Totals
- Total revenue
- $44,744
- Total expenses
- $67,643
- Contributions and grants received
- $18,250
- Grants paid
- $50,000
- Program service revenue
- $0
- Investment income
- $1,721
- Other revenue
- $24,773
- Total assets, end of year
- $213,622
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $213,622
- Program services expenses (Part IX)
- $55,000
- Management and general expenses
- $12,643
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $55,000
Program services were 81.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$18,250
-
3 · Investment income
total $1,721 · related or exempt $1,721
-
8a · Fundraising events: gross income
$105,000
-
8b · Fundraising events: direct expenses
$80,227
-
8c · Net income from fundraising events
total $24,773 · excluded $24,773
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $50,000 · program services $50,000
-
13 · Office expenses
total $175 · management and general $175
-
17 · Travel
total $3,512 · management and general $3,512
-
19 · Conferences, conventions and meetings
total $6,118 · management and general $6,118
-
23 · Insurance
total $2,435 · management and general $2,435
-
24a · Other expenses: EVENT SUPPLIES
total $5,000 · program services $5,000
-
24b · Other expenses: STORAGE
total $383 · management and general $383
-
24c · Other expenses: BANK FEES
total $20 · management and general $20
Balance sheet
Part X, book values.
-
2 · Savings and temporary cash investments
beginning of year $236,520 · end of year $213,622
-
27 · Net assets without donor restrictions
beginning of year $236,520 · end of year $213,622
Mission and programs · 2024
Mission
RAISING FUNDS FOR MEDICAL RESEARCH FOR THE DISEASE CYSTINOSIS
Activities or mission (Part I)
RAISING FUNDS FOR MEDICAL RESEARCH FOR DISEASE CYSTINOSIS
-
WE ARE A VOLUNTEER NON-PROFIT ORGANIZATION CONSISTING OF PARENTS, RELATIVES,FRIENDS AND PROFESSIONALS WHO ARE INVOLVED WITH FIGHING CYSTINOSIS. WE RAISE AWARENESS AND MONEY FOR MEDICAL RESEARCH FOR THIS RARE DISEASE,CYSTINOSIS. WE ARE IN PARTNERSHIP WITH THE CYSTINOSIS RESEARCH FOUNDATION, AND DIRECT ALL NET PROCEEDS TO CRF FOR CLINICAL TRIALS AND RESEARCH.
Expenses $55,000 · Grants $50,000 · Revenue $1,721
As filed on the 2024 return.
Listed in Part VII
-
Robert TimmonsROBERT TIMMONS
PRESIDENT
- Total calculated
- $0
- Hours/week
- 1
-
Brian SturgisBRIAN STURGIS
VICE-PRESIDENT
- Total calculated
- $0
- Hours/week
- 1
-
Adam SharpADAM SHARP
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Brian TimmonsBRIAN TIMMONS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Russ SchmaltzRUSS SCHMALTZ
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Matt GillisMATT GILLIS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Phil CurriePHIL CURRIE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Joel ZimmermanJOEL ZIMMERMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Kristin SouersKRISTIN SOUERS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Doug CameronDOUG CAMERON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Brent OtterBRENT OTTER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
CYSTINOSIS RESEARCH FOUNDATION
$50,000
TO FUND RESEARCH ON THE TREATMENT AND CURE OF CYSTINOSIS
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 23 June 2025
- IRS schema version
- 2024v5.2
- Source object
- 202531899349302003
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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