Totals
- Total revenue
- $208,882,180
- Total expenses
- $219,763,233
- Contributions and grants received
- $200,000,000
- Contributions, gifts and grants paid
- $531,050
- Fair market value of assets, end of year
- $83,060,450
Listed in Part VIII
-
Kenneth J Slutsky
Dir./Pres/Asst Treas/Asst Sec
- Total calculated
- $0
- Hours/week
- 2
-
Christopher Austin
Director
- Total calculated
- $0
- Hours/week
- 1.5
-
James Bradner
Director
- Total calculated
- $0
- Hours/week
- 1.5
-
Elizabeth Fascitelli
Director
- Total calculated
- $0
- Hours/week
- 1.5
-
Alexandra P Mansbach
Director
- Total calculated
- $0
- Hours/week
- 2
-
John Maraganore
Director
- Total calculated
- $0
- Hours/week
- 1.5
-
Thomas D Stern
Director
- Total calculated
- $0
- Hours/week
- 1.5
-
Robi Blumenstein-pd thru CHDI Mgt I
President CHDI Mgt Inc
- Total calculated
- $632,939
- Compensation
- $600,000
- Benefit plans
- $32,939
- Expense account
- $0
- Hours/week
- 39
-
Timothy Hentzel
VP/Treasurer/Secretary
- Total calculated
- $0
- Hours/week
- 1
-
Triplet Investment Company LLC
Member
- Total calculated
- $0
- Hours/week
- 9
Compensation is as filed in Part VIII of the Form 990-PF: compensation, contributions to benefit plans, expense account, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total.
Grants paid on this return
- Grants paid, cash basis (Part I, line 25, column (d))
- $531,050
- As filed, and sometimes filed as 0.
- Grants paid, Part XV total (line 3a)
- $531,050
- The foundation's own total of the grants it itemizes.
These are the grants the foundation paid during the year. The “Contributions, gifts and grants paid” total above is the figure on the foundation's books. This return marks the accrual method, under which a grant is recorded when the foundation commits to it rather than when it pays, so the books total need not agree with the cash figures in this section: a grant promised one year and paid in another is counted in different years.
-
Johns Hopkins University
$330,000
Baltimore, MD
Establish a medical center
-
Huntington's Disease Society of America
$99,950
New York, NY
Support for fellowship programs and convention
-
Factor-H
$36,000
Los Angeles, CA
Support for non-for-profit activities
-
Gordon Research Conferences
$25,000
East Greenwich, RI
Support for a conference
-
Huntington's Disease Youth Organization
$20,000
Livonia, MI
Support for a meeting
-
Help 4 HD International Incorporated
$15,100
Elk Grove, CA
Support for a conference
-
Horizon Community Funds
$5,000
Covington, KY
Support for fundraising
Provenance
- Return type
- form_990_pf
- Tax year
- 2024
- Filed
- 24 August 2026
- IRS schema version
- 2024v5.5
- Source object
- 202612539349101301
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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