Skip to content
Nonprofiteer
← ALK POSITIVE INCORPORATED

Form 990 for tax year 2023

Filed by ALK POSITIVE INCORPORATED.

Totals

Total revenue
$2,608,663
Total expenses
$3,394,109
Contributions and grants received
$2,533,927
Grants paid
$2,388,548
Program service revenue
$18,525
Investment income
$53,353
Other revenue
$2,858
Total assets, end of year
$4,700,238
Total liabilities, end of year
$1,011,443
Net assets or fund balances, end of year
$3,688,795
Program services expenses (Part IX)
$3,211,670
Management and general expenses
$144,215
Fundraising expenses
$38,224
Program service expenses (Part III)
$3,211,670

Program services were 94.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $2,533,927

  • 2a · Program service revenue: SUMMITT TICKETS

    total $18,525 · related or exempt $18,525

  • 3 · Investment income

    total $50,378 · excluded $50,378

  • 7a · Gross sales of assets other than inventory

    securities $34,207

  • 7b · Less cost or other basis and sales expenses

    securities $31,232

  • 7c · Gain or loss

    securities $2,975

  • 7d · Net gain or loss

    total $2,975 · excluded $2,975

  • 11a · Other revenue: MISCELLANEOUS INCOME

    total $2,858 · related or exempt $2,858

  • 11e · Other revenue, total

    $2,858

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $2,388,548 · program services $2,388,548

  • 5 · Compensation of officers, directors and key employees

    total $336,540 · program services $277,496 · management and general $40,837 · fundraising $18,207

  • 7 · Other salaries and wages

    total $69,752 · program services $57,516 · management and general $8,464 · fundraising $3,772

  • 8 · Pension plan contributions

    total $8,422 · program services $6,944 · management and general $1,022 · fundraising $456

  • 9 · Other employee benefits

    total $4,263 · program services $3,515 · management and general $517 · fundraising $231

  • 10 · Payroll taxes

    total $44,985 · program services $37,092 · management and general $5,459 · fundraising $2,434

  • 11c · Fees: accounting

    total $31,995 · management and general $31,995

  • 11g · Fees: other

    total $44,146 · program services $30,169 · management and general $4,257 · fundraising $9,720

  • 12 · Advertising and promotion

    total $51,701 · program services $33,044 · management and general $17,384 · fundraising $1,273

  • 14 · Information technology

    total $26,313 · program services $21,401 · management and general $3,744 · fundraising $1,168

  • 17 · Travel

    total $54,126 · program services $53,456 · management and general $459 · fundraising $211

  • 19 · Conferences, conventions and meetings

    total $42,614 · program services $41,607 · management and general $979 · fundraising $28

  • 23 · Insurance

    total $7,102 · program services $3,755 · management and general $3,150 · fundraising $197

  • 24a · Other expenses: PROGRAM SUPPLIES

    total $231,966 · program services $231,966

  • 24b · Other expenses: BANK FEES

    total $18,961 · program services $2 · management and general $18,959

  • 24c · Other expenses: SECOND OPINION PROGRAM

    total $7,965 · program services $7,965

  • 24d · Other expenses: LICENSES AND FEES

    total $7,584 · program services $6,067 · management and general $1,137 · fundraising $380

  • 24e · All other expenses

    total $17,126 · program services $11,127 · management and general $5,852 · fundraising $147

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $3,675,960 · end of year $1,431,087

  • 2 · Savings and temporary cash investments

    beginning of year $279,114 · end of year $2,721,557

  • 3 · Pledges and grants receivable

    beginning of year $152,656 · end of year $146,463

  • 4 · Accounts receivable

    beginning of year $16,610 · end of year $2,327

  • 9 · Prepaid expenses and deferred charges

    beginning of year $957 · end of year $26,224

  • 11 · Investments: publicly traded securities

    beginning of year $378,816 · end of year $24,893

  • 14 · Intangible assets

    beginning of year $3,312 · end of year $3,312

  • 15 · Other assets

    beginning of year $0 · end of year $344,375

  • 17 · Accounts payable and accrued expenses

    beginning of year $33,184 · end of year $136,443

  • 18 · Grants payable

    end of year $875,000

  • 27 · Net assets without donor restrictions

    beginning of year $1,527,106 · end of year $2,463,997

  • 28 · Net assets with donor restrictions

    beginning of year $2,947,135 · end of year $1,224,798

Mission and programs · 2023

Mission

WE ARE A PATIENT-DRIVEN ORGANIZATION SEEKING A CURE AND WORKING TO IMPROVE PATIENTS' QUALITY OF LIFE AND LIFE EXPECTANCY WORLDWIDE.

Activities or mission (Part I)

WE ARE A PATIENT-DRIVEN ORGANIZATION SEEKING A CURE AND WORKING TO (CONTINUED ON SCHEDULE O)IMPROVE PATIENTS' QUALITY OF LIFE AND LIFE EXPECTANCY WORLDWIDE.

  • ALK POSITIVE, INC. IS A PATIENT DRIVEN 501(C)(3) NONPROFIT CORPORATION PROVIDING SUPPORT, EMPATHY, AND RESEARCH FUNDING TO CHANGE THE FUTURE FOR ALK-POSITIVE CANCER PATIENTS. ALK-POSITIVE CANCER IS ESTIMATED TO OCCUR IN APPROXIMATELY 100,000 PATIENTS WORLDWIDE EVERY YEAR. ALTHOUGH THE VAST MAJORITY OF CASES OCCUR AS LUNG CANCER, IT CAN ALSO ORIGINATE IN MANY OTHER ORGANS. THE MEDIAN AGE FOR ALK-POSITIVE PATIENTS AT DIAGNOSIS IS ABOUT 50 YEARS WITH MANY IN THEIR FORTIES, THIRTIES AND EVEN YOUNGER. APPROXIMATELY 55% OF ALK-POSITIVE PATIENTS ARE FEMALE AND THE DISEASE OCCURS WITH PEOPLE OF ALL RACES.(CONTINUED ON SCHEDULE O)IN 2017, SOME ALK-POSITIVE CANCER PATIENTS AND CAREGIVERS FORMED THE OUTREACH MANAGEMENT GROUP TO PARTNER WITH THE LUNGEVITY FOUNDATION IN ORDER TO RAISE FUNDS FOR CANCER RESEARCH. IN 2018, THE PARTNERSHIP WAS FORMALIZED INTO A JOINT FUNDRAISING AND RESEARCH AGREEMENT WITH BOTH LUNGEVITY AND THE GO2 FOUNDATION FOR LUNG CANCER. FROM 2017 TO 2021, THE PARTNERSHIPS GENERATED OVER $4.7M IN CONTRIBUTIONS AND AWAREDED $2.8M IN TRANSLATIONAL RESEARCH GRANTS WITH THE PURPOSE OF IMPROVING ALK-POSITIVE CANCER PATIENT OUTCOMES. BY MARCH 2021, THE OUTREACH MANAGEMENT GROUP HAD INCORPORATED AND WAS RECOGNIZED BY THE IRS AS A 501(C)(3) NON PROFIT ORGANIZATION CALLED ALK POSITIVE INC. DURING 2021-22 ANOTHER $3.4M IN CONTRIBUTIONS WAS GENEROUSLY RAISED WITH RESEARCH GRANTS TOTALING $2.6M AWARDED. ALSO IN 2022, THE FIRST TWO EMPLOYEES WERE HIRED - A DIRECTOR OF RESEARCH AND CLINICAL AFFAIRS AND AN EXECUTIVE DIRECTOR.BY FAR, THE MOST EFFECTIVE TREATMENTS FOR ALK-POSITIVE CANCER ARE THE ROAL ALK TYROSINE KINASE INHIBITORS (TKI'S). THESE ARE NOW FDA APPROVED IN 1ST, 2ND AND 3RD GENERATION VERSIONS, EACH GENERATION MORE EFFECTIVE THAN THE PREVIOUS. HOWEVER, WHILE TKI'S HAVE IMPROVED MEDIAN OVERALL SURVIVAL FROM A FEW MONTHS TO MANY YEARS, ALK-POSITIVE CANCERS INEVITABLY MUTATE AND BECOME RESISTANT TO ALL TKI'S. THE ORGANIZATION CREATED THE RESEARCH REVIEW PANEL (COMMITTEE) COMPRISING VOLUNTEER ALK-POSITIVE CANCER PATIENTS, CAREGIVERS AND WORLD-RENOWNED SCIENTIFIC AND RESEARCH EXPERTS TO HELP REVIEW AND AWARD THE MOST PROMISING ALK-POSITIVE CANCER RESEARCH PROJECTS TO IMPROVE PATIENT OUTCOMES. IN 2022, THIS RESERACH TEAM WAS EXPANDED TO:-RESEARCH ACCELERATION COMMITTEE: ACCELERATE ACADEMIC AND BIOTECH RESEARCH THAT LEADS TO NEW THERAPIES FOR ALK-POSITIVE PATIENTS, INCLUDING IMMUNOTHERAPIES AND COMBINATION THERAPIES, AND NEW CLINICAL TRIALS, VIA COLLABORATION WITH ACADEMIA, INDUSTRY AND VENTURE CAPITAL.-CLINICAL TRIALS COMMITTEE: COLLABORATE WITH ACADEMIA AND INDUSTRY TO DEVELOP NEW FRAMEWORKS FOR CLINICAL TRIALS AND TO ACCELERATE CREATION, EFFECTIVE ENROLLMENT AND SUCCESSFUL READOUTS FOR CLINICAL TRIALS INVOLVING AND BENEFICIAL TO ALK-POSITIVE PATIENTS.-TRANSLATIONAL INVESTIGATIONS GROUP: FRAM AND IMPLEMENT AN INTERNAL ALK-POSITIVE RESEARCH PROGRAM THAT ADDRESSES KEY QUESTIONS FOR WHICH ANSWERS WILL ENABLE THE DEVELOPMENT OF NEW ALK THERAPIES, NIOMARKS OF TREATMENT RESPONSE AND ACCELERATED CLINICAL TRIALS.

    Expenses $3,211,670 · Grants $2,388,548 · Revenue $21,383

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • KEN CULVER

    DIRECTOR

    Total calculated
    $194,000
    From this org
    $188,665
    From related orgs
    $0
    Other
    $5,335
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $188,665
    Bonus
    $0
    Other
    $0
    Deferred
    $5,335
    Nontaxable benefits
    $0
    Filer's total
    $194,000

  • LONNA SMITH

    DIRECTOR

    Total calculated
    $150,962
    From this org
    $147,875
    From related orgs
    $0
    Other
    $3,087
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $147,875
    Bonus
    $0
    Other
    $0
    Deferred
    $3,087
    Nontaxable benefits
    $0
    Filer's total
    $150,962

  • YVONNE DIAZ

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • SUMMER FARMEN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • JT HEDGES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • MARC MUSCOVITCH

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • DUNCAN PREECE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • NANCEE PRONSATI

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    5

  • PATTY SACCIENTE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • KIRK SMITH

    PRESIDENT

    Total calculated
    $0
    Hours/week
    5

  • JEFF STURN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • CHRISTINA WEBER

    SECRETARY

    Total calculated
    $0
    Hours/week
    5

  • GREG WEHN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • TERESA WIANT

    DIRECTOR

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 4a · Severance or change-of-control payment

Answered no

  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 4A
THE COMPANY WILL PAY LONNA SMITH A PAYMENT OF 8 WEEKS OF CURRENT SALARY. FOR A PERIOD OF 1 YEAR FOLLOWING THE TERMINATION DATE, EMPLOYEE AGREES TO FULLY AND REASONABLY COOPERATE WITH THE COMPANY WITH RESPECT TO BUSINESS ISSUES, CLAIMS, ADMINISTRATIVE CHARGES, GOVERNMENTAL INVESTIGATIONS AND LITIGATION RELATED TO THE COMPANY OR ITS BUSINESS INTERESTS.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
12 November 2024
IRS schema version
2023v5.1
Source object
202403189349307065

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.