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Nonprofiteer
← CURE VCP DISEASE INC

Form 990 for tax year 2024

Filed by CURE VCP DISEASE INC.

Totals

Total revenue
$318,794
Total expenses
$369,802
Contributions and grants received
$278,868
Grants paid
$81,660
Program service revenue
$28,852
Investment income
$0
Other revenue
$11,074
Total assets, end of year
$432,360
Total liabilities, end of year
$5,616
Net assets or fund balances, end of year
$426,744
Program services expenses (Part IX)
$276,430
Management and general expenses
$40,669
Fundraising expenses
$52,703
Program service expenses (Part III)
$276,430

Program services were 74.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $113,565

  • 1f · All other contributions, gifts and grants

    $165,303

  • 2a · Program service revenue: SCIENTIFIC CONFERENCE

    total $28,852 · related or exempt $28,852

  • 8a · Fundraising events: gross income

    $32,456

  • 8a · Fundraising events: contributions included on line 1c

    $113,565

  • 8b · Fundraising events: direct expenses

    $21,382

  • 8c · Net income from fundraising events

    total $11,074 · excluded $11,074

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $81,660 · program services $81,660

  • 7 · Other salaries and wages

    total $64,146 · program services $59,331 · fundraising $4,815

  • 9 · Other employee benefits

    total $1,029 · program services $1,029

  • 10 · Payroll taxes

    total $8,001 · program services $7,464 · fundraising $537

  • 11a · Fees: management

    total $25,788 · management and general $25,788

  • 11b · Fees: legal

    total $1,050 · management and general $1,050

  • 11c · Fees: accounting

    total $3,561 · management and general $3,561

  • 11e · Fees: professional fundraising services

    total $45,000 · fundraising $45,000

  • 11g · Fees: other

    total $54,114 · program services $54,114

  • 12 · Advertising and promotion

    total $2,247 · management and general $2,247

  • 13 · Office expenses

    total $4,037 · program services $412 · management and general $3,121 · fundraising $504

  • 14 · Information technology

    total $5,335 · program services $3,138 · management and general $443 · fundraising $1,754

  • 17 · Travel

    total $8,986 · program services $8,986

  • 19 · Conferences, conventions and meetings

    total $54,793 · program services $54,793

  • 23 · Insurance

    total $3,455 · program services $271 · management and general $3,144 · fundraising $40

  • 24a · Other expenses: PROGRAM EQUIPMENT AND M

    total $3,988 · program services $3,988

  • 24b · Other expenses: OTHER PAYROLL EXPENSES

    total $1,116 · program services $892 · management and general $172 · fundraising $52

  • 24c · Other expenses: BANK FEES & SERVICE CHA

    total $1,094 · management and general $1,093 · fundraising $1

  • 24d · Other expenses: MEMBERSHIPS

    total $350 · program services $300 · management and general $50

  • 24e · All other expenses

    total $52 · program services $52

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $475,504 · end of year $411,385

  • 4 · Accounts receivable

    beginning of year $9,463 · end of year $20,925

  • 9 · Prepaid expenses and deferred charges

    beginning of year $4,000

  • 15 · Other assets

    beginning of year $0 · end of year $50

  • 17 · Accounts payable and accrued expenses

    beginning of year $799 · end of year $4,613

  • 19 · Deferred revenue

    beginning of year $10,416

  • 25 · Other liabilities

    beginning of year $0 · end of year $1,003

  • 27 · Net assets without donor restrictions

    beginning of year $265,648 · end of year $421,990

  • 28 · Net assets with donor restrictions

    beginning of year $212,104 · end of year $4,754

Mission and programs · 2024

Mission

Patient support and research for VCP Disease

  • Scientific and Clinical Trial Tools: Cure VCP Disease contracted with contract research groups to build a new patient registry and create two additional cell lines (isogenic controls to strength ongoing research)

    Expenses $45,381

  • Sponsorship of Research: Nationwide Childrens. The purpose of this study is to learn about how VCP disease changes people's movement and strength overtime. Forty-six individuals participated to help prepare for future clinical trials.

    Expenses $64,730 · Grants $64,730

  • Research Network and Conference: Facilitate the VCP research network and host scientific convenings to encourage collaboration. Our 2024 scientific conference brought together 100 scientists and patient advocates to share new research and plan future research

    Expenses $130,573

  • Grants $16,930Conference $500Research $8,733Information Technology $3,138Office Expenses $412Educational resources $52Program Equip. & Mater. $3,988Membership $300Travel $1,693

    Expenses $35,746 · Grants $16,930

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Nathan Peck

    CEO

    Total calculated
    $0
    Hours/week
    15

  • Allison Peck

    CFO

    Total calculated
    $0
    Hours/week
    15

  • Amy Casey

    SECRETARY

    Total calculated
    $0
    Hours/week
    10

  • Kelly Gold

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Sara Buhr

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Maureen McArthur Hart

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
14 May 2025
IRS schema version
2024v5.1
Source object
202511349349305521

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