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← ALS NETWORK

Form 990 for tax year 2024

Filed by ALS NETWORK.

Totals

Total revenue
$13,483,377
Total expenses
$11,968,729
Contributions and grants received
$13,015,478
Grants paid
$1,535,124
Program service revenue
$126,500
Investment income
$341,399
Other revenue
$0
Total assets, end of year
$16,358,915
Total liabilities, end of year
$1,737,662
Net assets or fund balances, end of year
$14,621,253
Program services expenses (Part IX)
$10,215,440
Management and general expenses
$821,930
Fundraising expenses
$931,359
Program service expenses (Part III)
$10,215,440

Program services were 85.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $847,253

  • 1e · Government grants (contributions)

    $3,510,000

  • 1f · All other contributions, gifts and grants

    $8,658,225

  • 1g · Noncash contributions included above

    $68,737

  • 2a · Program service revenue: Research Conference

    total $126,500 · related or exempt $126,500

  • 3 · Investment income

    total $341,399 · excluded $341,399

  • 8a · Fundraising events: gross income

    $736,928

  • 8a · Fundraising events: contributions included on line 1c

    $847,253

  • 8b · Fundraising events: direct expenses

    $736,928

  • 8c · Net income from fundraising events

    total $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,535,124 · program services $1,535,124

  • 5 · Compensation of officers, directors and key employees

    total $797,600 · program services $655,180 · management and general $66,766 · fundraising $75,654

  • 7 · Other salaries and wages

    total $4,210,394 · program services $3,458,583 · management and general $352,443 · fundraising $399,368

  • 8 · Pension plan contributions

    total $75,893 · program services $62,341 · management and general $6,353 · fundraising $7,199

  • 9 · Other employee benefits

    total $612,743 · program services $503,331 · management and general $51,292 · fundraising $58,120

  • 10 · Payroll taxes

    total $371,993 · program services $305,569 · management and general $31,139 · fundraising $35,285

  • 11b · Fees: legal

    total $4,413 · program services $4,413

  • 11c · Fees: accounting

    total $26,300 · program services $7,917 · management and general $18,383

  • 11d · Fees: lobbying

    total $57,000 · program services $57,000

  • 11g · Fees: other

    total $1,398,675 · program services $1,188,898 · management and general $1,951 · fundraising $207,826

  • 12 · Advertising and promotion

    total $64,028 · program services $52,595 · management and general $5,360 · fundraising $6,073

  • 13 · Office expenses

    total $367,897 · program services $302,204 · management and general $30,796 · fundraising $34,897

  • 14 · Information technology

    total $163,074 · management and general $163,074

  • 16 · Occupancy

    total $483,140 · program services $396,871 · management and general $40,442 · fundraising $45,827

  • 17 · Travel

    total $171,135 · program services $142,176 · management and general $13,576 · fundraising $15,383

  • 19 · Conferences, conventions and meetings

    total $415,011 · program services $415,011

  • 20 · Interest

    total $5,157 · program services $4,236 · management and general $432 · fundraising $489

  • 23 · Insurance

    total $49,576 · program services $40,724 · management and general $4,150 · fundraising $4,702

  • 24a · Other expenses: Research, patient svcs

    total $684,176 · program services $684,176

  • 24b · Other expenses: Dues & subscriptions

    total $205,881 · program services $169,119 · management and general $17,234 · fundraising $19,528

  • 24c · Other expenses: Equipment purchases

    total $106,249 · program services $87,277 · management and general $8,894 · fundraising $10,078

  • 24d · Other expenses: Miscellaneous

    total $94,443 · program services $77,580 · management and general $7,905 · fundraising $8,958

  • 24e · All other expenses

    total $68,827 · program services $65,115 · management and general $1,740 · fundraising $1,972

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $10,652,086 · end of year $10,577,910

  • 2 · Savings and temporary cash investments

    beginning of year $2,311,741 · end of year $3,434,084

  • 3 · Pledges and grants receivable

    beginning of year $649,060 · end of year $1,681,538

  • 4 · Accounts receivable

    beginning of year $257,042 · end of year $330,228

  • 9 · Prepaid expenses and deferred charges

    beginning of year $2,168 · end of year $103,818

  • 10a · Land, buildings and equipment: cost or other basis

    $59,931

  • 10b · Land, buildings and equipment: accumulated depreciation

    $59,931

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $0

  • 15 · Other assets

    beginning of year $431,783 · end of year $231,337

  • 17 · Accounts payable and accrued expenses

    beginning of year $552,721 · end of year $1,352,259

  • 23 · Secured mortgages and notes payable

    beginning of year $155,099 · end of year $152,564

  • 25 · Other liabilities

    beginning of year $432,351 · end of year $232,839

  • 27 · Net assets without donor restrictions

    beginning of year $11,348,524 · end of year $12,176,550

  • 28 · Net assets with donor restrictions

    beginning of year $1,815,185 · end of year $2,444,703

Mission and programs · 2024

Mission

The mission of ALS Network is to partner with the ALS community as we drive the discovery of prevention strategies, treatments, and cures for ALS; provide access to quality care and connection; and promote initiatives to improve health outcomes.

Activities or mission (Part I)

ALS Network (formerly the ALS Association Golden West Chapter) is dedicated to leading the fight to treat and cure ALS through cutting-edge research and targeted advocacy while also empowering people with ALS and their families to live fuller lives by providing them with compassionate care and support. ALS Network supports people living with ALS and their loved ones in California, Hawaii, and elsewhere.

  • Our mission critical program priorities include care services, research, and advocacy. These programs are provided to people with ALS and their families at no charge. Our accomplishments for fiscal year ending 1/31/24 are as follows:Care Management -Strategically based in and near patients' home communities, ALS Network Care Managers (CMs) work directly with persons with ALS and their families and serve as part of the treatment team in collaboration with clinicians from ALS specialty care clinics. Among other things, CMs provide critical information and referrals to patients and families, help patients obtain medical and communication-related equipment, connect them with essential resources, advocate for the uninsured, explain medical directives, and offer psychosocial support. In addition, the CM program provides help navigating complex benefits systems, more than 30 monthly support groups, bereavement support, educational webinars, safety assessments, in-clinic support, and many other things. This program is available throughout California and Hawaii. This program provided support to over 2,500 people living with with ALS and their families. Service was available for 365 days.

    Expenses $5,605,791 · Grants $1,535,124

  • Community Outreach & Awareness/Public Policy -Community outreach events, including our ALS Walk & Rolls, are opportunities to bring hope and a sense of community to persons with ALS and their families. By coming together to share their stories, people with ALS and their families, as well as those who have lost loved ones to ALS, find strength and support with one another. Community outreach events create an environment of empowerment where families and friends of persons with ALS are given an opportunity to affect public policy by signing petitions that are sent to the legislators representing their districts. These events also bring awareness to local communities of those fighting ALS and of the support available to them through ALS Network.The ALS Network Public Policy and Leadership Development program is intended to increase understanding, education and awareness of the devastating impact of ALS and the role that ALS Network plays in achieving the three core components of our mission; care and support for people with ALS and families, global research for treatments and cures, and important Public Policy initiatives. Through these efforts, we engage volunteers in the communities we serve and give them the opportunity to participate in advancing the activity of the organization and the achievement of our mission priorities. In addition, these activities have a direct positive impact on increasing access to care and ensuring significant federal funding of ALS research. This program also encompasses the organization's robust ALS Network Research Summit, an annual gathering of researchers, investigators, clinicians, biotech companies, government representatives and patient advocates in ALS and related fields. The purpose of the Summit is to increase, expedite and promote the amount and level of ALS and related research and to foster networking, collaboration and cooperation among investigators, their peers and their colleagues to identify, develop and deliver new and effective treatments, ideas and, ultimately, cures.

    Expenses $1,908,583

  • ALS Clinic Support - ALS Network is committed to making sure people living with ALS have access to specialized care that is based on best practices. Proven by research to help people with ALS live longer and better lives, access to high quality specialty care is one of the cornerstones of the ALS Network wraparound model of care. Care services staff members are embedded in each ALS specialty clinic, where they act as key members of the multidisciplinary team and provide comprehensive support to persons with ALS and their family members/caregivers. This model of care brings together a team of health care professionals specially trained to address the needs of people living with ALS, allowing them to receive care from each discipline during a single visit. The care team typically includes a neurologist, physical therapist, occupational therapist, respiratory therapist, nurse, dietitian, speech language pathologist, social worker, mental health professional, and ALS Network liaison. The ALS clinics supported by ALS Network provide compassionate care in a supportive, family-oriented atmosphere. In addition to supporting established ALS specialty clinics, the ALS Network supports, staffs, and promotes satellite clinics that improve access to critically needed services in areas that would otherwise lack ALS specialty care.

    Expenses $1,601,879

  • ALS Network advances scientific discovery by providing financial support for research aimed at developing treatments and cures for ALS and related neurodegenerative diseases. We award competitive grants and fund collaborative research programs with universities, pharmaceutical companies, and ALS research organizations, using a rigorous proposal, evaluation, and oversight process to ensure scientific merit and impact

    Expenses $1,099,187 · Revenue $126,500

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Patricia Shuler Schimbor

    Board Chair

    Total calculated
    $0
    Hours/week
    1

  • Sue Morris

    Board Vice Chair

    Total calculated
    $0
    Hours/week
    1

  • Jan Medusky

    Board Treasurer

    Total calculated
    $0
    Hours/week
    1

  • Jared Gill

    Board Secretary

    Total calculated
    $0
    Hours/week
    1

  • Stacy Inman

    Member-at-Large

    Total calculated
    $0
    Hours/week
    1

  • David Busseck

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • David W Cragg Sr

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Linda Della

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Bruce Friedricks

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Gary Galerne

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Jonathan Katz MD

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Caroline Landry

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Kathleen Rasmussen

    Board Member (end 5/24)

    Total calculated
    $0
    Hours/week
    1

  • Aubrey Rupinta

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Shae Selix

    Board Member (end 1/25)

    Total calculated
    $0
    Hours/week
    1

  • Pranjal Shah

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Kathy Shawyer Maffei

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Karen Sutton

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Simon Wise

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Maryann Wittenberg

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Fred B Fisher

    President Emeritus

    Total calculated
    $411,567
    From this org
    $398,596
    From related orgs
    $0
    Other
    $12,971
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $398,596
    Bonus
    $0
    Other
    $0
    Deferred
    $12,971
    Nontaxable benefits
    $0
    Filer's total
    $411,567

  • Sheri Strahl

    CEO & President

    Total calculated
    $375,803
    From this org
    $354,445
    From related orgs
    $0
    Other
    $21,358
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $309,445
    Bonus
    $45,000
    Other
    $0
    Deferred
    $12,286
    Nontaxable benefits
    $9,072
    Filer's total
    $375,803

  • Eric Beikmann

    Sr. Director, Marketing & Communications

    Total calculated
    $142,110
    From this org
    $132,501
    From related orgs
    $0
    Other
    $9,609
    Hours/week
    40

  • Cherryl Fluk

    Exec VP, Mission Advancement

    Total calculated
    $260,910
    From this org
    $239,404
    From related orgs
    $0
    Other
    $21,506
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $224,404
    Bonus
    $15,000
    Other
    $0
    Deferred
    $11,140
    Nontaxable benefits
    $10,366
    Filer's total
    $260,910

  • Jon Asher Garfinkel

    VP of Community Outreach

    Total calculated
    $167,572
    From this org
    $153,732
    From related orgs
    $0
    Other
    $13,840
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $145,732
    Bonus
    $8,000
    Other
    $0
    Deferred
    $3,919
    Nontaxable benefits
    $9,921
    Filer's total
    $167,572

  • Audra Hindes

    VP of Care Services

    Total calculated
    $158,984
    From this org
    $145,245
    From related orgs
    $0
    Other
    $13,739
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $130,245
    Bonus
    $15,000
    Other
    $0
    Deferred
    $5,069
    Nontaxable benefits
    $8,670
    Filer's total
    $158,984

  • Paul Willett

    Sr Dir Finance & Admin.

    Total calculated
    $153,219
    From this org
    $146,976
    From related orgs
    $0
    Other
    $6,243
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $146,976
    Bonus
    $0
    Other
    $0
    Deferred
    $6,243
    Nontaxable benefits
    $0
    Filer's total
    $153,219

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

Part I, Line 7
Compensation potentially includes a discretionary performance-based bonus. Compensation for officers and key employees of the organization is determined through the annual budget process and is approved by the President/CEO and the governing board.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2024
Filed
15 December 2025
IRS schema version
2024v5.2
Source object
202533499349301608

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