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Nonprofiteer
← THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC

Form 990 for tax year 2023

Filed by THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC.

Totals

Total revenue
$33,950,590
Total expenses
$41,890,829
Contributions and grants received
$30,976,388
Grants paid
$8,051,387
Program service revenue
$1,281,492
Investment income
$1,692,518
Other revenue
$192
Total assets, end of year
$80,227,632
Total liabilities, end of year
$23,942,208
Net assets or fund balances, end of year
$56,285,424
Program services expenses (Part IX)
$34,967,358
Management and general expenses
$1,350,403
Fundraising expenses
$5,573,068
Program service expenses (Part III)
$34,967,358

Program services were 83.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $30,976,388

  • 1g · Noncash contributions included above

    $251,490

  • 2a · Program service revenue: RESEARCH & CLINICAL TRIALS

    total $1,281,492 · related or exempt $1,281,492

  • 3 · Investment income

    total $1,696,550 · excluded $1,696,550

  • 5 · Royalties

    total $192 · related or exempt $192

  • 7a · Gross sales of assets other than inventory

    securities $103,230,530

  • 7b · Less cost or other basis and sales expenses

    securities $103,234,562

  • 7c · Gain or loss

    securities -$4,032

  • 7d · Net gain or loss

    total -$4,032 · excluded -$4,032

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $7,276,387 · program services $7,276,387

  • 3 · Grants to foreign organizations and individuals

    total $775,000 · program services $775,000

  • 5 · Compensation of officers, directors and key employees

    total $3,680,642 · program services $2,538,092 · management and general $375,543 · fundraising $767,007

  • 7 · Other salaries and wages

    total $6,405,349 · program services $4,416,994 · management and general $653,550 · fundraising $1,334,805

  • 8 · Pension plan contributions

    total $177,382 · program services $122,319 · management and general $18,099 · fundraising $36,964

  • 9 · Other employee benefits

    total $549,023 · program services $378,595 · management and general $56,018 · fundraising $114,410

  • 10 · Payroll taxes

    total $709,567 · program services $489,302 · management and general $72,398 · fundraising $147,867

  • 11a · Fees: management

    total $344,764 · program services $318,092 · management and general $2,182 · fundraising $24,490

  • 11b · Fees: legal

    total $57,505 · program services $53,056 · management and general $364 · fundraising $4,085

  • 11c · Fees: accounting

    total $60,000 · program services $55,358 · management and general $380 · fundraising $4,262

  • 11g · Fees: other

    total $5,662,222 · program services $4,435,659 · management and general $116,454 · fundraising $1,110,109

  • 12 · Advertising and promotion

    total $2,009,835 · program services $1,631,552 · management and general $12,722 · fundraising $365,561

  • 13 · Office expenses

    total $1,897,212 · program services $1,364,508 · management and general $3,285 · fundraising $529,419

  • 14 · Information technology

    total $1,991,345 · program services $1,837,287 · management and general $12,605 · fundraising $141,453

  • 16 · Occupancy

    total $207,010 · program services $190,995 · management and general $1,310 · fundraising $14,705

  • 17 · Travel

    total $669,418 · program services $375,653 · management and general $9,583 · fundraising $284,182

  • 19 · Conferences, conventions and meetings

    total $670,588 · program services $19,692 · fundraising $650,896

  • 22 · Depreciation, depletion and amortization

    total $762,057 · program services $717,480 · management and general $14,749 · fundraising $29,828

  • 23 · Insurance

    total $183,372 · program services $169,186 · management and general $1,161 · fundraising $13,025

  • 24a · Other expenses: CLINICAL TRIAL/RESEARCH

    total $7,270,131 · program services $7,270,131

  • 24b · Other expenses: TISSUE BANKING

    total $532,020 · program services $532,020

  • 26 · Joint costs (an allocation of the lines above)

    total $303,228 · program services $151,177 · management and general $0 · fundraising $152,051

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $5,060,628 · end of year $1,373,960

  • 2 · Savings and temporary cash investments

    beginning of year $13,092,430 · end of year $3,484,634

  • 3 · Pledges and grants receivable

    beginning of year $5,229,372 · end of year $3,195,258

  • 4 · Accounts receivable

    beginning of year $8,274,610 · end of year $3,739,397

  • 9 · Prepaid expenses and deferred charges

    beginning of year $896,043 · end of year $715,352

  • 10a · Land, buildings and equipment: cost or other basis

    $5,002,292

  • 10b · Land, buildings and equipment: accumulated depreciation

    $2,364,594

  • 10c · Land, buildings and equipment, net

    beginning of year $2,964,126 · end of year $2,637,698

  • 11 · Investments: publicly traded securities

    beginning of year $41,091,535 · end of year $48,157,559

  • 13 · Investments: program-related

    beginning of year $11,719,698 · end of year $16,363,985

  • 15 · Other assets

    beginning of year $769,219 · end of year $559,789

  • 17 · Accounts payable and accrued expenses

    beginning of year $15,173,286 · end of year $19,417,597

  • 18 · Grants payable

    beginning of year $43,261 · end of year $980,000

  • 19 · Deferred revenue

    beginning of year $9,131,077 · end of year $2,808,555

  • 25 · Other liabilities

    beginning of year $1,060,123 · end of year $736,056

  • 27 · Net assets without donor restrictions

    beginning of year $56,121,149 · end of year $53,786,450

  • 28 · Net assets with donor restrictions

    beginning of year $7,568,765 · end of year $2,498,974

Mission and programs · 2023

Mission

SEE SCHEDULE O

  • THE MMRC IS A NETWORK OF 14 LEADING CANCER CENTERS AND ADDRESSES THREE CRITICAL AREAS OF UNMET NEEDS: HIGH-RISK SMOLDERING MYELOMA, HIGH-RISK UPFRONT TREATMENT FOR SYMPTOMATIC MULTIPLE MYELOMA, AND RELAPSED/REFRACTORY TREATMENT AFTER ANTI-CD38 AND BCMA-DIRECTED THERAPIES.IN 2023, THE MMRF DEVELOPED THE HORIZON ADAPTIVE TRIALS PROGRAM. SLATED TO OPEN IN 2024, HORIZON WILL TEST TREATMENT STRATEGIES THROUGH TWO TRIALS IN PATIENTS WITH RELAPSED/REFRACTORY DISEASE AND THOSE WHO ARE NEWLY DIAGNOSED AND HAVE HIGH-RISK DISEASE. THE ADAPTIVE NATURE OF THE TRIALS ALLOWS INVESTIGATORS TO TEST MULTIPLE THERAPIES SIMULTANEOUSLY AND REDUCE THE AMOUNT OF TIME NEEDED TO EVALUATE NEW THERAPIES. INVESTIGATORS CAN THEN RAPIDLY EXPAND PATIENT COHORTS RECEIVING TREATMENT REGIMENS WITH POSITIVE OUTCOMES AND EFFICIENTLY CLOSE EXPERIMENTAL PROTOCOLS WITH LESS-THAN-OPTIMAL OUTCOMES. GROUNDBREAKING CLINICAL TRIALS LIKE HORIZON ARE ONLY POSSIBLE THROUGH LARGER-SCALE, MULTI-INSTITUTIONAL COOPERATION. THESE TRIALS ALLOW THE MMRC TO EXPLORE COMBINATION THERAPIES REGARDLESS OF MANUFACTURER, PUTTING THE MOST PROMISING SCIENCE AND THE URGENT NEED OF PATIENTS AHEAD OF PHARMACEUTICAL PROFITS OR INDUSTRY COMPETITION.

    Expenses $4,965,510 · Grants $650,000 · Revenue $1,281,492

  • IN 2023, THE MMRF CONTINUED TO BUILD OUT THE MMRF IMMUNE ATLAS INITIATIVE (THE "ATLAS"), AN IMMUNE PROFILING AND ANALYTICS PLATFORM USING DATA AND SAMPLES FROM THE COMMPASS STUDY TO GENERATE DATA ON THE ROLE OF PATIENT IMMUNITY IN MYELOMA DISEASE BIOLOGY AND RESPONSE TO THERAPY, AND TO SUPPORT AND SPEED EFFORTS TO MAKE IMMUNOTHERAPY MORE PRECISE FOR MYELOMA PATIENTS. THE ATLAS WILL DESCRIBE THE IMMUNE LANDSCAPE IN MYELOMA AND HOW IT CHANGES THROUGHOUT THE COURSE OF THE DISEASE AND TREATMENT. THIS EFFORT IS A CRITICAL FIRST STEP TO ESTABLISH GUIDELINES AND ALIGNMENT ON HOW IMMUNE DATA IS PRODUCED, PRIORITIZED, AGGREGATED, AND SHARED. AT SCALE, IT HAS THE POTENTIAL TO IDENTIFY NEW IMMUNOLOGIC FACTORS PREDICTIVE OF PATIENT RESPONSE OR RELAPSE TO THERAPY, TO IDENTIFY NEW IMMUNE TARGETS FOR DRUG DEVELOPMENT AND, EVENTUALLY, ENABLE CLINICIANS TO CUSTOMIZE TREATMENTS AND THERAPIES BASED ON AN INDIVIDUAL'S IMMUNE SYSTEM.

    Expenses $4,698,792

  • IN 2023, THE MMRF CONCLUDED ENROLLMENT IN THE MMRF CURECLOUD ("CURECLOUD") RESEARCH INITIATIVE, MAKING IT ONE OF THE LARGEST LONGITUDINAL DATA SETS IN MULTIPLE MYELOMA, WITH OVER 1,000 PATIENTS ENROLLED. THE DATA FROM THIS STUDY, WHICH INCLUDES CLINICAL GENOMIC, IMMUNE, AND PATIENT-REPORTED OUTCOMES, IS BEING ANALYZED IN ONGOING RESEARCH AND WILL BE MADE AVAILABLE TO RESEARCHERS TO HELP ANSWER IMPORTANT MYELOMA RESEARCH QUESTIONS AND INFORM FUTURE MMRF DATA-GENERATING INITIATIVES, ALL IN SUPPORT OF THE MMRF'S MISSION.

    Expenses $4,364,457

  • IN ADDITION TO THE PROGRAM EXPENSES DESCRIBED ABOVE, CORRESPONDING ACTIVITIES IN ALIGNMENT WITH THE OVERALL GOALS OF THE ORGANIZATION ARE ALSO SUPPORTED. THESE INCLUDE A PORTFOLIO OF CUTTING-EDGE RESEARCH PROGRAMS IN BASIC SCIENCE, WHICH IDENTIFIES NEW TARGETS THROUGH GENOMICS AND PROTEOMICS RESEARCH; VALIDATION STUDIES, WHICH IDENTIFY NEW COMPOUNDS AND COMBINATIONS IN RESEARCH MODELS BASED ON HIGH-PRIORITY TARGETS; AND INNOVATIVE CLINICAL TRIALS OF NOVEL AND COMBINATION TREATMENTS. AS A PATIENT-FOUNDED ORGANIZATION, THE MMRF STANDS TOGETHER WITH THOSE WHO ARE BATTLING MULTIPLE MYELOMA - PATIENTS, FAMILIES, PHYSICIANS, RESEARCHERS, AND INVESTORS. AT THE SAME TIME, THE MMRF STANDS APART WITH ITS INNOVATIVE APPROACH. THE MMRF GENERATES, INTERPRETS, AND ACTIVATES THE LARGEST COLLECTION OF HIGH-QUALITY DATA AND PLACES IT IN THE PUBLIC DOMAIN. THE MMRF ORCHESTRATES THE PEOPLE, PROGRAMS, AND TECHNOLOGIES NECESSARY TO SPEED THE DISCOVERY OF A CURE FOR EACH AND EVERY PATIENT.

    Expenses $20,938,599 · Grants $7,401,387 · Revenue $192

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Kathy Giusti

    FOUNDER & DIRECTOR

    Total calculated
    $183,333
    From this org
    $183,333
    From related orgs
    $0
    Other
    $0
    Hours/week
    20

    Schedule J breakdown matched by us

    Base
    $0
    Bonus
    $0
    Other
    $183,333
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $183,333
  • Thomas Conheeney

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    2
  • Gerald McDougall

    VICE CHAIRMAN

    Total calculated
    $0
    Hours/week
    2
  • Kenneth Anderson MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Karen Andrews

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Rodney Gilmore

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • David Lucchino

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Lori Tauber-Marcus

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Hugh Martin

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Susan Marvin

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • William McKiernan

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Michael Mortimer

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • David Parkinson MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Marie Pinizzotto MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Adrian Rosenkranz

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Steve Shak MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Kimberly White

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Michael Andreini

    PRESIDENT & CEO

    Total calculated
    $552,533
    From this org
    $527,575
    From related orgs
    $0
    Other
    $24,958
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $369,875
    Bonus
    $150,000
    Other
    $7,700
    Deferred
    $15,000
    Nontaxable benefits
    $9,958
    Filer's total
    $552,533
  • Robert Miani

    TREASURER & CFO

    Total calculated
    $413,942
    From this org
    $385,910
    From related orgs
    $0
    Other
    $28,032
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $255,060
    Bonus
    $105,000
    Other
    $25,850
    Deferred
    $18,108
    Nontaxable benefits
    $9,924
    Filer's total
    $413,942
  • Karen Dietz

    SECRETARY, CAO & GENERAL COUNSEL

    Total calculated
    $315,823
    From this org
    $280,128
    From related orgs
    $0
    Other
    $35,695
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $205,691
    Bonus
    $53,000
    Other
    $21,437
    Deferred
    $14,789
    Nontaxable benefits
    $20,906
    Filer's total
    $315,823
  • Anne Quinn Young

    CHIEF MISSION OFFICER

    Total calculated
    $391,561
    From this org
    $368,426
    From related orgs
    $0
    Other
    $23,135
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $257,858
    Bonus
    $78,000
    Other
    $32,568
    Deferred
    $15,000
    Nontaxable benefits
    $8,135
    Filer's total
    $391,561
  • George Mulligan

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $397,552
    From this org
    $358,470
    From related orgs
    $0
    Other
    $39,082
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $271,284
    Bonus
    $60,000
    Other
    $27,186
    Deferred
    $15,000
    Nontaxable benefits
    $24,082
    Filer's total
    $397,552
  • Peter Kosa

    MIF MANAGING DIR., THRU MAY 2023

    Total calculated
    $262,805
    From this org
    $247,225
    From related orgs
    $0
    Other
    $15,580
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $107,135
    Bonus
    $122,000
    Other
    $18,090
    Deferred
    $5,803
    Nontaxable benefits
    $9,777
    Filer's total
    $262,805
  • Christopher Williams

    VP OF ALLIANCE MANAGEMENT

    Total calculated
    $268,632
    From this org
    $237,539
    From related orgs
    $0
    Other
    $31,093
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $193,421
    Bonus
    $25,000
    Other
    $19,118
    Deferred
    $9,800
    Nontaxable benefits
    $21,293
    Filer's total
    $268,632
  • Eva M Lepisto

    VP OF INFORMATICS

    Total calculated
    $235,650
    From this org
    $225,272
    From related orgs
    $0
    Other
    $10,378
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $187,905
    Bonus
    $25,000
    Other
    $12,367
    Deferred
    $8,980
    Nontaxable benefits
    $1,398
    Filer's total
    $235,650
  • Hearn Cho

    CHIEF MEDICAL OFFICER

    Total calculated
    $232,288
    From this org
    $223,354
    From related orgs
    $0
    Other
    $8,934
    Hours/week
    32

    Schedule J breakdown matched by us

    Base
    $151,078
    Bonus
    $43,000
    Other
    $29,276
    Deferred
    $8,934
    Nontaxable benefits
    $0
    Filer's total
    $232,288
  • Katie Wozniak

    VP OF CLINICAL RESEARCH

    Total calculated
    $240,442
    From this org
    $210,845
    From related orgs
    $0
    Other
    $29,597
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $187,259
    Bonus
    $8,000
    Other
    $15,586
    Deferred
    $6,563
    Nontaxable benefits
    $23,034
    Filer's total
    $240,442
  • Mindy Flinn

    VP OF DEVELOPMENT, THRU SEPT. 2023

    Total calculated
    $186,081
    From this org
    $166,712
    From related orgs
    $0
    Other
    $19,369
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $132,654
    Bonus
    $25,000
    Other
    $9,058
    Deferred
    $6,313
    Nontaxable benefits
    $13,056
    Filer's total
    $186,081
  • Greg Rubenstein

    VP OF MARKETING

    Total calculated
    $250,111
    From this org
    $218,085
    From related orgs
    $0
    Other
    $32,026
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $185,712
    Bonus
    $22,000
    Other
    $10,373
    Deferred
    $9,040
    Nontaxable benefits
    $22,986
    Filer's total
    $250,111
  • Charles Volpe

    DIRECTOR, PR & COMM., THRU DEC. 2023

    Total calculated
    $228,149
    From this org
    $204,169
    From related orgs
    $0
    Other
    $23,980
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $155,173
    Bonus
    $10,000
    Other
    $38,996
    Deferred
    $0
    Nontaxable benefits
    $23,980
    Filer's total
    $228,149
  • Todd Brooks

    SR PRINCIPAL GIFT OFFICER

    Total calculated
    $210,109
    From this org
    $200,866
    From related orgs
    $0
    Other
    $9,243
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $175,000
    Bonus
    $16,000
    Other
    $9,866
    Deferred
    $8,020
    Nontaxable benefits
    $1,223
    Filer's total
    $210,109
  • Joanne Puglia

    SR DIRECTOR FINANCE, CONTROLLER

    Total calculated
    $205,947
    From this org
    $195,754
    From related orgs
    $0
    Other
    $10,193
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $162,654
    Bonus
    $18,000
    Other
    $15,100
    Deferred
    $7,830
    Nontaxable benefits
    $2,363
    Filer's total
    $205,947
  • Mark Hamilton

    ASSOCIATE DIRECTOR, RESEARCH

    Total calculated
    $199,759
    From this org
    $187,297
    From related orgs
    $0
    Other
    $12,462
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $160,657
    Bonus
    $13,000
    Other
    $13,640
    Deferred
    $7,450
    Nontaxable benefits
    $5,012
    Filer's total
    $199,759

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 4a · Severance or change-of-control payment
  • 7 · Other non-fixed payments

Answered no

  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 4A
CHARLES VOLPE, DIRECTOR, PR & COMMUNICATIONS, RECEIVED A SEVERANCE PAYMENT OF $31,500 INCLUDED IN HIS 2023 FORM W-2.
PART I, LINE 7
INDIVIDUALS INCLUDED IN SCHEDULE J, PART II RECEIVED A DISCRETIONARY BONUS DURING CALENDAR YEAR 2023, WHICH WAS INCLUDED IN COLUMN B(II) HEREIN AND IN THEIR 2023 FORM W-2, BOX 5, AS TAXABLE MEDICARE WAGES.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Taxable family on this return

Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.

Disregarded entities

Part I: entities that legally are the filer and file no return of their own.

  • MYELOMA INVESTMENT FUND LLC

    VENTURE PHILANTHROPY FUND · DE · income $1,588,166 · assets $21,345,357

    Directly controlled by THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC

  • MULTIPLE MYELOMA RESEARCH CONSORTIUM LLC

    FACILITATING OR SPONSORING CLINICAL TRIALS AND RELATED RESEARCH · CT · income $4,771,613 · assets $1,176,615

    Directly controlled by THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC

Provenance

Return type
form_990
Tax year
2023
Filed
24 September 2024
IRS schema version
2023v5.1
Source object
202422689349300902

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