Totals
- Total revenue
- $6,450,445
- Total expenses
- $7,021,827
- Contributions and grants received
- $6,106,138
- Grants paid
- $5,371,260
- Program service revenue
- not reported
- Investment income
- not reported
- Other revenue
- not reported
- Total assets, end of year
- not reported
- Total liabilities, end of year
- not reported
- Net assets or fund balances, end of year
- not reported
- Program services expenses (Part IX)
- $5,683,281
- Management and general expenses
- $278,012
- Fundraising expenses
- $1,060,534
- Program service expenses (Part III)
- $5,683,281
Program services were 80.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Listed in Part VII
-
ALEXANDER J SILVER
CHAIRMAN
- Total calculated
- $0
- Hours/week
- 5
-
JILL VEDDER
VICE CHAIRMAN
- Total calculated
- $0
- Hours/week
- 2
-
JAMIE G SILVER
SECRETARY
- Total calculated
- $0
- Hours/week
- 3
-
EDWARD GROSSMANN
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
ABBIE LEVINE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ALEXANDER LEMOS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ARI DESHE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
CHAD CERETTO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
DANIEL DESHE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
EILEEN ATTAR
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ELEANOR DEHONEY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JENNIFER KAUF
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
EMILY KUBIK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
FAYE DILGEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
HEATHER M FULLMER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JARED STERN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JEFFREY BERGER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JOSHUA PAULSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
KATE LEE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
ED VEDDER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MARK BOMBACK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MATTHEW HOLMES
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MATTHEW PRINCE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 3
-
MICHAEL KAHN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MONIQUE SOCK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
RICHARD GROSSMANN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ROB VERES
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
SCOTT DIDIER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
STEPHEN EVANS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 3
-
TRACY BALDWIN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
WHITNEY N POLLACK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MICHAEL PATRICK HUND
CEO
- Total calculated
- $352,081
- From this org
- $352,081
- From related orgs
- $0
- Other
- $0
- Hours/week
- 60
Schedule J breakdown matched by us
- Base
- $264,856
- Bonus
- $86,625
- Other
- $600
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $352,081
-
SARAH THYSSEN
EXECUTIVE GENERAL MANAGER
- Total calculated
- $94,136
- From this org
- $0
- From related orgs
- $86,098
- Other
- $8,038
- Hours/week
- 0 + 40 related
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Form 990 of other organizations
- 7 · Other non-fixed payments
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 8 · Paid under the initial-contract exception
The filer's explanations (Part III)
- PART I, LINE 7
- CLIENT PROVIDED IN THE CEOS BONUS TAB
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
$1,680,779
TO FUND RESEARCH TO FIND A CURE FOR EB
-
$1,044,842
TO FUND RESEARCH TO FIND A CURE FOR EB
-
$487,935
TO FUND RESEARCH TO FIND A CURE FOR EB
-
TO FUND RESEARCH TO FIND A CURE FOR EB
-
$415,892
TO FUND RESEARCH TO FIND A CURE FOR EB
-
$327,837
TO FUND RESEARCH TO FIND A CURE FOR EB
-
UNIVERSITY OF SOUTHERN CALIFORNIA
$183,750
TO FUND RESEARCH TO FIND A CURE FOR EB
-
$126,555
TO FUND RESEARCH TO FIND A CURE FOR EB
-
TO FUND RESEARCH TO FIND A CURE FOR EB
-
$27,120
TO FUND RESEARCH TO FIND A CURE FOR EB
The 10 largest by cash amount. The API serves every itemized grant.
Related organizations on this return
Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.
-
EB RESEARCH PARTNERSHIP (AUSTRALIA) LIMITED
FUNDING RESEARCH TO DISCOVER TREATMENTS & CURES FOR EB · AS
Directly controlled by EB RESEARCH PARTNERSHIP INC
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 14 November 2023
- IRS schema version
- 2022v5.0
- Source object
- 202303189349314695
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
The source document this was parsed from is served over the API, which is where bulk and document access live.