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Nonprofiteer
← CURE DUCHENNE

Form 990 for tax year 2022

Filed by CURE DUCHENNE.

Totals

Total revenue
$5,751,368
Total expenses
$9,005,616
Contributions and grants received
$2,429,586
Grants paid
$330,000
Program service revenue
$0
Investment income
$147,656
Other revenue
$3,174,126
Total assets, end of year
$28,410,543
Total liabilities, end of year
$310,658
Net assets or fund balances, end of year
$28,099,885
Program services expenses (Part IX)
$6,736,726
Management and general expenses
$1,202,426
Fundraising expenses
$1,066,464
Program service expenses (Part III)
$6,736,726

Program services were 74.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • PAUL MILLER

    SECRETARY

    Total calculated
    $0
    Hours/week
    10

  • DEBRA MILLER

    PRESIDENT & CEO

    Total calculated
    $151,305
    From this org
    $151,305
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $151,305
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $151,305

  • JEFFREY GOFFMAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • PETER STRELOW

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DAVID MACINNIS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DANA WHITE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • RYAN WILLIAMS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • MARTIN LEHR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • ELAINE WU

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • TJ FARNSWORTH

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • SARAH MCELROY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • TIM SULLIVAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • KATHLENE BALISY

    FINANCE DIRECTOR

    Total calculated
    $170,833
    From this org
    $170,833
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $170,833
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $170,833

  • BRADLEY HODGES

    FORMER PARTNER WITH CUREDUCHENNE VENTURES

    Total calculated
    $151,231
    From this org
    $151,231
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $151,231
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $151,231

  • MICHAEL KELLY

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $175,000
    From this org
    $175,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $175,000
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $175,000

  • HEATHER MEDLIN

    SENIOR DIRECTOR OF CLINICAL DEVELOPMENT

    Total calculated
    $156,821
    From this org
    $156,821
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $156,821
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $156,821

  • KENT MORA

    FORMER CHIEF OF STAFF

    Total calculated
    $211,308
    From this org
    $211,308
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $211,308
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $211,308

  • LIANNA ORLANDO

    VICE PRESIDENT OF RESEARCH

    Total calculated
    $196,917
    From this org
    $196,917
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $196,917
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $196,917

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Independent compensation consultant
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

  • CD ACCESS

    501(C)(3) · DISTRIBUTE MEDICINE & OTHER THERAPIES TO INDIVIDUALS WITH DUCHENNE DISEASE · CA

Taxable family on this return

Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.

Disregarded entities

Part I: entities that legally are the filer and file no return of their own.

  • CUREDUCHENNE VENTURE LLC

    INVESTING IN RESEARCH · CA · income $112,822 · assets $20,561,254

    Directly controlled by CURE DUCHENNE

Provenance

Return type
form_990
Tax year
2022
Filed
14 November 2023
IRS schema version
2022v5.0
Source object
202343189349315499

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