Totals
- Total revenue
- $349,920
- Total expenses
- $195,977
- Contributions and grants received
- $334,295
- Grants paid
- $154,000
- Program service revenue
- $15,749
- Investment income
- -$124
- Other revenue
- $0
- Total assets, end of year
- $764,527
- Total liabilities, end of year
- $204,000
- Net assets or fund balances, end of year
- $560,527
- Program services expenses (Part IX)
- $187,487
- Management and general expenses
- $8,490
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $187,487
Program services were 95.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$334,295
-
2a · Program service revenue: CONFERENCE REGISTRATION
total $15,749 · related or exempt $15,749
-
3 · Investment income
total -$65 · related or exempt -$65
-
7a · Gross sales of assets other than inventory
securities $2,501
-
7b · Less cost or other basis and sales expenses
securities $2,560
-
7c · Gain or loss
securities -$59
-
7d · Net gain or loss
total -$59 · related or exempt -$59
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $154,000 · program services $154,000
-
13 · Office expenses
total $838 · management and general $838
-
14 · Information technology
total $1,832 · management and general $1,832
-
19 · Conferences, conventions and meetings
total $25,751 · program services $25,751
-
23 · Insurance
total $1,572 · management and general $1,572
-
24a · Other expenses: EDUCATION
total $7,736 · program services $7,736
-
24b · Other expenses: BANK CHARGES & CC FEES
total $3,819 · management and general $3,819
-
24c · Other expenses: MEMBERSHIPS & DUES
total $300 · management and general $300
-
24d · Other expenses: REGISTRATION FEES
total $129 · management and general $129
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $576,947 · end of year $755,615
-
2 · Savings and temporary cash investments
beginning of year $2,077 · end of year $4,514
-
11 · Investments: publicly traded securities
beginning of year $2,560 · end of year $4,398
-
18 · Grants payable
beginning of year $175,000 · end of year $204,000
-
27 · Net assets without donor restrictions
beginning of year $406,584 · end of year $560,527
Mission and programs · 2022
Mission
TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY).
-
TO FURTHER RESEARCH TO FIND A CURE AND/OR TREATMENT FOR KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY).
Expenses $154,000 · Grants $154,000
-
TO PROVIDE SUPPORT FOR THOSE WHO HAVE, OR ARE A CARRIER OF, KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY) AND THEIR FAMILY MEMBERS AND CAREGIVERS.
Expenses $25,751 · Revenue $15,749
-
TO PROVIDE EDUCATION AND INFORMATION REGARDING KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY).
Expenses $7,736
As filed on the 2022 return.
Listed in Part VII
-
Terry ThompsonTERRY THOMPSON
PRESIDENT
- Total calculated
- $0
- Hours/week
- 5
-
Jameson ParkerJAMESON PARKER
VICE PRESIDE
- Total calculated
- $0
- Hours/week
- 5
-
David YeltonDAVID YELTON
TREASURER
- Total calculated
- $0
- Hours/week
- 5
-
Simon HillSIMON HILL
SECRETARY
- Total calculated
- $0
- Hours/week
- 2
-
Ron MoffetRON MOFFET
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Kathy ThompsonKATHY THOMPSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 5
-
Steven RittmasterSTEVEN RITTMASTER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Dale TraxlerDALE TRAXLER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
WAYNE STATE UNIVERSITY ALYSON SUJKOWSKI
$77,000
RESEARCH
-
NIH CLINICAL CENTER ABDULLAH ALQAHTANI
$77,000
RESEARCH
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 15 November 2023
- IRS schema version
- 2022v5.0
- Source object
- 202313199349315816
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