Skip to content
Nonprofiteer
← FANCONI CANCER FOUNDATION

Form 990 for tax year 2022

Filed by FANCONI CANCER FOUNDATION.

Totals

Total revenue
$3,171,988
Total expenses
$3,923,102
Contributions and grants received
$2,979,498
Grants paid
$1,718,785
Program service revenue
$23,549
Investment income
$164,989
Other revenue
$3,952
Total assets, end of year
$7,540,304
Total liabilities, end of year
$629,031
Net assets or fund balances, end of year
$6,911,273
Program services expenses (Part IX)
$2,990,245
Management and general expenses
$578,690
Fundraising expenses
$354,167
Program service expenses (Part III)
$2,990,245

Program services were 76.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $0

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $2,979,498

  • 1g · Noncash contributions included above

    $0

  • 2a · Program service revenue: REGISTRATION FEES

    total $23,549 · related or exempt $23,549 · unrelated business $0 · excluded $0

  • 2f · All other program service revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $164,431 · related or exempt $0 · unrelated business $0 · excluded $164,431

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 7a · Gross sales of assets other than inventory

    securities $558 · other assets $0

  • 7b · Less cost or other basis and sales expenses

    securities $0 · other assets $0

  • 7c · Gain or loss

    securities $558 · other assets $0

  • 7d · Net gain or loss

    total $558 · related or exempt $558 · unrelated business $0 · excluded $0

  • 8a · Fundraising events: gross income

    $2,750

  • 8a · Fundraising events: contributions included on line 1c

    $0

  • 8b · Fundraising events: direct expenses

    $0

  • 8c · Net income from fundraising events

    total $2,750 · unrelated business $0 · excluded $2,750

  • 11d · All other revenue

    total $1,202 · related or exempt $1,202 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $1,202

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,323,090 · program services $1,323,090

  • 2 · Grants to domestic individuals

    total $12,225 · program services $12,225

  • 3 · Grants to foreign organizations and individuals

    total $383,470 · program services $383,470

  • 5 · Compensation of officers, directors and key employees

    total $258,187 · program services $131,350 · management and general $48,581 · fundraising $78,256

  • 7 · Other salaries and wages

    total $532,982 · program services $271,150 · management and general $100,287 · fundraising $161,545

  • 8 · Pension plan contributions

    total $20,352 · management and general $20,352

  • 9 · Other employee benefits

    total $23,944 · program services $8,365 · management and general $2,285 · fundraising $13,294

  • 10 · Payroll taxes

    total $142,461 · program services $88,429 · management and general $2,286 · fundraising $51,746

  • 11b · Fees: legal

    total $705 · management and general $705

  • 11c · Fees: accounting

    total $69,883 · management and general $69,883

  • 11f · Fees: investment management

    total $31,830 · management and general $31,830

  • 11g · Fees: other

    total $109,137 · program services $45,854 · management and general $55,081 · fundraising $8,202

  • 13 · Office expenses

    total $63,786 · program services $5,654 · management and general $53,236 · fundraising $4,896

  • 14 · Information technology

    total $60,839 · program services $3,158 · management and general $52,494 · fundraising $5,187

  • 16 · Occupancy

    total $89,317 · management and general $89,317

  • 17 · Travel

    total $114,838 · program services $103,233 · management and general $7,954 · fundraising $3,651

  • 19 · Conferences, conventions and meetings

    total $45,742 · program services $18,757 · management and general $15,975 · fundraising $11,010

  • 23 · Insurance

    total $3,308 · management and general $3,308

  • 24a · Other expenses: PROGRAM EXPENSES

    total $595,434 · program services $595,434 · management and general $0 · fundraising $0

  • 24b · Other expenses: BANK CHARGES & PROCESSING FEES

    total $25,204 · program services $76 · management and general $25,116 · fundraising $12

  • 24c · Other expenses: FAMILY FUNDRAISING EXPENSES

    total $16,368 · program services $0 · management and general $0 · fundraising $16,368

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,603,409 · end of year $1,994,672

  • 9 · Prepaid expenses and deferred charges

    beginning of year $47,392 · end of year $38,798

  • 10a · Land, buildings and equipment: cost or other basis

    $459,286

  • 10b · Land, buildings and equipment: accumulated depreciation

    $51,171

  • 10c · Land, buildings and equipment, net

    end of year $408,115

  • 11 · Investments: publicly traded securities

    beginning of year $7,298,361 · end of year $4,970,524

  • 15 · Other assets

    beginning of year $165,877 · end of year $128,195

  • 17 · Accounts payable and accrued expenses

    beginning of year $210,291 · end of year $106,206

  • 18 · Grants payable

    end of year $92,500

  • 24 · Unsecured notes and loans payable

    end of year $430,325

  • 25 · Other liabilities

    beginning of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $8,904,748 · end of year $6,911,273

  • 28 · Net assets with donor restrictions

    beginning of year $0 · end of year $0

Mission and programs · 2022

Mission

TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO FAMILIES WORLDWIDE.

  • RESEARCH INITIATIVES - "ADVANCES OUR STAND UP TO CANCER PROJECT, AWARDS AND MANAGES RESEARCH GRANTS, MANAGES THE VIRTUAL TUMOR BOARD, ADVANCES OUR CLINICAL REGISTRY, OVERSEES THE FANCONI ANEMIA RESEARCH MATERIALS PROJECT, KEEPS FANCONI ANEMI GUIDELINES MANUAL UP TO DATE, MANAGES FANCONI ANEMIA CANCER CONSORTIUM, MANGES FANCONI ANEMIA BRUSH BIOPSY PROJECT, CONVENES FARF SPARKS MEETINGS."

    Expenses $2,014,736 · Grants $1,655,885 · Revenue $23,549

  • EVENTS - "ANNUAL PLANNING MEETING, JOEL WALKER SERIES MEETINGS, ANNUAL FAMILY RETREAT, SCIENTIFIC SYMPOSIUM, ADULT FA RETREAT, INTERNATIONAL SUMMIT, SUPPORT FOR FARF SPARKS AND FA CONNECT."

    Expenses $713,568 · Grants $1,500

  • FAMILY SUPPORT - "ONBOARDS NEWLY DIAGNOSED FAMILIES, MANAGES ADULT COUNCIL, MANAGES WINN/BYRD AWARD, MANAGES INTERNATIONAL SUPPORT GRANT PROGRAM, MANAGES BEREAVEMENT SUPPORT, MANAGES CAREGIVER SUPPORT, MANAGES PEER SUPPORT, CONVENES FA CONNECT SESSIONS "

    Expenses $261,941 · Grants $61,400

As filed on the 2022 return.

Listed in Part VII

  • Mark Quinlan

    Executive Director

    Total calculated
    $133,765
    From this org
    $133,765
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Isis Sroka

    Scientific Director

    Total calculated
    $124,334
    From this org
    $117,716
    From related orgs
    $0
    Other
    $6,618
    Hours/week
    40

  • Orion Marx

    President

    Total calculated
    $0
    Hours/week
    5

  • Lisa Mingo

    Vice President/Treasurer

    Total calculated
    $0
    Hours/week
    5

  • John Connelly

    Secretary

    Total calculated
    $0
    Hours/week
    5

  • Lynn Frohnmayer

    Board Member

    Total calculated
    $0
    Hours/week
    5

  • Rachel Altmann

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Stella Davies

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Aileen Carlos

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Tracy Strimling

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Jasmine Bennetsen

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Win Gouldin

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Carmem Bonfim

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Pedro Ravelo

    Board Member

    Total calculated
    $0
    Hours/week
    1

  • Andre Hessels

    Board Member

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2022
Filed
23 October 2023
IRS schema version
2022v5.0
Source object
202322969349300437

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.