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Nonprofiteer
← NEUROENDOCRINE TUMOR RESEARCH FOUNDATION

Form 990 for tax year 2024

Filed by NEUROENDOCRINE TUMOR RESEARCH FOUNDATION.

Totals

Total revenue
$3,993,657
Total expenses
$3,778,477
Contributions and grants received
$3,111,689
Grants paid
$2,219,056
Program service revenue
$0
Investment income
$855,797
Other revenue
$26,171
Total assets, end of year
$21,377,613
Total liabilities, end of year
$4,541,212
Net assets or fund balances, end of year
$16,836,401
Program services expenses (Part IX)
$2,992,472
Management and general expenses
$293,460
Fundraising expenses
$492,545
Program service expenses (Part III)
$2,992,472

Program services were 79.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $3,111,689

  • 1g · Noncash contributions included above

    $106,442

  • 3 · Investment income

    total $561,216 · excluded $561,216

  • 7a · Gross sales of assets other than inventory

    securities $1,646,686

  • 7b · Less cost or other basis and sales expenses

    securities $1,352,105

  • 7c · Gain or loss

    securities $294,581

  • 7d · Net gain or loss

    total $294,581 · excluded $294,581

  • 11a · Other revenue: RETURNED RESEARCH GRANT

    total $26,171 · related or exempt $26,171

  • 11e · Other revenue, total

    $26,171

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,859,056 · program services $1,859,056

  • 3 · Grants to foreign organizations and individuals

    total $360,000 · program services $360,000

  • 5 · Compensation of officers, directors and key employees

    total $199,006 · program services $75,622 · management and general $85,573 · fundraising $37,811

  • 7 · Other salaries and wages

    total $710,038 · program services $384,716 · management and general $49,004 · fundraising $276,318

  • 9 · Other employee benefits

    total $31,726 · program services $18,684 · management and general $4,702 · fundraising $8,340

  • 10 · Payroll taxes

    total $78,849 · program services $36,102 · management and general $18,164 · fundraising $24,583

  • 11b · Fees: legal

    total $6,116 · program services $6,116

  • 11c · Fees: accounting

    total $49,037 · management and general $49,037

  • 11f · Fees: investment management

    total $46,689 · management and general $46,689

  • 11g · Fees: other

    total $174,432 · program services $115,619 · fundraising $58,813

  • 12 · Advertising and promotion

    total $1,656 · program services $540 · fundraising $1,116

  • 13 · Office expenses

    total $31,090 · program services $835 · management and general $2,956 · fundraising $27,299

  • 14 · Information technology

    total $34,077 · program services $3,505 · management and general $12,949 · fundraising $17,623

  • 16 · Occupancy

    total $87,732 · program services $40,609 · management and general $19,568 · fundraising $27,555

  • 17 · Travel

    total $28,867 · program services $16,979 · management and general $2,567 · fundraising $9,321

  • 19 · Conferences, conventions and meetings

    total $125,790 · program services $124,446 · fundraising $1,344

  • 23 · Insurance

    total $7,940 · program services $3,567 · management and general $1,951 · fundraising $2,422

  • 24a · Other expenses: DUES AND LICENSES

    total $900 · program services $600 · management and general $300

  • 24b · Other expenses: GRANT DISCOUNTS

    total -$54,524 · program services -$54,524

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,352,806 · end of year $1,509,614

  • 2 · Savings and temporary cash investments

    beginning of year $203,802 · end of year $103,845

  • 3 · Pledges and grants receivable

    beginning of year $513,268 · end of year $990,391

  • 9 · Prepaid expenses and deferred charges

    beginning of year $17,417 · end of year $27,629

  • 11 · Investments: publicly traded securities

    beginning of year $18,457,571 · end of year $18,733,446

  • 15 · Other assets

    beginning of year $88,379 · end of year $12,688

  • 17 · Accounts payable and accrued expenses

    beginning of year $217,211 · end of year $233,620

  • 18 · Grants payable

    beginning of year $4,799,915 · end of year $4,301,399

  • 25 · Other liabilities

    beginning of year $83,363 · end of year $6,193

  • 27 · Net assets without donor restrictions

    beginning of year $2,848,405 · end of year $1,933,297

  • 28 · Net assets with donor restrictions

    beginning of year $12,684,349 · end of year $14,903,104

Mission and programs · 2024

Mission

TO FUND RESEARCH TO DISCOVER CURES AND MORE EFFECTIVE TREATMENTS FOR NEUROENDOCRINE CANCERS. THE NETRF IS COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY NEUROENDOCRINE CANCER BY PROVIDING INFORMATION & EDUCATIONAL RESOURCES.

Activities or mission (Part I)

TO FUND RESEARCH TO DISCOVER CURES & MORE EFFECTIVE TREATMENTS FOR NEUROENDOCRINE CANCERS. THE NETRF IS COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY NEURENDOCRINE CANCER BY PROVIDING INFORMATION & EDUCATIONAL RESOURCES.

  • THE NEUROENDOCRINE TUMOR RESEARCH FOUNDATION FUNDS SCIENTIFIC RESEARCH AROUND THE WORLD TO DISCOVER THE CAUSES, IMPROVE TREATMENTS, AND FIND CURES FOR NEUROENDOCRINE CANCER.

    Expenses $2,508,191 · Grants $2,110,008 · Revenue $26,171

  • NETRF PROVIDES EDUCATION AND SUPPORT FOR PEOPLE WITH NEUROENDOCRINE CANCER AND THEIR FAMILIES. THROUGH EDUCATIONAL CONFERENCES, A PATIENT GUIDE, PODCASTS AND A COMPREHENSIVE WEBSITE, NETRF HELPS PATIENTS UNDERSTAND THEIR DIAGNOSIS AND TREATMENT OPTIONS.

    Expenses $391,343

  • NETRF CONDUCTS OUTREACH TO OTHER NET-RELATED ORGANIZATIONS IN THE UNITED STATES AND BEYOND TO CONVENE RESEARCHERS AND FACILITATE SCIENTIFIC COLLABORATION. THROUGH ITS WORK AND LEADERSHIP WITH THESE OTHER GROUPS, NETRF ADVANCES UNDERSTANDING OF NEUROENDOCRINE TUMORS AND THE NEEDS OF NET PATIENTS. NETRF ALSO WORKS WITH PATIENT SUPPORT GROUPS TO CONNECT TO THE LARGER NET COMMUNITY.

    Expenses $92,938

As filed on the 2024 return.

Listed in Part VII

  • Mark Lewis MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Jonathan Soroff Until 012024

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Julie Shaffer Mebane

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    4

  • Laurie Rains

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Anthony Detre

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Stephen Blackwood PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Stephen Kaufer

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Josh Mailman

    TREASURER

    Total calculated
    $0
    Hours/week
    4

  • Joseph Li MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Brendan Foley Until 62024

    SECRETARY

    Total calculated
    $0
    Hours/week
    4

  • Todd Gilman

    PRESIDENT

    Total calculated
    $0
    Hours/week
    4

  • Suzanne Ludlow

    SECRETARY

    Total calculated
    $0
    Hours/week
    4

  • Laurie Littlepage

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Carrie Camino As Of 42024

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Elyse Gellerman

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $199,006
    From this org
    $199,006
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $174,362
    Bonus
    $24,644
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $199,006

  • Susan Harrington

    CHIEF DEVELOPMENT OFFICER

    Total calculated
    $179,491
    From this org
    $179,000
    From related orgs
    $0
    Other
    $491
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $157,880
    Bonus
    $21,120
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $491
    Filer's total
    $179,491

  • Anna Greene

    DIRECTOR OF RESEARCH

    Total calculated
    $137,064
    From this org
    $137,064
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Jessica Thomas

    DIRECTOR OF PATIENT EDUCATION

    Total calculated
    $132,271
    From this org
    $112,109
    From related orgs
    $0
    Other
    $20,162
    Hours/week
    40

  • Christina Coffey Until 072024

    DIRECTOR OF COMMUNICATIONS

    Total calculated
    $112,564
    From this org
    $107,547
    From related orgs
    $0
    Other
    $5,017
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 4a · Severance or change-of-control payment
  • 7 · Other non-fixed payments

Answered no

  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 4A
CHRISTINE COFFEY WAS PAID SEVERANCE IN THE AMOUNT OF $8,556.
PART I, LINE 7
BONUSES ARE GIVEN BASED ON THE ACHIEVEMENT OF APPROVED, MEASURABLE GOALS SET ON AN ANNUAL BASIS FOR EACH ELIGIBLE EMPLOYEE.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2024
Filed
25 April 2025
IRS schema version
2024v5.1
Source object
202521209349300907

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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