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Nonprofiteer
← AMERICAN PARKINSON DISEASE ASSOC

Form 990 for tax year 2022

Filed by AMERICAN PARKINSON DISEASE ASSOC.

Totals

Total revenue
$12,931,965
Total expenses
$15,357,104
Contributions and grants received
$13,177,640
Grants paid
$3,800,268
Program service revenue
$0
Investment income
$37,254
Other revenue
-$282,929
Total assets, end of year
$23,456,567
Total liabilities, end of year
$2,832,762
Net assets or fund balances, end of year
$20,623,805
Program services expenses (Part IX)
$11,644,102
Management and general expenses
$1,543,775
Fundraising expenses
$2,169,227
Program service expenses (Part III)
$11,644,102

Program services were 75.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $194,620

  • 1c · Fundraising events

    $2,326,489

  • 1f · All other contributions, gifts and grants

    $10,656,531

  • 1g · Noncash contributions included above

    $7,000

  • 3 · Investment income

    total $202,526 · excluded $202,526

  • 6a · Gross rents

    real property $33,172

  • 6b · Less rental expenses

    real property $0

  • 6c · Rental income or loss

    real property $33,172

  • 6d · Net rental income or loss

    total $33,172 · excluded $33,172

  • 7a · Gross sales of assets other than inventory

    securities $10,093,512

  • 7b · Less cost or other basis and sales expenses

    securities $10,258,784

  • 7c · Gain or loss

    securities -$165,272

  • 7d · Net gain or loss

    total -$165,272 · excluded -$165,272

  • 8a · Fundraising events: gross income

    $200,080

  • 8a · Fundraising events: contributions included on line 1c

    $2,326,489

  • 8b · Fundraising events: direct expenses

    $574,363

  • 8c · Net income from fundraising events

    total -$374,283 · excluded -$374,283

  • 9a · Gaming: gross income

    $27,088

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $27,088 · excluded $27,088

  • 11a · Other revenue: MISCELLANEOUS

    total $31,094 · excluded $31,094

  • 11e · Other revenue, total

    $31,094

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $3,725,268 · program services $3,725,268

  • 3 · Grants to foreign organizations and individuals

    total $75,000 · program services $75,000

  • 5 · Compensation of officers, directors and key employees

    total $779,761 · program services $555,281 · management and general $131,950 · fundraising $92,530

  • 7 · Other salaries and wages

    total $3,420,950 · program services $2,436,119 · management and general $578,886 · fundraising $405,945

  • 8 · Pension plan contributions

    total $246,979 · program services $175,879 · management and general $41,793 · fundraising $29,307

  • 9 · Other employee benefits

    total $561,388 · program services $399,774 · management and general $94,997 · fundraising $66,617

  • 10 · Payroll taxes

    total $290,661 · program services $206,985 · management and general $49,185 · fundraising $34,491

  • 11b · Fees: legal

    total $205,113 · program services $146,064 · management and general $34,709 · fundraising $24,340

  • 11c · Fees: accounting

    total $250,466 · program services $178,362 · management and general $42,383 · fundraising $29,721

  • 11e · Fees: professional fundraising services

    total $212,508 · fundraising $212,508

  • 11f · Fees: investment management

    total $41,120 · program services $29,195 · management and general $6,990 · fundraising $4,935

  • 11g · Fees: other

    total $1,202,474 · program services $925,665 · management and general $167,664 · fundraising $109,145

  • 12 · Advertising and promotion

    total $206,732 · program services $166,151 · management and general $24,016 · fundraising $16,565

  • 13 · Office expenses

    total $275,812 · program services $199,636 · management and general $43,103 · fundraising $33,073

  • 14 · Information technology

    total $326,875 · program services $223,303 · management and general $48,025 · fundraising $55,547

  • 16 · Occupancy

    total $216,112 · program services $153,897 · management and general $36,570 · fundraising $25,645

  • 17 · Travel

    total $235,616 · program services $174,539 · management and general $41,476 · fundraising $19,601

  • 22 · Depreciation, depletion and amortization

    total $161,679 · program services $115,135 · management and general $27,359 · fundraising $19,185

  • 23 · Insurance

    total $102,948 · program services $73,311 · management and general $17,421 · fundraising $12,216

  • 24a · Other expenses: POSTAGE

    total $1,210,736 · program services $689,631 · management and general $48,311 · fundraising $472,794

  • 24b · Other expenses: STATIONERY AND PRINTING

    total $1,008,814 · program services $637,076 · management and general $60,869 · fundraising $310,869

  • 24c · Other expenses: MAILINGS

    total $381,456 · program services $196,325 · management and general $9,690 · fundraising $175,441

  • 24d · Other expenses: TELEPHONE

    total $96,159 · program services $68,476 · management and general $16,272 · fundraising $11,411

  • 24e · All other expenses

    total $122,477 · program services $93,030 · management and general $22,106 · fundraising $7,341

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $6,416,927 · end of year $6,191,437

  • 2 · Savings and temporary cash investments

    beginning of year $3,464,401 · end of year $5,498,928

  • 3 · Pledges and grants receivable

    beginning of year $19,999 · end of year $183,500

  • 4 · Accounts receivable

    beginning of year $5,024,214 · end of year $1,106,954

  • 9 · Prepaid expenses and deferred charges

    beginning of year $324,455 · end of year $265,358

  • 10a · Land, buildings and equipment: cost or other basis

    $4,481,211

  • 10b · Land, buildings and equipment: accumulated depreciation

    $2,184,696

  • 10c · Land, buildings and equipment, net

    beginning of year $2,375,799 · end of year $2,296,515

  • 12 · Investments: other securities

    beginning of year $3,520,499 · end of year $3,665,119

  • 15 · Other assets

    beginning of year $3,447,912 · end of year $4,248,756

  • 17 · Accounts payable and accrued expenses

    beginning of year $733,665 · end of year $548,986

  • 18 · Grants payable

    beginning of year $1,049,535 · end of year $1,499,750

  • 25 · Other liabilities

    beginning of year $159,680 · end of year $784,026

  • 27 · Net assets without donor restrictions

    beginning of year $17,718,480 · end of year $15,970,047

  • 28 · Net assets with donor restrictions

    beginning of year $4,932,846 · end of year $4,653,758

Mission and programs · 2022

Mission

THE AMERICAN PARKINSON DISEASE ASSOCIATION (APDA) IS A NATIONWIDE GRASSROOTS NETWORK DEDICATED TO FIGHTING PARKINSON'S DISEASE (PD) AND WORKS TIRELESSLY TO HELP THE APPROXIMATELY ONE MILLION PEOPLE WITH PD IN THE UNITED STATES LIVE LIFE TO THE FULLEST IN THE FACE OF THIS CHRONIC, NEUROLOGICAL DISORDER. FOUNDED IN 1961, APDA HAS RAISED AND INVESTED MORE THAN $252 MILLION TO PROVIDE OUTSTANDING PATIENT SERVICES AND EDUCATIONAL PROGRAMS, ELEVATE PUBLIC AWARENESS ABOUT THE DISEASE, AND SUPPORT RESEARCH DESIGNED TO UNLOCK THE MYSTERIES OF PD AND ULTIMATELY PUT AN END TO THIS DISEASE.

Activities or mission (Part I)

EVERY DAY WE PROVIDE THE SUPPORT, EDUCATION, AND RESEARCH THAT WILL HELP EVERYONE IMPACTED BY PARKINSON'S DISEASE LIVE LIFE TO THE FULLEST.

  • PUBLIC AWARENESS - APDA CURRENTLY PROVIDES (ON-LINE AND IN PRINT) MORE THAN 56 FREE EDUCATIONAL PUBLICATIONS, 34 IN ENGLISH, 19 IN SPANISH, AND 3 IN SIMPLIFIED CHINESE TO ADDRESS MEDICAL AND SOCIAL ASPECTS OF THE DIAGNOSIS, TREATMENT, AND CARE OF PEOPLE WITH PARKINSON DISEASE. THESE PUBLICATIONS AND ADDITIONAL INFORMATION DISTRIBUTED THROUGH APDA'S 15 CHAPTERS (13 OF WHICH ARE FULLY ACTIVE), 12 INFORMATION & REFERRAL CENTERS, EXTENSIVE WEBSITE, AND "800" TELEPHONE HELPLINE. APDA ALSO RAISES AWARENESS THROUGH TELEVISION PUBLIC SERVICE ANNOUNCEMENT (PSA) CAMPAIGNS ENTITLED "LIVE WITH OPTIMISM," "LOOK CLOSER, AND "MIRA MAS DE CERCA" THAT HAVE AIRED NATIONWIDE SINCE 2015. APPROXIMATELY 240,000 NEWSLETTERS ARE MAILED ANNUALLY, AND ADDITIONAL 420,000 SENT VIA EMAIL. CONTRIBUTED SERVICES INCLUDE DONATED MEDIA (TELEVISION AND RADIO BROADCASTING AND OTHER FORMS OF MEDIA, INCLUDING PUBLIC SERVICE ANNOUNCEMENTS) VALUED AT APPROXIMATELY $18,664,875 FOR THE YEAR ENDED AUGUST 31, 2023 AND $2,670,800 FOR THE YEAR ENDED AUGUST 31, 2022. THE FAIR VALUE OF THE DONATED MEDIA IS DETERMINED BASED ON CONSIDERATION OF CASH PAYMENTS TYPICALLY MADE BY BUYERS FOR SIMILAR ADVERTISING AND MEDIA, STANDARD DISCOUNTS GIVEN FOR SIMILARLY PLACED MEDIA, THE MEDIA TYPE AND PLACEMENT AND OTHER CONSIDERATIONS. APDA DOES NOT RECOGNIZE ANY REVENUE OR EXPENSE FROM SERVICES CONTRIBUTED BY VOLUNTEERS BECAUSE IT DOES NOT MEET THE CRITERIA FOR RECOGNITION UNDER FASB ASC 958, NOT-FOR-PROFIT ENTITIES.

    Expenses $5,140,143

  • PATIENT SERVICES AND EDUCATIONAL PROGRAMS - APDA AIMS TO SUPPORT EVERY PERSON AND EVERY FAMILY IMPACTED BY PARKINSON'S. THROUGH ITS NATIONWIDE SYSTEM OF CHAPTERS AND INFORMATION & REFERRAL (I&R) CENTERS, APDA UNIQUELY DELIVERS EDUCATION, SUPPORT AND PATIENT SERVICES TO ANYONE WITH PARKINSON'S AND THEIR FAMILIES EACH DAY. 12 INFORMATION AND REFERRAL CENTERS ARE GRANT FUNDED. APDA CONDUCTED 25 NATIONAL PATIENT EDUCATION WEBINARS/VIRTUAL EDUCATION ON TOPICS THAT ADDRESS THE SYMPTOMS, TREATMENTS, AND CHALLENGES OF LIVING WITH PARKINSON'S DISEASE AND HAS REACHED OVER 113,000 INDIVIDUALS/UNIQUE VIEWS. APDA OFFERED 30 NATIONAL SUPPORT GROUP PROGRAMS "PRESS", PARKINSON'S ROADMAP FOR EDUCATON AND SUPPORT SERVICES, IN 23 MARKETS.

    Expenses $3,735,504 · Grants $1,779,017

  • RESEARCH - APDA PROUDLY INVESTS IN EIGHT CENTERS FOR ADVANCED RESEARCH AND SUPPORTS GRANTS TO FUND THE MOST PROMISING SCIENCE FOCUSED ON DISCOVERING THE CAUSE(S) AND FINDING THE CURE FOR PARKINSON'S DISEASE. SINCE ITS FOUNDING IN 1961, APDA HAS BEEN A FUNDING PARTNER IN MANY OF THE MAJOR PD SCIENTIFIC BREAKTHROUGHS.

    Expenses $2,768,455 · Grants $2,021,251

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Leslie A Chambers

    PRESIDENT/CEO

    Total calculated
    $343,632
    From this org
    $294,310
    From related orgs
    $0
    Other
    $49,322
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $287,452
    Bonus
    $0
    Other
    $6,858
    Deferred
    $37,142
    Nontaxable benefits
    $12,180
    Filer's total
    $343,632

  • Rebecca Gilbert

    CHIEF MISSION OFFICER

    Total calculated
    $221,599
    From this org
    $196,117
    From related orgs
    $0
    Other
    $25,482
    Hours/week
    30

    Schedule J breakdown matched by us

    Base
    $195,876
    Bonus
    $0
    Other
    $241
    Deferred
    $24,750
    Nontaxable benefits
    $732
    Filer's total
    $221,599

  • Michelle McDonald

    CHIEF OPERATIONS OFFICER

    Total calculated
    $214,530
    From this org
    $171,161
    From related orgs
    $0
    Other
    $43,369
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $170,355
    Bonus
    $0
    Other
    $806
    Deferred
    $21,600
    Nontaxable benefits
    $21,769
    Filer's total
    $214,530

  • Eloise Caggiano

    VP DEVELOPMENT/MKTG & COMMUNICATIONS

    Total calculated
    $184,534
    From this org
    $153,041
    From related orgs
    $0
    Other
    $31,493
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $152,765
    Bonus
    $0
    Other
    $276
    Deferred
    $19,314
    Nontaxable benefits
    $12,179
    Filer's total
    $184,534

  • William Patjane

    REGIONAL DIRECTOR

    Total calculated
    $167,786
    From this org
    $129,007
    From related orgs
    $0
    Other
    $38,779
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $128,373
    Bonus
    $0
    Other
    $634
    Deferred
    $16,281
    Nontaxable benefits
    $22,498
    Filer's total
    $167,786

  • Jean Allenbach

    REGIONAL DIRECTOR

    Total calculated
    $166,896
    From this org
    $135,403
    From related orgs
    $0
    Other
    $31,493
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $135,134
    Bonus
    $0
    Other
    $269
    Deferred
    $19,314
    Nontaxable benefits
    $12,179
    Filer's total
    $166,896

  • Catherine Krane

    REGIONAL DIRECTOR

    Total calculated
    $165,593
    From this org
    $125,257
    From related orgs
    $0
    Other
    $40,336
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $124,615
    Bonus
    $0
    Other
    $642
    Deferred
    $15,807
    Nontaxable benefits
    $24,529
    Filer's total
    $165,593

  • Chris Salicco

    VP FINANCE AND ADMINISTRATION

    Total calculated
    $157,725
    From this org
    $118,940
    From related orgs
    $0
    Other
    $38,785
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $118,705
    Bonus
    $0
    Other
    $235
    Deferred
    $23,775
    Nontaxable benefits
    $15,010
    Filer's total
    $157,725

  • Thomas K Penett Esq

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    1.5

  • Sally Ann Esposito Browne

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    1.5

  • Bernard Battista

    TREASURER

    Total calculated
    $0
    Hours/week
    1.5

  • Donna Jc Fanelli Dnp

    SECRETARY

    Total calculated
    $0
    Hours/week
    1.5

  • Patrick McDermott

    EXECUTIVE COMMITTEE MEMBER

    Total calculated
    $0
    Hours/week
    1.5

  • Athol Cochrane

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • David G Standaert MD PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Elena Maestrone Imperato

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Elizabeth Braun RN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Lisa Esposito DVM

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Mario J Esposito Jr

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Michael Melnicke

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2022
Filed
22 March 2024
IRS schema version
2022v5.0
Source object
202420899349301417

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