Form 990 for tax year 2024
Filed by ANGELMAN SYNDROME FOUNDATION INC.
Totals
- Total revenue
- $3,906,892
- Total expenses
- $3,721,265
- Contributions and grants received
- $2,318,250
- Grants paid
- $1,298,418
- Program service revenue
- $1,440,198
- Investment income
- $130,984
- Other revenue
- $17,460
- Total assets, end of year
- $2,637,296
- Total liabilities, end of year
- $535,399
- Net assets or fund balances, end of year
- $2,101,897
- Program services expenses (Part IX)
- $2,828,044
- Management and general expenses
- $304,815
- Fundraising expenses
- $588,406
- Program service expenses (Part III)
- $2,828,044
Program services were 76.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$2,318,250
-
1g · Noncash contributions included above
$231,296
-
2a · Program service revenue: WALK-A-THON
total $1,413,888 · related or exempt $1,413,888
-
2b · Program service revenue: BIENNIAL CONFERENCE
total $26,310 · related or exempt $26,310
-
3 · Investment income
total $130,984 · excluded $130,984
-
11a · Other revenue: MISCELLANEOUS INCOME (LOSS)
total $17,460 · excluded $17,460
-
11e · Other revenue, total
$17,460
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $1,173,418 · program services $1,173,418
-
3 · Grants to foreign organizations and individuals
total $125,000 · program services $125,000
-
7 · Other salaries and wages
total $544,569 · program services $231,033 · management and general $139,705 · fundraising $173,831
-
10 · Payroll taxes
total $56,828 · program services $21,219 · management and general $18,024 · fundraising $17,585
-
11g · Fees: other
total $205,059 · program services $35,307 · management and general $91,711 · fundraising $78,041
-
12 · Advertising and promotion
total $156,951 · program services $68,317 · management and general $1,650 · fundraising $86,984
-
13 · Office expenses
total $57,285 · program services $13,547 · management and general $6,525 · fundraising $37,213
-
16 · Occupancy
total $5,904 · program services $2,230 · management and general $1,797 · fundraising $1,877
-
17 · Travel
total $36,711 · program services $12,163 · management and general $5,461 · fundraising $19,087
-
19 · Conferences, conventions and meetings
total $53,044 · program services $53,044
-
22 · Depreciation, depletion and amortization
total $3,634 · program services $2,165 · management and general $537 · fundraising $932
-
23 · Insurance
total $26,517 · program services $6,593 · management and general $5,544 · fundraising $14,380
-
24a · Other expenses: CLINICS AND DATABASE
total $532,190 · program services $532,190
-
24b · Other expenses: PROGRAM EXPENSES
total $476,898 · program services $476,898
-
24c · Other expenses: FEES
total $83,183 · management and general $9,648 · fundraising $73,535
-
24d · Other expenses: FEES
total $46,959 · program services $46,959
-
24e · All other expenses
total $137,115 · program services $27,961 · management and general $24,213 · fundraising $84,941
Balance sheet
Part X, book values.
-
2 · Savings and temporary cash investments
beginning of year $1,122,681 · end of year $912,921
-
3 · Pledges and grants receivable
beginning of year $35,518 · end of year $19,639
-
8 · Inventories for sale or use
beginning of year $6,813 · end of year $129,594
-
9 · Prepaid expenses and deferred charges
beginning of year $47,455 · end of year $70,998
-
10a · Land, buildings and equipment: cost or other basis
$617,628
-
10b · Land, buildings and equipment: accumulated depreciation
$579,202
-
10c · Land, buildings and equipment, net
beginning of year $49,497 · end of year $38,426
-
11 · Investments: publicly traded securities
beginning of year $1,391,676 · end of year $1,465,718
-
17 · Accounts payable and accrued expenses
beginning of year $173,448 · end of year $88,302
-
18 · Grants payable
beginning of year $563,922 · end of year $437,097
-
19 · Deferred revenue
end of year $10,000
-
27 · Net assets without donor restrictions
beginning of year $1,074,253 · end of year $1,303,965
-
28 · Net assets with donor restrictions
beginning of year $842,017 · end of year $797,932
Mission and programs · 2024
Mission
THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS BASIC SCIENCE RESEARCH AND CLINICAL TRIALS.
-
THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS AS-SPECIFIC RESEARCH TO FIND VIABLE THERAPEUTICS AND A CURE FOR AS.
Expenses $1,298,418 · Grants $1,298,418 · Revenue $1,440,198
-
CONFERENCE, CLINICS, AND GRANT PROGRAM
Expenses $1,529,626
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Amanda MooreAMANDA MOORE
CEO
- Total calculated
- $118,419
- From this org
- $118,419
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Rebecca BurdineREBECCA BURDINE
SAC CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
April CanterAPRIL CANTER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Jerald FritzJERALD FRITZ
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Taylor GeathersTAYLOR GEATHERS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Eslin GuiceESLIN GUICE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Dan HarveyDAN HARVEY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Richard KrakerRICHARD KRAKER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Mindy McBribeMINDY MCBRIBE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Christian PacheCHRISTIAN PACHE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Lia PerrymanLIA PERRYMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Steve PilusoSTEVE PILUSO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
William RakoczyWILLIAM RAKOCZY
DIRECTOR
- Total calculated
- $0
-
Courtney SwaffordCOURTNEY SWAFFORD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Marcus ThompsonMARCUS THOMPSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Charles Winslow IIICHARLES WINSLOW III
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
Lesley McCullough McCalisterLESLEY MCCULLOUGH MCCALISTER
PRESIDENT
- Total calculated
- $0
- Hours/week
- 2
-
Andrew OberwagerANDREW OBERWAGER
TREASURER
- Total calculated
- $0
- Hours/week
- 2
-
John SugdenJOHN SUGDEN
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
REGENTS UNIVERSITY OF CALIFORNIA
$388,725
RESEARCH
-
UNIVERSITY OF NORTH CAROLINA CHAPEL HILL
$200,018
RESEARCH
-
VANDERBUILT UNIVERSITY MEDICAL CTR
$167,074
RESEARCH
-
NEW YORK UNIVERSITY DEPT OF MOLECULAR PATHOBIOLOGY
$125,000
RESEARCH
-
UNIVERSITY OF MASSACHUSETTS AMHERST
$100,000
RESEARCH
-
UNIVERSITY OF CONNECTICUT HEALTH CENTER
$100,000
RESEARCH
-
FAST
$80,726
RESEARCH
-
CHILDREN'S MERCY HOSPITAL
$11,875
RESEARCH
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 30 December 2025
- IRS schema version
- 2024v5.0
- Source object
- 202620139349303252
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