Totals
- Total revenue
- $326,027
- Total expenses
- $260,601
- Contributions and grants received
- $307,225
- Grants paid
- $52,593
- Program service revenue
- $1,692
- Investment income
- $0
- Other revenue
- $17,110
- Total assets, end of year
- $406,811
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $406,811
- Program services expenses (Part IX)
- $215,517
- Management and general expenses
- $16,641
- Fundraising expenses
- $28,443
- Program service expenses (Part III)
- $215,517
Program services were 82.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$39,850
-
1f · All other contributions, gifts and grants
$267,375
-
2a · Program service revenue: PATIENT CONFERENCE
total $1,692 · related or exempt $1,692
-
8a · Fundraising events: gross income
$26,675
-
8a · Fundraising events: contributions included on line 1c
$39,850
-
8b · Fundraising events: direct expenses
$9,565
-
8c · Net income from fundraising events
total $17,110 · excluded $17,110
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $52,593 · program services $52,593
-
7 · Other salaries and wages
total $45,000 · program services $45,000
-
10 · Payroll taxes
total $3,935 · program services $3,935
-
11c · Fees: accounting
total $5,398 · management and general $5,398
-
11e · Fees: professional fundraising services
total $26,250 · fundraising $26,250
-
11g · Fees: other
total $40,203 · program services $38,703 · management and general $1,500
-
13 · Office expenses
total $3,638 · program services $1,210 · management and general $2,428
-
14 · Information technology
total $6,062 · program services $2,106 · management and general $1,763 · fundraising $2,193
-
17 · Travel
total $22,496 · program services $22,496
-
19 · Conferences, conventions and meetings
total $33,100 · program services $33,100
-
23 · Insurance
total $2,911 · management and general $2,911
-
24a · Other expenses: EDUCATION RESOURCES
total $12,978 · program services $12,978
-
24b · Other expenses: BANK SERVICE CHARGE
total $2,641 · management and general $2,641
-
24c · Other expenses: RESEARCH EQUIPMENT
total $2,218 · program services $2,218
-
24d · Other expenses: OTHER PAYROLL EXPENSES
total $1,178 · program services $1,178
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $341,385 · end of year $402,586
-
4 · Accounts receivable
end of year $4,225
-
27 · Net assets without donor restrictions
beginning of year $141,385 · end of year $188,193
-
28 · Net assets with donor restrictions
beginning of year $200,000 · end of year $218,618
Mission and programs · 2022
Mission
Patient support and research for VCP Disease
-
Provide research grants and support to organizations funding research for VCP disease with a focus on young investigators. Provided travel stipends to 21 patients to participate in research studies. Estimated 2,000 people affected by VCP disease, but findings could help a larger population including cancer and ALS.
Expenses $67,786 · Grants $52,592
-
Creation and evaluation of 20 patients using at-home video captures to understand disease impact on daily life. Learnings will benefit the entire patient population.
Expenses $37,446
-
Provide education and awareness to VCP patients and family at the hybrid patient conference in St. Louis, MO (60 in-person and 12 remote attendees.
Expenses $31,181 · Revenue $1,692
-
Information Technology $2,106Office Expenses $1,210Salary $45,000Payroll Taxes $3,935Travel $9,521Conferences $1,919Educational resources $12,978Other payroll cost $1,178Service fees $1,257
Expenses $79,104
As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Nathan PeckNATHAN PECK
CEO
- Total calculated
- $0
- Hours/week
- 15
-
Allison PeckALLISON PECK
CFO
- Total calculated
- $0
- Hours/week
- 15
-
Amy CaseyAMY CASEY
SECRETARY
- Total calculated
- $0
- Hours/week
- 10
-
Kelly GoldKELLY GOLD
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Brandon FeldtBRANDON FELDT
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 10
-
Maureen McArthur HartMAUREEN MCARTHUR HART
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
David KaminskyDAVID KAMINSKY
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
NATIONWIDE CHILDREN'S HOSPITAL
$52,592
THE PURPOSE OF THE STUDY IS TO LEARN ABOUT HOW VCP DISEASE CHANGES PEOPLE'S STRENGTH AND MOVEMENTS AND AFFECTS THEIR DAILY LIFE. THIS INFORMATION WILL HELP IMPROVE CARE. IT WILL ALSO HELP RESEARCHERS PLAN AND DESIGN FUTURE RESEARCH STUDIES TO HELP THOSE WITH VCP DISEASE.
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 10 May 2023
- IRS schema version
- 2022v5.0
- Source object
- 202341319349306599
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