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Nonprofiteer
← CYSTIC FIBROSIS RESEARCH INSTITUTE

Form 990 for tax year 2022

Filed by CYSTIC FIBROSIS RESEARCH INSTITUTE.

Totals

Total revenue
$1,350,296
Total expenses
$1,525,935
Contributions and grants received
$1,249,309
Grants paid
$590,000
Program service revenue
$2,700
Investment income
$21,420
Other revenue
$76,867
Total assets, end of year
$3,199,342
Total liabilities, end of year
$37,586
Net assets or fund balances, end of year
$3,161,756
Program services expenses (Part IX)
$1,325,516
Management and general expenses
$77,631
Fundraising expenses
$122,788
Program service expenses (Part III)
$1,325,516

Program services were 86.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $1,249,309

  • 1g · Noncash contributions included above

    $25,519

  • 2a · Program service revenue: EDUCATION PROGRAM

    total $2,700 · related or exempt $2,700

  • 3 · Investment income

    total $21,420 · related or exempt $21,420

  • 8a · Fundraising events: gross income

    $105,559

  • 8b · Fundraising events: direct expenses

    $28,692

  • 8c · Net income from fundraising events

    total $76,867 · excluded $76,867

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $590,000 · program services $590,000

  • 5 · Compensation of officers, directors and key employees

    total $108,992 · program services $97,548 · management and general $5,133 · fundraising $6,311

  • 7 · Other salaries and wages

    total $240,173 · program services $183,345 · management and general $16,327 · fundraising $40,501

  • 9 · Other employee benefits

    total $42,624 · program services $37,037 · management and general $2,660 · fundraising $2,927

  • 10 · Payroll taxes

    total $25,702 · program services $20,424 · management and general $1,578 · fundraising $3,700

  • 11g · Fees: other

    total $51,404 · program services $5,542 · management and general $41,991 · fundraising $3,871

  • 13 · Office expenses

    total $31,948 · program services $19,933 · management and general $619 · fundraising $11,396

  • 16 · Occupancy

    total $69,345 · program services $56,170 · management and general $3,467 · fundraising $9,708

  • 19 · Conferences, conventions and meetings

    total $268,313 · program services $268,313

  • 22 · Depreciation, depletion and amortization

    total $2,613 · program services $2,116 · management and general $131 · fundraising $366

  • 23 · Insurance

    total $5,400 · program services $4,374 · management and general $270 · fundraising $756

  • 24a · Other expenses: OTHER EXPENSES

    total $63,902 · program services $40,714 · management and general $5,455 · fundraising $17,733

  • 24b · Other expenses: NONFINANCIAL EXPENSES

    total $25,519 · fundraising $25,519

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,955,004 · end of year $1,739,194

  • 3 · Pledges and grants receivable

    beginning of year $187,719 · end of year $230,250

  • 4 · Accounts receivable

    beginning of year $275 · end of year $5,698

  • 9 · Prepaid expenses and deferred charges

    beginning of year $28,684 · end of year $16,611

  • 10a · Land, buildings and equipment: cost or other basis

    $108,786

  • 10b · Land, buildings and equipment: accumulated depreciation

    $105,815

  • 10c · Land, buildings and equipment, net

    beginning of year $4,092 · end of year $2,971

  • 11 · Investments: publicly traded securities

    beginning of year $1,265,439 · end of year $1,199,475

  • 15 · Other assets

    beginning of year $5,143 · end of year $5,143

  • 17 · Accounts payable and accrued expenses

    beginning of year $23,453 · end of year $37,586

  • 27 · Net assets without donor restrictions

    beginning of year $2,199,821 · end of year $2,303,751

  • 28 · Net assets with donor restrictions

    beginning of year $1,223,082 · end of year $858,005

Mission and programs · 2022

Mission

TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATIONAL AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE.

Activities or mission (Part I)

TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATION AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE THREATENING GENETIC DISEASE.

  • TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATION AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE THREATENING GENETIC DISEASE.

    Expenses $1,325,516 · Grants $590,000 · Revenue $2,700

As filed on the 2022 return.

Listed in Part VII

  • Francine Bion

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Zoe Davies

    BOARD SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Julie Desch

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Colleen Dunn

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Oscar A Flamenco

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Elyse Elconin Goldberg

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Jean Hanley

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Bill Hult

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Jessica Martens

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Doug Modlin

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Richard B Moss

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Arek Puzia

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Ahmet Uluer

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Siri Vaeth

    EXECUTIVE DIRECTOR

    Total calculated
    $108,992
    From this org
    $108,992
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
16 November 2023
IRS schema version
2022v5.0
Source object
202343209349303314

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