Form 990 for tax year 2022

Totals

Total revenue

$5,182,660

Total expenses

$5,435,490

Contributions and grants received

$5,104,069

Grants paid

$73,351

Program service revenue

$31,300

Investment income

$19,032

Other revenue

$28,259

Total assets, end of year

$6,932,002

Total liabilities, end of year

$3,654,843

Net assets or fund balances, end of year

$3,277,159

Program services expenses (Part IX)

$4,163,048

Management and general expenses

$811,286

Fundraising expenses

$461,156

Program service expenses (Part III)

$4,163,048

Program services were 76.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2022

• SEE SCHEDULE OINCLUDENYC'S ACTIVITIES FOCUS ON THE FOLLOWING THREE CORE AREAS, ENGAGING CAREGIVERS AND YOUTH, AS WELL AS PROFESSIONALS AND THE WIDER COMMUNITY:1) PARENT AND FAMILY ENGAGEMENT PROVIDES GUIDANCE, TOOLS, AND DIRECT ASSISTANCE CAREGIVERS NEED TO BEST SUPPORT AND ADVOCATE FOR THEIR CHILD.2) YOUTH AND TRANSITION SERVICES OFFERS HIGH-IMPACT PROGRAMMING FOR EDUCATIONAL ADVANCEMENT, CAREER EXPLORATION, AND LIFE SKILLS DEVELOPMENT, ALL ACTING AS A BRIDGE BETWEEN THE ADULT CAREGIVER ADVOCACY OF CHILDHOOD AND THE SELF-ADVOCACY REQUIRED IN ADULTHOOD.3) PARTNER AND COMMUNITY ENGAGEMENT BUILDS A NETWORK OF ALLIES AND COLLABORATORS WHO BOLSTER OUR CAPACITY TO DISSEMINATE RESOURCES AND CONNECT WITH THE COMMUNITY.KEY PROGRAMSPARENT AND FAMILY ENGAGEMENT:A) HELP LINE PROVIDES TAILORED AND DIRECT ASSISTANCE ON WIDE-RANGING DISABILITY TOPICS FOR FAMILIES, CAREGIVERS, AND PROFESSIONALS. INDIVIDUALS CALL INCLUDENYC'S HELP LINE WITH ANY QUESTION OR ISSUE AND ARE CONNECTED TO A FAMILY EDUCATOR. ACCESS IS ALSO AVAILABLE VIA TEXT MESSAGE, EMAIL, OR WEB-BASED FORM. IN 2022, HELP LINE RESPONDED TO ALMOST 2,500 REQUESTS FROM MORE THAN 2,000 INDIVIDUALS SEEKING GUIDANCE ON SUCH TOPICS AS EARLY CHILDHOOD, SPECIAL EDUCATION PROCESSES, SCHOOL PLACEMENTS, BEHAVIOR SUPPORTS, HEALTH SERVICES, COLLEGE PLANNING, AND DISABILITY RIGHTS.B) WORKSHOPS/TRAININGS BUILD SKILLS ON A WIDE SPECTRUM OF DISABILITY ISSUES. PARENTS, FAMILY MEMBERS, AND PROFESSIONALS ATTEND WORKSHOP AND TRAINING SESSIONS LED BY STAFF AND GUEST PRESENTERS WHO HAVE EXPERTISE IN CRITICAL AREAS, INCLUDING BUT NOT LIMITED TO: UNDERSTANDING YOUR CHILD'S IEP; EXPLORING THE EARLY YEARS; TOP FIVE RIGHTS IN SPECIAL EDUCATION; ADVOCACY SKILLS FOR FAMILIES; PROMOTING POSITIVE BEHAVIOR IN YOUNG CHILDREN. IN 2022, MORE THAN 425 SESSIONS WERE HELD FOR ALMOST 7,000 PARENT, PROFESSIONAL, AND YOUTH ATTENDEES.C) EARLY CHILDHOOD INITIATIVE ADDRESSES THE UNIQUE NEEDS AND CONCERNS OF PARENTS WITH CHILDREN AGED 5 AND UNDER WHO HAVE KNOWN OR SUSPECTED DISABILITIES. THE GOAL OF THE EARLY CHILDHOOD INITIATIVE IS TO SUPPORT THE FAMILIES OF THESE YOUNG CHILDREN BY INCREASING AWARENESS OF, AND ACCESS TO, CRITICAL SUPPORTIVE SERVICES. CORE COMPONENTS OF THIS WORK INCLUDE CUSTOMIZED WORKSHOPS AND TRAININGS; HELP LINE ASSISTANCE; SUPPORT GROUPS; COMMUNITY EVENTS; AND INFORMATION TARGETED TO CAREGIVERS OF INFANTS AND TODDLERS.D) PARENT SUPPORT GROUPS ALLOW CAREGIVERS TO BUILD CONNECTIONS, CELEBRATE SUCCESSES, AND DEVELOP A SENSE OF COMMUNITY. PARENT SUPPORT GROUPS ARE AN IMPORTANT OPPORTUNITY TO ADDRESS ISSUES OF ANXIETY AND STIGMA, WHILE PROMOTING AWARENESS OF AND ACCESS TO DISABILITY SERVICES. MORE THAN 30 SESSIONS WERE HELD IN 2022, ENGAGING OVER 400 PARENTS.E) PARENT LEADERSHIP AND ADVOCACY NETWORK (PLAN) IS A CORPS OF DIVERSE PARENT LEADERS WHO RECEIVE INCLUDENYC TRAINING THAT STRENGTHENS THEIR KNOWLEDGE OF DISABILITY ISSUES AND WAYS TO EFFECTIVELY ADVOCATE ON BEHALF OF THEIR FAMILY AND OTHERS IN THEIR COMMUNITY. YOUTH AND TRANSITION SERVICESA) HIGH SCHOOL LAUNCH (HSL) IS INNOVATIVE PROGRAM THAT WORKS INSIDE UNDER-RESOURCED HIGH SCHOOLS TO HELP YOUTH WITH DISABILITIES STAY ON TRACK TO GRADUATE, UNDERSTAND THEIR LEARNING NEEDS, BEGIN THINKING ABOUT POSTSECONDARY PROSPECTS, AND FOSTER SELF-ADVOCACY SKILLS FOR ACTIVE PARTICIPATION IN IEP MEETINGS. IN 2022, 135 YOUTH WERE DIRECTLY SERVICED.B) PROJECT POSSIBILITY (PP) PROVIDES INTENSIVE, INDIVIDUALIZED COACHING TO HELP YOUNG ADULTS WITH DISABILITIES (AGES 16-26) EXPLORE POSTSECONDARY PROSPECTS THAT CAN LEAD TO A JOB, HIGHER EDUCATION, AND GREATER INDEPENDENCE. PROJECT POSSIBILITY YOUTH EDUCATORS WORK WITH EACH YOUTH TO RESEARCH EDUCATION OPPORTUNITIES, CAREER POSSIBILITIES, AND/OR JOB TRAINING OPTIONS, THEN DRAFT A "PERSON-CENTERED" POSTSECONDARY ACTION PLAN REFLECTING THEIR SKILLS, STRENGTHS, AND ASPIRATIONS. OVER 100 YOUTH WERE ENGAGED IN 2022, WITH MORE THAN 55% HAVING A HIGHER EDUCATION GOAL AND OVER 45% HAVING AN EMPLOYMENT OR JOB TRAINING GOAL.C) BRIDGES IS GROUP WORK THAT PROVIDES EXPERIENTIAL LEARNING, AND OPPORTUNITIES FOR SOCIAL SKILL DEVELOPMENT AND PEER SUPPORT. WORKSHOPS FOCUS ON ACTIVITIES SUCH AS GOAL SETTING, DECISION-MAKING, TIME-MANAGEMENT, AND APPROPRIATE COMMUNICATION IN PERSONAL AND PROFESSIONAL SETTINGS. YOUTH ALSO BUILD INTERVIEW AND NETWORKING SKILLS, ARE TAUGHT BASIC FINANCIAL LITERACY, AND LEARN HOW TO TRAVEL INDEPENDENTLY. IN 2022, CLOSE TO 200 YOUTH ATTENDED THE TWELVE WORKSHOPS HELD BY INCLUDENYC.D) CAREER LAUNCH APPROACHES YOUTH EMPLOYMENT FROM A DIFFERENT, CONCURRENT ANGLE BY PROVIDING PROFESSIONAL DEVELOPMENT AND TECHNICAL ASSISTANCE FOR STAFF AT VOCATIONAL TRAINING, EDUCATION, AND COMMUNITY-BASED PROGRAMS TO HELP THEM MORE EFFECTIVELY SERVE YOUTH WITH DISABILITIES. WORKSHOPS FOCUS ON SUCH KEY ISSUES AS ABOUT DISABILITY RIGHTS, EMPLOYMENT ACCOMMODATIONS, ABLEISM AND INTERNALIZED BIAS, AND ONGOING INEQUITIES EXPERIENCED BY PEOPLE WITH DISABILITIES.E) LEADERS EDUCATE AND ADVOCATE ON DISABILITY (LEAD) CREATES YOUTH ADVOCATES FROM DIVERSE COMMUNITIES ACROSS THE CITY. THIS NEW PROGRAM WORKS WITH PROJECT POSSIBILITY PARTICIPANTS AND ALUMNI TO THEIR BUILD PUBLIC SPEAKING AND PRESENTATION SKILLS. THESE PEER LEADERS WILL THEN SERVE AS YOUTH ADVOCATES AT OUTREACH EVENTS, AND SHARE THEIR KNOWLEDGE WITH CURRENT YOUTH & TRANSITION SERVICES PARTICIPANTS, HELPING THEM ANTICIPATE CHALLENGES IN JOBS AND COLLEGE. PARTNER AND COMMUNITY ENGAGEMENTA) INCLUDENYC FAIR IS NEW YORK CITY'S OLDEST AND LARGEST RESOURCE FAIR OF EDUCATIONAL, RECREATIONAL, AND SERVICE PROGRAM PROVIDERS FOR YOUNG PEOPLE WITH DISABILITIES. THIS ANNUAL EVENT IS OPEN TO THE PUBLIC AND ALLOWS FAMILIES TO EXPLORE A WIDE RANGE OF ORGANIZATIONS AND GOVERNMENT AGENCIES THAT OFFER ENGAGEMENT OPPORTUNITIES FOR CHILDREN AND YOUTH. THE FAIR, HELD EACH JANUARY, ENGAGED OVER 1,000 ATTENDEES IN 2022, AS WELL AS 75 PROGRAMS AND SERVICE PROVIDERS, OFFERING FAMILIES THE OPPORTUNITY TO MEET WITH REPRESENTATIVES OF PROGRAMS AND INSTITUTIONS THEY WANT TO LEARN ABOUT AND/OR MAY NOT HAVE KNOWN EXISTED.B) OUTDOORS FOR AUTISM (OFA) IS AN AFTERNOON EVENT OF ENGAGEMENT, CONNECTION, AND RESOURCES THAT ATTRACTS HUNDREDS OF FAMILIES WITH CHILDREN ON THE AUTISM SPECTRUM EACH SPRING. THIS DAY OF INTERACTIVE ACTIVITY IS PARTICULARLY IMPORTANT FOR PARENTS WHO MAY BE RELUCTANT TO ATTEND OTHER LARGE, PUBLIC GATHERINGS BECAUSE OF THEIR CHILD'S SENSORY SENSITIVITY ISSUES. OVER THE YEARS, FAMILIES HAVE ENJOYED FACE PAINTING, ART, SPORTS, AND MUSIC PERFORMANCES PRESENTED BY DOZENS OF COMMUNITY PARTNERS. IN 2022, MORE THAN 700 ATTENDEES ENJOYED ACTIVITIES PRESENTED BY INCLUDENYC AND TEN PARTNER ORGANIZATIONS.

  Expenses $4,163,048 · Grants $73,351 · Revenue $31,300

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

• OWEN PJ KING

  CHAIR

  Total calculated

  $0

  Hours/week

  1

• ELLEN MILLER-WACHTEL

  VICE PRESIDENT

  Total calculated

  $0

  Hours/week

  1

• JAMIE KLEIN

  VICE PRESIDENT

  Total calculated

  $0

  Hours/week

  1

• DAN TAYLOR

  VICE PRES - THRU 12/22

  Total calculated

  $0

  Hours/week

  1

• ALBERTO ESTRELLA

  SECRETARY

  Total calculated

  $0

  Hours/week

  1

• HEATHER MUTTERPERL

  TREASURER

  Total calculated

  $0

  Hours/week

  1

• LAURIE ABRAMOWITZ

  DIRECTOR - THRU 12/22

  Total calculated

  $0

  Hours/week

  1

• SHON E GLUSKY

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• MARIE HILL

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• RICHARD HOFSTETTER

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• SETH JKRAMER

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• JOHN J MCGUIRE JR

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• SUILAN MO-ESCOWITZ

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• ANDREA RAPHAEL

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• JOSE MANUEL SIMIAN

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• KATYA SVERDLOV

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• MIGNA TAVERAS

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• BEN TRINDER

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• EDUARDO SF ALVES

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• ISHA ATASSI

  DIRECTOR

  Total calculated

  $0

  Hours/week

  1

• BARBARA GLASSMAN

  EXECUTIVE DIRECTOR (THROUGH 5/22)

  Total calculated

  $117,525

  From this org

  $113,928

  From related orgs

  $0

  Other

  $3,597

  Hours/week

  40

• DIANA R BREEN

  INTERIM EXEC DIR (5/22 - 11/22)

  Total calculated

  $149,176

  From this org

  $149,176

  From related orgs

  $0

  Other

  $0

  Hours/week

  20

• CHERYELLE CRUICKSHANK

  EXECUTIVE DIRECTOR (SINCE 11/22)

  Total calculated

  $31,850

  From this org

  $29,448

  From related orgs

  $0

  Other

  $2,402

  Hours/week

  40

• LAURA-ANN PAFUNDI

  SR. DIR OF FIN AND ADMIN

  Total calculated

  $140,466

  From this org

  $130,208

  From related orgs

  $0

  Other

  $10,258

  Hours/week

  40

• JANE HEAPHY

  DEPUTY ED, PRG.

  Total calculated

  $169,179

  From this org

  $156,610

  From related orgs

  $0

  Other

  $12,569

  Hours/week

  40

  Schedule J breakdown matched by us

  Base

  $156,610

  Bonus

  $0

  Other

  $0

  Deferred

  $3,132

  Nontaxable benefits

  $9,437

  Filer's total

  $169,179

• JOSEPH MILOSCIA

  SR. DIR. DEV.

  Total calculated

  $143,478

  From this org

  $117,014

  From related orgs

  $0

  Other

  $26,464

  Hours/week

  40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• PARENT NETWORK OF WESTERN NY

  $67,507

  SUPPORT GENERAL PROGRAM MISSION OF PROVIDING EDUCATION AND RESOURCES FOR FAMILIES OF INDIVIDUALS WITH SPECIAL NEEDS.

• STARBRIDGE INC

  $5,844

  SUPPORT ORGANIZATION PRIMARY MISSION OF PARTNERING WITH PEOPLE WHO HAVE DISABILITIES, THEIR FAMILIES, AND OTHERS WHO SUPPORT THEM, TO ACHIEVE SUCCESS IN EDUCATION, EMPLOYMENT, AND HEALTHY LIVING.

Provenance

Return type

form_990

Tax year

2022

Filed

1 November 2023

IRS schema version

2022v5.0

Source object

202313139349302041

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