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Nonprofiteer
← SICK CELLS

Form 990 for tax year 2024

Filed by SICK CELLS.

Totals

Total revenue
$667,849
Total expenses
$770,184
Contributions and grants received
$43,519
Grants paid
$0
Program service revenue
$617,000
Investment income
$0
Other revenue
$7,330
Total assets, end of year
$758,662
Total liabilities, end of year
$243,067
Net assets or fund balances, end of year
$515,595
Program services expenses (Part IX)
$564,909
Management and general expenses
$177,531
Fundraising expenses
$27,744
Program service expenses (Part III)
$564,909

Program services were 73.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $43,519

  • 2a · Program service revenue: SPONSORSHIPS

    total $566,250 · related or exempt $566,250

  • 2b · Program service revenue: RESEARCH

    total $50,750 · related or exempt $50,750

  • 11a · Other revenue: MISCELLANEOUS

    total $7,330 · related or exempt $7,330

  • 11e · Other revenue, total

    $7,330

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $167,818 · program services $114,116 · management and general $43,632 · fundraising $10,070

  • 7 · Other salaries and wages

    total $130,030 · program services $89,136 · management and general $32,735 · fundraising $8,159

  • 8 · Pension plan contributions

    total $2,181 · program services $1,488 · management and general $559 · fundraising $134

  • 9 · Other employee benefits

    total $50,690 · program services $34,591 · management and general $12,997 · fundraising $3,102

  • 10 · Payroll taxes

    total $26,277 · program services $17,932 · management and general $6,737 · fundraising $1,608

  • 11c · Fees: accounting

    total $17,107 · program services $841 · management and general $16,191 · fundraising $75

  • 11g · Fees: other

    total $258,886 · program services $212,570 · management and general $46,050 · fundraising $266

  • 12 · Advertising and promotion

    total $6,435 · program services $6,016 · management and general $316 · fundraising $103

  • 13 · Office expenses

    total $25,382 · program services $17,412 · management and general $6,309 · fundraising $1,661

  • 14 · Information technology

    total $2,000 · program services $2,000

  • 16 · Occupancy

    total $31,706 · program services $23,242 · management and general $6,684 · fundraising $1,780

  • 17 · Travel

    total $37,288 · program services $33,197 · management and general $3,305 · fundraising $786

  • 19 · Conferences, conventions and meetings

    total $2,843 · program services $2,568 · management and general $275

  • 22 · Depreciation, depletion and amortization

    total $1,104 · management and general $1,104

  • 24a · Other expenses: GRANT EXPENSE

    total $9,800 · program services $9,800

  • 24b · Other expenses: BANK FEES

    total $510 · management and general $510

  • 24c · Other expenses: AMORTIZATION

    total $88 · management and general $88

  • 24d · Other expenses: TAXES & LICENSES

    total $39 · management and general $39

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $618,884 · end of year $677,912

  • 4 · Accounts receivable

    end of year $19,000

  • 9 · Prepaid expenses and deferred charges

    end of year $8,000

  • 10a · Land, buildings and equipment: cost or other basis

    $10,721

  • 10b · Land, buildings and equipment: accumulated depreciation

    $1,104

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $9,617

  • 15 · Other assets

    beginning of year $0 · end of year $44,133

  • 17 · Accounts payable and accrued expenses

    beginning of year $2,553 · end of year $26,769

  • 19 · Deferred revenue

    end of year $175,000

  • 25 · Other liabilities

    beginning of year $0 · end of year $41,298

  • 27 · Net assets without donor restrictions

    beginning of year $616,331 · end of year $515,595

Mission and programs · 2024

Mission

SICK CELLS IS A NATIONAL ADVOCACY NONPROFIT FOR SICKLE CELL DISEASE (SCD). ORIGINALLY A DOCUMENTARY PROJECT STARTED IN 2008, SICK CELLS GREW TO MUCH MORE AND WAS FOUNDED AS A 501C3 NONPROFIT IN 2017. SICK CELLS' MISSION IS TO ELEVATE THE VOICES OF THE SCD COMMUNITY AND OUR STORIES OF RESILIENCE. IN HIGHLIGHTING THE GRAVE DISPARITIES OUR COMMUNITY FACES, WE WILL INFLUENCE DECISION-MAKERS AND PROPEL CHANGE.

Activities or mission (Part I)

SICK CELLS' MISSION IS TO ELEVATE THE VOICES OF THE SCD COMMUNITY AND OUR STORIES OF RESILIENCE.

  • IN 2024, OUR ORGANIZATION CONDUCTED A WIDE RANGE OF EDUCATION AND OUTREACH ACTIVITIES AIMED AT INCREASING AWARENESS AND UNDERSTANDING OF SICKLE CELL DISEASE (SCD), WHILE ALSO WORKING TO IMPROVE ACCESS TO CARE FOR INDIVIDUALS LIVING WITH THE CONDITION. WE HOSTED TWO NATIONAL VIRTUAL EVENTS-THE 2024 SCD POLICY FORUM AND THE 2024 COVERAGE FOR SCD SUMMIT-WHICH ENGAGED OVER 380 PARTICIPANTS, INCLUDING PATIENTS, CAREGIVERS, RESEARCHERS, MEDICAID DIRECTORS, HEALTHCARE PROVIDERS, COMMERCIAL PAYERS, AND OTHER KEY STAKEHOLDERS.OUR PROGRAMS ADVANCED OUR MISSION TO IMPROVE QUALITY OF LIFE FOR PEOPLE WITH SCD THROUGH PUBLIC POLICY ADVOCACY, COMMUNITY EDUCATION, AND PUBLIC AWARENESS. HIGHLIGHTS INCLUDE:AMBASSADOR PROGRAM - THE SICK CELLS AMBASSADOR PROGRAM EQUIPS A DIVERSE NETWORK OF ADVOCATES WITH THE TOOLS AND OPPORTUNITIES TO REPRESENT AND ADVANCE THE SCD COMMUNITY'S INTERESTS. IN 2024, WE RECRUITED 60 NEW AMBASSADORS, GROWING THE PROGRAM TO OVER 300 INDIVIDUALS ACROSS 29 STATES AND WASHINGTON, DC. PROGRAM ACTIVITIES INCLUDED 10 MONTHLY ADVOCACY WORKSHOPS (PRIORITY TOPIC MEETINGS), AND REFERRALS TO FOUR FOCUS GROUPS, SIX RESEARCH PROJECTS/SURVEYS, AND 19 SPEAKING ENGAGEMENTS. ADDITIONALLY, AMBASSADORS WERE REFERRED TO OVER 100 CONFERENCES AND EVENTS, INCLUDING REPRESENTATION AT PAINWEEK IN LAS VEGAS. THE PROGRAM ALSO SERVES AS A RESOURCE HUB FOR OTHER SCD ORGANIZATIONS AND ADVOCATES.FACES OF SCD STORYTELLING PROGRAM - THIS KEYSTONE INITIATIVE CAPTURES THE STORIES OF PATIENTS AND CAREGIVERS AND SERVES AS AN EDUCATIONAL RESOURCE FOR THE SCD COMMUNITY AND BEYOND. SICK CELLS SEEKS TO TELL THE UNTOLD STORIES WITHIN THE COMMUNITY AS WELL AS EXPAND AWARENESS OF THE DIVERSITY OF THE SCD PATIENT POPULATION TO BETTER REPRESENT THE COMMUNITY AS A WHOLE. IN 2024, STORIES SHARED THROUGH OUR WEBSITE AND SOCIAL MEDIA GENERATED OVER 250,000 IMPRESSIONS AND 8,000 ENGAGEMENTS, EXPANDING UNDERSTANDING OF THE DIVERSITY AND LIVED EXPERIENCES WITHIN THE SCD COMMUNITY.SICKLE CELL MEDICAID EDUCATION INITIATIVE - FOLLOWING THE APPROVAL OF TWO CELL AND GENE THERAPIES (CGT) FOR SCD IN DECEMBER 2023, SICK CELLS LAUNCHED AN OUTREACH CAMPAIGN TO MEDICAID DEPARTMENTS IN ALL 50 STATES AND DC. THE INITIATIVE AIMED TO EDUCATE POLICYMAKERS ON CGT CARE MODELS AND PROMOTE EQUITABLE ACCESS FOR MEDICAID ENROLLEES. WE PROVIDED TAILORED INFORMATION TO MEDICAID DIRECTORS, INCLUDING DATA ON LOCAL SCD PREVALENCE, COMMUNITY-BASED ORGANIZATIONS, AND STATE FORMULARY POLICIES. SICK CELLS ALSO CONDUCTED THE 2024 MEDICAID LANDSCAPE AND ACCESS REVIEW AND PUBLISHED 4 ISSUE BRIEFS AND A FINAL REPORT FROM THE FINDINGS. THIS INFORMATION PROVIDES CRUCIAL INSIGHTS INTO THE CURRENT STATE OF SCD COVERAGE FOR MEDICAID BENEFICIARIES.

    Expenses $564,909 · Revenue $624,330

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Ashley Valentine

    BOARD CHAIR

    Total calculated
    $103,638
    From this org
    $97,094
    From related orgs
    $0
    Other
    $6,544
    Hours/week
    40

  • Terri Booker

    BOARD VICE CHAIR

    Total calculated
    $0
    Hours/week
    5

  • Max Matite

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Dorinda Lawrence-Sims

    BOARD TREASURER

    Total calculated
    $0
    Hours/week
    5

  • Dan Jabs

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • Adrienne Bell-Cors Shapiro

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • James Holloway Esq

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • Abrinar Tainter

    EXCUTIVE DIRECTOR

    Total calculated
    $78,015
    From this org
    $70,724
    From related orgs
    $0
    Other
    $7,291
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2024
Filed
8 October 2025
IRS schema version
2024v5.2
Source object
202502819349301300

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