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Nonprofiteer
← GLOBAL DOWN SYNDROME FOUNDATION

Form 990 for tax year 2023

Filed by GLOBAL DOWN SYNDROME FOUNDATION.

Totals

Total revenue
$4,313,796
Total expenses
$4,670,703
Contributions and grants received
$4,084,242
Grants paid
$672,014
Program service revenue
$1,500
Investment income
$228,054
Other revenue
$0
Total assets, end of year
$8,646,012
Total liabilities, end of year
$1,396,303
Net assets or fund balances, end of year
$7,249,709
Program services expenses (Part IX)
$3,092,206
Management and general expenses
$780,909
Fundraising expenses
$797,588
Program service expenses (Part III)
$3,092,206

Program services were 66.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1b · Membership dues

    $69,592

  • 1d · Related organizations

    $1,103,159

  • 1f · All other contributions, gifts and grants

    $2,911,491

  • 1g · Noncash contributions included above

    $88,370

  • 2a · Program service revenue: REGISTRATIONS

    total $1,500 · related or exempt $1,500

  • 3 · Investment income

    total $228,054 · excluded $228,054

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $662,014 · program services $662,014

  • 3 · Grants to foreign organizations and individuals

    total $10,000 · program services $10,000

  • 5 · Compensation of officers, directors and key employees

    total $315,883 · program services $233,983 · management and general $44,956 · fundraising $36,944

  • 7 · Other salaries and wages

    total $1,534,651 · program services $1,136,757 · management and general $218,409 · fundraising $179,485

  • 9 · Other employee benefits

    total $113,584 · program services $84,135 · management and general $16,165 · fundraising $13,284

  • 10 · Payroll taxes

    total $55,459 · program services $41,080 · management and general $7,893 · fundraising $6,486

  • 11b · Fees: legal

    total $37,099 · management and general $37,099

  • 11d · Fees: lobbying

    total $198,000 · program services $198,000

  • 11f · Fees: investment management

    total $5,329 · management and general $5,329

  • 11g · Fees: other

    total $573,292 · program services $207,846 · management and general $305,281 · fundraising $60,165

  • 13 · Office expenses

    total $235,123 · program services $63,932 · management and general $97,889 · fundraising $73,302

  • 17 · Travel

    total $163,840 · program services $60,331 · management and general $3,730 · fundraising $99,779

  • 22 · Depreciation, depletion and amortization

    total $149,190 · program services $149,190

  • 24a · Other expenses: FOOD, SUPPLIES, AND MISC

    total $467,274 · program services $235,021 · management and general $38,465 · fundraising $193,788

  • 24b · Other expenses: DONATED ITEMS

    total $88,370 · fundraising $88,370

  • 24c · Other expenses: PUBLIC RELATIONS

    total $61,595 · program services $9,917 · management and general $5,693 · fundraising $45,985

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $289,127 · end of year $406,196

  • 2 · Savings and temporary cash investments

    beginning of year $3,919,908 · end of year $3,566,199

  • 3 · Pledges and grants receivable

    beginning of year $487,011 · end of year $387,827

  • 8 · Inventories for sale or use

    beginning of year $74,603 · end of year $15,071

  • 9 · Prepaid expenses and deferred charges

    beginning of year $124,242 · end of year $122,115

  • 10a · Land, buildings and equipment: cost or other basis

    $2,276,008

  • 10b · Land, buildings and equipment: accumulated depreciation

    $857,799

  • 10c · Land, buildings and equipment, net

    beginning of year $1,567,398 · end of year $1,418,209

  • 11 · Investments: publicly traded securities

    beginning of year $2,593,141 · end of year $2,730,395

  • 17 · Accounts payable and accrued expenses

    beginning of year $198,457 · end of year $260,405

  • 18 · Grants payable

    beginning of year $576,000 · end of year $565,000

  • 19 · Deferred revenue

    beginning of year $52,988 · end of year $57,538

  • 25 · Other liabilities

    beginning of year $569,430 · end of year $513,360

  • 27 · Net assets without donor restrictions

    beginning of year $6,343,507 · end of year $5,890,986

  • 28 · Net assets with donor restrictions

    beginning of year $1,315,048 · end of year $1,358,723

Mission and programs · 2023

Mission

TO SIGNIFICANTLY IMPROVE THE LIVES OF PEOPLE WITH DOWN SYNDROME THROUGH RESEARCH, MEDICAL CARE, EDUCATION AND ADVOCACY. AN IMPORTANT PART OF THIS MISSION IS TO SUPPORT THE LINDA CRNIC INSTITUTE FOR DOWN SYNDROME TO ERADICATE THE MEDICAL AND COGNITIVE ILL EFFECTS ASSOCIATED WITH DOWN SYNDROME AND TO ENSURE PEOPLE WITH THE CONDITION LIVE LONGER AND HEALTHIER LIVES AND THEREFORE REACH THEIR TRUE POTENTIAL. GLOBAL AFFILIATES INCLUDE: CRNIC INSTITUTE FOR DOWN SYNDROME, ALZHEIMER'S & COGNITION CENTER, SIE CENTER FOR DOWN SYNDROME.

Activities or mission (Part I)

TO SIGNIFICANTLY IMPROVE THE LIVES OF PEOPLE WITH DOWN SYNDROME THROUGH RESEARCH, MEDICAL CARE, EDUCATION, AND ADVOCACY.

  • RESEARCH AND CLINICAL CARE: DOWN SYNDROME IS WHEN A PERSON IS BORN WITH THREE COPIES OF CHROMOSOME 21 INSTEAD OF THE USUAL TWO. BECAUSE OF GLOBAL'S WORK, SCIENTISTS ARE DEVELOPING BETTER METHODS TO UNDERSTAND HOW THE TRIPLICATION LEADS TO A HIGHER INCIDENCE OF CERTAIN DISEASES AND PROTECTS THOSE SAME INDIVIDUALS FROM OTHER DISEASES. THEY DO SO IN THE FOLLOWING WAYS: - CREATING AND UPDATING MEDICAL GUIDELINES BY CONDUCTING RESEARCH ON HOW PEOPLE WITH DOWN SYNDROME ARE TREATED FOR CERTAIN CONDITIONS OR DISEASES AND WHAT INTERVENTIONS OR MEDICATIONS WORK FOR PEOPLE WITH DOWN SYNDROME. - CONDUCTING MEDICAL OR CLINICAL RESEARCH TO IMPROVE THE HEALTH AND LIFESPAN OF PEOPLE WITH DOWN SYNDROME, ESPECIALLY IN AREAS WHERE THEY ARE HIGHLY PREDISPOSED TO DISEASE (E.G. ALZHEIMER'S DISEASE AND AUTOIMMUNE CONDITIONS) AND HIGHLY PROTECTED (E.G. SOLID TUMORS AND CERTAIN TYPES OF HEART ATTACK AND STROKE.) - CONDUCTING BASIC OR LABORATORY RESEARCH IN CONJUNCTION WITH MEDICAL OR CLINICAL RESEARCH. - EXPANDING AWARENESS THROUGH EDUCATION OUTREACH, GOVERNMENT ADVOCACY, AND PUBLIC RELATIONS WORK IN COORDINATION WITH AND FOR THE CRNIC INSTITUTE, GLOBAL'S OTHER AFFILIATES, AND THE ENTIRE DOWN SYNDROME COMMUNITY.

    Expenses $1,560,686 · Grants $512,861

  • OUTREACH, EDUCATION, AND CONFERENCES: GLOBAL OFFERS A VARIETY OF RESEARCH AND MEDICAL OUTREACH MEETINGS, WORKSHOPS, WEBINARS, EDUCATIONAL PROGRAMS, AND CLASSES DESIGNED TO SUPPORT AND IMPROVE THE LIVES OF GLOBAL 'S SELF- ADVOCATES, FAMILY MEMBERS AND PROFESSIONALS SERVING OUR COMMUNITY. MANY OF OUR EDUCATIONAL PROGRAMS INVOLVE BUILDING SKILLS, BUILDING SELF-ESTEEM AND FOSTERING INDEPENDENCE.

    Expenses $1,531,520 · Grants $159,153 · Revenue $1,500

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Michelle Sie Whitten

    PRESIDENT AN

    Total calculated
    $295,100
    From this org
    $129,332
    From related orgs
    $129,332
    Other
    $36,436
    Hours/week
    20 + 20 related

    Schedule J breakdown matched by us

    Base
    $108,132 + $108,132 related
    Bonus
    $21,200 + $21,200 related
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    $18,218 + $18,218 related
    Filer's total
    $147,550 + $147,550 related

  • John J Sie

    CHAIR

    Total calculated
    $23,355
    From this org
    $0
    From related orgs
    $12,000
    Other
    $11,355
    Hours/week
    1.5 + 1 related

  • Anna M Sie

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1.5 + 1 related

  • Mary Beth Wallingford

    TREASURER

    Total calculated
    $0
    Hours/week
    3

  • Richard Waysdorf

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • John C McGinley

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jay Mills

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Ricki Rest

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Tomago Collins

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Charlie Monfort

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Frank Stephens

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Peter Kudla

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jamie Nielsen

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 1a · First-class or charter travel
  • 1b · Written policy on the line-1a expenses
  • 2 · Substantiation required before reimbursing expenses
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

SCHEDULE J, PAGE 1, PART I, LINE 1A
FIRST-CLASS TRAVEL IS PROVIDED AS A COURTESY FOR A CERTAIN BOARD MEMBER WHO HAS CELEBRITY STATUS.
SCHEDULE J, PAGE 1, PART I, LINE 3
THE BOARD OF DIRECTORS REVIEWS COMPENSATION LEVELS FOR ALL EMPLOYEES USING COMPARABILITY STUDIES TO DETERMINE APPROPRIATE SALARY RANGES.
SCHEDULE J, PAGE 1, PART I, LINE 7
THE BOARD APPROVES BONUSES RELATED TO EMPLOYMENT PERFORMANCE.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2023
Filed
10 December 2024
IRS schema version
2023v5.0
Source object
202443479349301624

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