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Nonprofiteer
← I AM ALS

Form 990 for tax year 2025

Filed by I AM ALS.

Totals

Total revenue
$2,566,419
Total expenses
$2,569,335
Contributions and grants received
$2,454,903
Grants paid
$0
Program service revenue
$0
Investment income
$89,388
Other revenue
$22,128
Total assets, end of year
$3,450,337
Total liabilities, end of year
$98,584
Net assets or fund balances, end of year
$3,351,753
Program services expenses (Part IX)
$2,019,174
Management and general expenses
$325,942
Fundraising expenses
$224,219
Program service expenses (Part III)
$2,019,174

Program services were 78.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $2,454,903

  • 3 · Investment income

    total $89,388 · excluded $89,388

  • 7a · Gross sales of assets other than inventory

    securities $17,139

  • 7b · Less cost or other basis and sales expenses

    securities $17,139

  • 7c · Gain or loss

    securities $0

  • 7d · Net gain or loss

    total $0

  • 11a · Other revenue: MERCHANDISE SALES

    total $22,128 · related or exempt $22,128

  • 11e · Other revenue, total

    $22,128

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $358,228 · program services $293,747 · management and general $35,823 · fundraising $28,658

  • 7 · Other salaries and wages

    total $1,123,174 · program services $948,071 · management and general $63,456 · fundraising $111,647

  • 8 · Pension plan contributions

    total $18,938 · program services $16,104 · management and general $856 · fundraising $1,978

  • 9 · Other employee benefits

    total $207,725 · program services $175,171 · management and general $12,042 · fundraising $20,512

  • 10 · Payroll taxes

    total $104,718 · program services $87,860 · management and general $6,877 · fundraising $9,981

  • 11c · Fees: accounting

    total $67,216 · management and general $67,216

  • 11d · Fees: lobbying

    total $94,308 · program services $94,308

  • 11g · Fees: other

    total $277,140 · program services $234,940 · management and general $35,037 · fundraising $7,163

  • 12 · Advertising and promotion

    total $7,253 · program services $1,800 · fundraising $5,453

  • 13 · Office expenses

    total $152,327 · program services $74,303 · management and general $56,470 · fundraising $21,554

  • 14 · Information technology

    total $80,132 · program services $43,775 · management and general $19,239 · fundraising $17,118

  • 16 · Occupancy

    total $11,022 · program services $8,255 · management and general $2,767

  • 17 · Travel

    total $42,078 · program services $32,514 · management and general $9,409 · fundraising $155

  • 19 · Conferences, conventions and meetings

    total $3,210 · program services $663 · management and general $2,547

  • 23 · Insurance

    total $10,214 · management and general $10,214

  • 24a · Other expenses: MISCELLANEOUS

    total $10,458 · program services $7,538 · management and general $2,920

  • 24b · Other expenses: RECRUITMENT FEES

    total $1,194 · program services $125 · management and general $1,069

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,069,885 · end of year $1,081,204

  • 2 · Savings and temporary cash investments

    beginning of year $1,435,252 · end of year $1,355,678

  • 4 · Accounts receivable

    beginning of year $93,501 · end of year $203,975

  • 9 · Prepaid expenses and deferred charges

    beginning of year $21,521 · end of year $14,492

  • 11 · Investments: publicly traded securities

    beginning of year $791,612 · end of year $793,536

  • 15 · Other assets

    beginning of year $1,452 · end of year $1,452

  • 17 · Accounts payable and accrued expenses

    beginning of year $43,320 · end of year $72,299

  • 25 · Other liabilities

    beginning of year $14,230 · end of year $26,285

  • 27 · Net assets without donor restrictions

    beginning of year $3,255,673 · end of year $3,281,753

  • 28 · Net assets with donor restrictions

    beginning of year $100,000 · end of year $70,000

Mission and programs · 2025

Mission

THE MISSION OF I AM ALS IS TO ACCELERATE A CURE FOR ALS BY MOBILIZING COLLECTIVE POWER TO DRIVE URGENT POLICY AND SYSTEMS CHANGE.

  • COMMUNITY SUPPORTI AM ALS OFFERS A MULTI-PRONGED, PERSON-CENTERED SUPPORT PORTFOLIO OF PROGRAMS FOR PEOPLE LIVING WITH ALS, CAREGIVERS, AND LOVED ONES AS THEY NAVIGATE THE EMOTIONAL, PRACTICAL, AND INFORMATIONAL CHALLENGES OF THE DISEASE. THROUGH DIRECT 1:1 SUPPORT, VIRTUAL SUPPORT GROUPS, PEER MATCHING, AND CURATED RESOURCES, THE COMMUNITY SUPPORT TEAM HELPS INDIVIDUALS FEEL LESS ALONE, CONNECT CLIENTS WITH TRAINED COMMUNITY MEMBER MENTORS WHO SHARE SIMILAR EXPERIENCES, AND NAVIGATE CLIENTS TO THE RESOURCES, INFORMATION, AND PROGRAMS THEY NEED. THIS INITIATIVE IMPROVES QUALITY OF LIFE WHILE BUILDING A COMMUNITY ROOTED IN CONNECTION, DIGNITY, AND HOPE.

    Expenses $478,099

  • GOVERNMENT AFFAIRS, POLICY, AND RESEARCHI AM ALS LEVERAGES THE EXPERTISE AND LIVED EXPERIENCE OF THE ALS COMMUNITY TO DRIVE URGENT FEDERAL POLICY AND SYSTEMS CHANGE. THE LEGISLATIVE PROGRAMS ARE INTENDED TO FORCE MULTIPLY ALS RESEARCH AND TREATMENT RESOURCES BY USING FEDERAL POLICY AND FUNDING BUCKETS TO MAXIMIZE INVESTMENTS. THE GOVERNMENT AFFAIRS TEAM WORKS ALONGSIDE COMMUNITY LEADERS, POLICYMAKERS, RESEARCHERS, REGULATORS, AND OTHER PARTNERS TO SECURE APPROPRIATIONS, POLICY, AND LEGISLATION THAT: 1) INCREASES ALS RESEARCH FUNDING, 2) PROTECTS AND EXPANDS ACCESS TO PROMISING TREATMENTS, AND 3) IMPROVES CLINICAL RESEARCH SYSTEMS AND A PATH TO REGULATORY SUCCESS, ALL ULTIMATELY ACCELERATING THE PATH TOWARDS A CURE.

    Expenses $526,421

  • COMMUNITY ORGANIZING AND COMMUNICATIONI AM ALS BUILDS AND SUSTAINS A NATIONAL MOVEMENT BY EQUIPPING COMMUNITY MEMBERS THOSE LIVING WITH AND IMPACTED BY ALS TO TAKE COLLECTIVE ACTION. THROUGH WEEKLY COMMUNITY TEAMS, DIGITAL ACTIONS, EVENTS, STORY-SHARING, AWARENESS CAMPAIGNS, AND COMMUNICATIONS, THE ORGANIZATION TRAINS AND EQUIPS VOLUNTEERS, FACILITATES ADVOCACY, AND MOBILIZES A COMMUNITY AND NATIONAL CONVERSATION AROUND BOLD PRIORITIES AND A FOCUS ON A CURE. I AM ALS STRIVES TO ENSURE PEOPLE LIVING WITH ALS ARE CENTERED IN THE DECISIONS THAT SHAPE THE FUTURE OF ALS SCIENCE, CARE, AND ACCESS. THESE EFFORTS STRENGTHEN COMMUNITY LEADERSHIP, INCREASE ALS AWARENESS AND COMPETENCY, AND CATALYZE PROGRESS ON POLICY CHANGE, RESEARCH, TRIAL ACCESS, CARE, AND PUBLIC ENGAGEMENT.

    Expenses $903,058

  • Expenses $111,596

As filed on the 2025 return.

Listed in Part VII

  • PETER BOWEN

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    2

  • JENNY FORTNER

    BOARD TREASURER

    Total calculated
    $0
    Hours/week
    2

  • PEGGY PLEWS-OGAN

    BOARD SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • BRIAN WALLACH

    CO-FOUNDER

    Total calculated
    $0
    Hours/week
    2

  • TIM ABESKA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • SANDRA ABREVAYA

    CO-FOUNDER

    Total calculated
    $0
    Hours/week
    2

  • JANO CABRERA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • LOUISE LANGHEIER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • MICHAEL O'NEIL

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • NEEL PAREKH

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • JUAN A REYES

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • CHUCK SMITH

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • DAN TATE

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • ANDREA GOODMAN

    CEO

    Total calculated
    $358,228
    From this org
    $300,303
    From related orgs
    $0
    Other
    $57,925
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $270,033
    Bonus
    $30,000
    Other
    $270
    Deferred
    $11,298
    Nontaxable benefits
    $46,627
    Filer's total
    $358,228

  • ERIN ALRED

    CHIEF OF STAFF

    Total calculated
    $154,857
    From this org
    $120,205
    From related orgs
    $0
    Other
    $34,652
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $118,125
    Bonus
    $2,000
    Other
    $80
    Deferred
    $0
    Nontaxable benefits
    $34,652
    Filer's total
    $154,857

  • ADITI NARAYAN MINKOFF

    VP OF COMMUNITY SUPPORT

    Total calculated
    $202,483
    From this org
    $160,778
    From related orgs
    $0
    Other
    $41,705
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $159,157
    Bonus
    $1,500
    Other
    $121
    Deferred
    $6,625
    Nontaxable benefits
    $35,080
    Filer's total
    $202,483

  • MICHAEL LECKER

    VP OF COMMUNITY ORGANIZING

    Total calculated
    $169,203
    From this org
    $148,955
    From related orgs
    $0
    Other
    $20,248
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $147,837
    Bonus
    $1,000
    Other
    $118
    Deferred
    $6,239
    Nontaxable benefits
    $14,009
    Filer's total
    $169,203

  • DUSTIN WATSON

    VP OF GOVERNMENT RELATIONS

    Total calculated
    $155,691
    From this org
    $154,595
    From related orgs
    $0
    Other
    $1,096
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $143,295
    Bonus
    $11,000
    Other
    $300
    Deferred
    $0
    Nontaxable benefits
    $1,096
    Filer's total
    $155,691

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 1a · Travel for companions
  • 1b · Written policy on the line-1a expenses
  • 2 · Substantiation required before reimbursing expenses
  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 1A
PER OUR BOARD REIMBURSEMENT POLICY, I AM ALS COVERS TRAVEL COSTS FOR CAREGIVERS OF BOARD MEMBERS WHO ARE LIVING WITH ALS WHEN TRAVEL IS REQUIRED FOR I AM ALS BOARD ACTIVITIES.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2025
Filed
7 August 2026
IRS schema version
2025v4.2
Source object
202602389349301320

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