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Nonprofiteer
← ALSTROM SYNDROME INTERNATIONAL

Form 990 for tax year 2024

Filed by ALSTROM SYNDROME INTERNATIONAL.

Totals

Total revenue
$256,802
Total expenses
$174,244
Contributions and grants received
$256,802
Grants paid
$0
Program service revenue
$0
Investment income
$0
Other revenue
$0
Total assets, end of year
$180,966
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$180,966
Program services expenses (Part IX)
$86,804
Management and general expenses
$81,050
Fundraising expenses
$6,390
Program service expenses (Part III)
$86,804

Program services were 49.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $5,917

  • 1e · Government grants (contributions)

    $100,000

  • 1f · All other contributions, gifts and grants

    $150,885

  • 8a · Fundraising events: contributions included on line 1c

    $5,917

  • 8c · Net income from fundraising events

    total $0

Functional expenses

Part IX, the statement of functional expenses.

  • 11a · Fees: management

    total $74,270 · management and general $74,270

  • 11c · Fees: accounting

    total $1,950 · management and general $1,950

  • 12 · Advertising and promotion

    total $10,087 · program services $10,087

  • 13 · Office expenses

    total $4,830 · management and general $4,830

  • 14 · Information technology

    total $18,420 · program services $18,420

  • 17 · Travel

    total $43,165 · program services $43,165

  • 19 · Conferences, conventions and meetings

    total $497 · program services $497

  • 22 · Depreciation, depletion and amortization

    total $11 · program services $11

  • 23 · Insurance

    total $1,912 · program services $1,912

  • 24a · Other expenses: FamilyCommunity Events

    total $9,412 · program services $9,412

  • 24b · Other expenses: Fundraising

    total $6,390 · fundraising $6,390

  • 24c · Other expenses: Research

    total $2,178 · program services $2,178

  • 24d · Other expenses: Storage

    total $988 · program services $988

  • 24e · All other expenses

    total $134 · program services $134

Balance sheet

Part X, book values.

  • 2 · Savings and temporary cash investments

    beginning of year $98,397 · end of year $180,966

  • 10a · Land, buildings and equipment: cost or other basis

    $17,523

  • 10b · Land, buildings and equipment: accumulated depreciation

    $17,523

  • 10c · Land, buildings and equipment, net

    beginning of year $11

  • 27 · Net assets without donor restrictions

    beginning of year $98,408 · end of year $180,966

Mission and programs · 2024

Mission

To provide support information and coordination world wide to families & professionals effectively treating Alstrom Syndrome as we work toward a cure

  • Education, research and family support to the public related to Alstrom Syndrome

    Expenses $86,804

As filed on the 2024 return.

Listed in Part VII

  • Raquel Tucker

    CEO start 11132024

    Total calculated
    $19,545
    From this org
    $19,545
    From related orgs
    $0
    Other
    $0
    Hours/week
    30

  • Gina Denbow

    Chair

    Total calculated
    $18,000
    From this org
    $18,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    15

  • Chase A Palmer

    President

    Total calculated
    $18,000
    From this org
    $18,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    15

  • Eric Beresford

    CEO end 10242024

    Total calculated
    $15,000
    From this org
    $15,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    30

  • Chelsey Kostick

    Director

    Total calculated
    $0
    Hours/week
    0.1

  • Michelle Marshall

    Director

    Total calculated
    $0
    Hours/week
    0.1

  • Clair Francomano

    Director

    Total calculated
    $0
    Hours/week
    0.1

  • Edward M Conlon

    Director

    Total calculated
    $0
    Hours/week
    0.1

  • Sarah Durfey

    Director

    Total calculated
    $0
    Hours/week
    0.1

  • Pietro Maffei

    Director

    Total calculated
    $0
    Hours/week
    0.1

  • Selma Duzleni

    Director

    Total calculated
    $0
    Hours/week
    0.1

  • Mary Smart

    Director

    Total calculated
    $0
    Hours/week
    0.1

  • Robert Marshall

    Director

    Total calculated
    $0
    Hours/week
    0.1

  • Jennifer Farley

    Vice President

    Total calculated
    $0
    Hours/week
    0.1

  • Michael J Kirby

    Secretary

    Total calculated
    $0
    Hours/week
    0.1

  • Jennifer Potter

    Treasurer

    Total calculated
    $0
    Hours/week
    0.1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2024
Filed
17 April 2025
IRS schema version
2024v5.1
Source object
202531189349301923

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