hours/week
    5

  • Paula Nauer

    Board Member

    Total calculated
    $0
    Hours/week
    5

  • Claudine Boldridge

    Board Member

    Total calculated
    $0
    Hours/week
    5

  • Sue Moore Fenske

    Board Member 1.1.26-3.31.26

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2025
Filed
22 September 2026
IRS schema version
2025v4.0
Source object
202622659349300942

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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