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← FANCONI CANCER FOUNDATION

Form 990 for tax year 2023

Filed by FANCONI CANCER FOUNDATION.

What the amendment changed

Compared with the return it replaced , filed 30 July 2024. matched by us Only the return's totals, a 990-PF's accounting method and the names listed in Part VII (Part VIII on a 990-PF) are compared. We relate returns by organization, tax year and form, and order them by each return's own timestamp; the filer's own "amended return" checkbox is a separate fact.

Those are the same on the two returns, so the amendment changed something else.

Totals

Total revenue
$3,493,638
Total expenses
$4,187,970
Contributions and grants received
$3,189,061
Grants paid
$1,938,214
Program service revenue
$40,035
Investment income
$262,765
Other revenue
$1,777
Total assets, end of year
$7,555,758
Total liabilities, end of year
$890,455
Net assets or fund balances, end of year
$6,665,303
Program services expenses (Part IX)
$3,239,986
Management and general expenses
$552,692
Fundraising expenses
$395,292
Program service expenses (Part III)
$3,239,986

Program services were 77.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $0

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $3,189,061

  • 1g · Noncash contributions included above

    $0

  • 2a · Program service revenue: PROGRAM SERVICE FEES

    total $40,035 · related or exempt $40,035 · unrelated business $0 · excluded $0

  • 2f · All other program service revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $208,600 · related or exempt $0 · unrelated business $0 · excluded $208,600

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 7a · Gross sales of assets other than inventory

    securities $1,081,567 · other assets $0

  • 7b · Less cost or other basis and sales expenses

    securities $1,027,402 · other assets $0

  • 7c · Gain or loss

    securities $54,165 · other assets $0

  • 7d · Net gain or loss

    total $54,165 · related or exempt $54,165 · unrelated business $0 · excluded $0

  • 8a · Fundraising events: gross income

    $1,750

  • 8a · Fundraising events: contributions included on line 1c

    $0

  • 8b · Fundraising events: direct expenses

    $0

  • 8c · Net income from fundraising events

    total $1,750 · unrelated business $0 · excluded $1,750

  • 11d · All other revenue

    total $27 · related or exempt $27 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $27

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,510,098 · program services $1,510,098

  • 2 · Grants to domestic individuals

    total $9,000 · program services $9,000

  • 3 · Grants to foreign organizations and individuals

    total $419,116 · program services $419,116

  • 5 · Compensation of officers, directors and key employees

    total $370,873 · program services $226,219 · management and general $74,018 · fundraising $70,636

  • 7 · Other salaries and wages

    total $554,003 · program services $337,922 · management and general $110,567 · fundraising $105,514

  • 8 · Pension plan contributions

    total $18,527 · program services $10,007 · management and general $3,035 · fundraising $5,485

  • 9 · Other employee benefits

    total $132,703 · program services $71,279 · management and general $23,068 · fundraising $38,356

  • 10 · Payroll taxes

    total $89,055 · program services $49,490 · management and general $24,969 · fundraising $14,596

  • 11b · Fees: legal

    total $658 · management and general $658

  • 11c · Fees: accounting

    total $41,772 · management and general $41,772

  • 11g · Fees: other

    total $170,038 · program services $18,627 · management and general $82,987 · fundraising $68,424

  • 13 · Office expenses

    total $62,001 · program services $11,819 · management and general $42,153 · fundraising $8,029

  • 14 · Information technology

    total $53,444 · program services $3,360 · management and general $43,205 · fundraising $6,879

  • 16 · Occupancy

    total $63,935 · management and general $63,935

  • 17 · Travel

    total $247,155 · program services $238,158 · management and general $4,084 · fundraising $4,913

  • 19 · Conferences, conventions and meetings

    total $55,945 · program services $31,250 · management and general $24,695

  • 23 · Insurance

    total $10,622 · management and general $10,622

  • 24a · Other expenses: VENUE RENTAL

    total $303,595 · program services $303,595 · management and general $0 · fundraising $0

  • 24b · Other expenses: PROGRAM EXPENSES

    total $42,597 · program services $20 · management and general $0 · fundraising $42,577

  • 24c · Other expenses: BANK CHARGES AND PROCESSING FEES

    total $32,833 · program services $26 · management and general $2,924 · fundraising $29,883

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,994,672 · end of year $1,681,246

  • 9 · Prepaid expenses and deferred charges

    beginning of year $38,798 · end of year $54,933

  • 10a · Land, buildings and equipment: cost or other basis

    $0

  • 10b · Land, buildings and equipment: accumulated depreciation

    $0

  • 10c · Land, buildings and equipment, net

    beginning of year $408,115 · end of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $4,970,524 · end of year $5,309,235

  • 15 · Other assets

    beginning of year $128,195 · end of year $510,344

  • 17 · Accounts payable and accrued expenses

    beginning of year $106,206 · end of year $149,010

  • 18 · Grants payable

    beginning of year $92,500 · end of year $353,268

  • 25 · Other liabilities

    beginning of year $430,325 · end of year $388,177

  • 27 · Net assets without donor restrictions

    beginning of year $6,911,273 · end of year $6,665,303

  • 28 · Net assets with donor restrictions

    beginning of year $0 · end of year $0

Mission and programs · 2023

Mission

TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO FAMILIES WORLDWIDE.

  • RESEARCH INITIATIVES - "ADVANCES OUR STAND UP TO CANCER PROJECT, AWARDS AND MANAGES RESEARCH GRANTS, MANAGES THE VIRTUAL TUMOR BOARD, ADVANCES OUR CLINICAL REGISTRY, OVERSEES THE FANCONI ANEMIA RESEARCH MATERIALS PROJECT, KEEPS FANCONI ANEMI GUIDELINES MANUAL UP TO DATE, MANAGES FANCONI ANEMIA CANCER CONSORTIUM, MANGES FANCONI ANEMIA BRUSH BIOPSY PROJECT, CONVENES FARF SPARKS MEETINGS, MANAGES FRIENDS DATA COMMONS."

    Expenses $2,170,235 · Grants $1,895,322 · Revenue $20,435

  • EVENTS - "ANNUAL PLANNING MEETING, JOEL WALKER SERIES MEETINGS, ANNUAL FAMILY RETREAT, SCIENTIFIC SYMPOSIUM, ADULT FA RETREAT, INTERNATIONAL SUMMIT, SUPPORT FOR FARF SPARKS AND FA CONNECT."

    Expenses $642,743 · Grants $2,500 · Revenue $19,600

  • COMMUNITY PROGRAMS AND SUPPORT - "ONBOARDS NEWLY DIAGNOSED FAMILIES, MANAGES ADULT COUNCIL, MANAGES WINN/BYRD AWARD, MANAGES INTERNATIONAL SUPPORT GRANT PROGRAM, MANAGES BEREAVEMENT SUPPORT, MANAGES CAREGIVER SUPPORT, MANAGES PEER SUPPORT, CONVENES FA CONNECT SESSIONS, MANAGES ADVOCACY AND ENGAGEMENT PROGRAM. "

    Expenses $427,008 · Grants $40,392

As filed on the 2023 return.

Listed in Part VII

  • Mark Quinlan

    EXECUTIVE DIRECTOR

    Total calculated
    $168,509
    From this org
    $168,509
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $168,509
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $168,509

  • Isis Sroka

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $155,569
    From this org
    $146,531
    From related orgs
    $0
    Other
    $9,038
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $146,531
    Bonus
    $0
    Other
    $9,037
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $155,568

  • Sherri L Van Ravenhorst

    HIGHEST COMPENSATED EMPLOYEE

    Total calculated
    $102,325
    From this org
    $102,325
    From related orgs
    $0
    Other
    $0
    Hours/week
    1

  • Lisa Mingo

    PRESIDENT

    Total calculated
    $0
    Hours/week
    5

  • John Connelly

    SECRETARY

    Total calculated
    $0
    Hours/week
    5

  • Win Gouldin

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    5

  • Pedro Ravelo

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • Lynn Frohnmayer

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Adam Becker

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • William Bloxom

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • John Wagner

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Tracy Strimling

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Jasmine Bennetsen

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Henekke Takkenberg

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Carmem Bonfim

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Zariel Toolan

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2023
Filed
24 April 2025
IRS schema version
2023v6.0
Source object
202521189349301757

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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