Form 990 for tax year 2022

Totals

Total revenue

$781,521

Total expenses

$1,115,323

Contributions and grants received

$717,275

Grants paid

$39,000

Program service revenue

$0

Investment income

$64,246

Other revenue

$0

Total assets, end of year

$1,239,406

Total liabilities, end of year

$67,928

Net assets or fund balances, end of year

$1,171,478

Program services expenses (Part IX)

$815,817

Management and general expenses

$120,578

Fundraising expenses

$178,928

Program service expenses (Part III)

$815,817

Program services were 73.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2022

• ADVOCACY EDUCATION: THE ORGANIZATION LEADS SEVERAL ACTIVITIES FOCUSED ON EDUCATING PATIENTS, SURVIVORS, AND THEIR FAMILIES ABOUT THE IMPACT OF FEDERAL AND STATE HEALTH POLICY ON CHILDHOOD CANCER AND SURVIVORSHIP CARE. EDUCATIONAL PROGRAMS INCLUDE MONTHLY NEWSLETTERS, EMAIL ALERTS ON PENDING LEGISLATION AND A TOOLKIT PROVIDING STRATEGIES AND TACTICS ON EFFECTIVE ADVOCACY. THE ORGANIZATION WORKS TO EDUCATE LEGISLATIVE AND REGULATORY DECISION MAKERS ON THE CHILDHOOD CANCER EXPERIENCE AND POLICY NEEDS. EACH MONTH THE ORGANIZATION ENGAGES IN A THOUGHTFUL, ANALYTICAL PROCESS REVIEWING TIMELY AND RELEVANT POLICY ISSUES IMPACTING CHILDREN WITH CANCER. THIS INFORMATION IS DISTRIBUTED THROUGH A VARIETY OF ELECTRONIC MEDIA TO PATIENTS, SURVIVORS AND FAMILIES AND INFORMS THE POLICY AGENDA FOR THE ORGANIZATION AND OTHER CHILDHOOD CANCER FOUNDATIONS.WE PROMOTE POLICIES AND PROGRAMS THAT AIM TO ACCELERATE THE DEVELOPMENT OF SAFER, MORE EFFECTIVE CANCER THERAPIES FOR CHILDREN AND BETTER ADDRESS THE UNIQUE NEEDS AND LIFELONG HEALTH CHALLENGES EXPERIENCED BY CHILDHOOD CANCER SURVIVORS AND THEIR FAMILIES.CHILDREN'S CANCER AWARENESS AND ADVOCACY DAY: THIS DAY BRINGS TOGETHER PEDIATRIC PATIENTS, YOUNG ADULT SURVIVORS, AND FAMILIES FOR A DAY OF MOBILIZING AGAINST CHILDHOOD CANCER. THE ORGANIZATION PARTNERS WITH OTHER ORGANIZATIONS TO OFFER A TRAINING WORKSHOP FOR THE LOBBY DAY WHICH FAMILIARIZES SURVIVORS WITH THE FEDERAL LEGISLATIVE AND APPROPRIATIONS PROCESS AND INSTRUCTS ATTENDEES ON EFFECTIVE MESSAGING STRATEGIES FOR VISITS WITH CONGRESSIONAL MEMBERS AND STAFF. PUBLIC POLICY ADVOCACY: WORKING CLOSELY WITH LEADERS IN CONGRESS, FEDERAL AGENCIES, INDUSTRY, AND THE BROADER CANCER COMMUNITY, WE SERVE AS A DEDICATED VOICE OF CHILDREN WITH CANCER, FAMILIES, AND SURVIVORS IN NATIONAL DEBATES ON HEALTH CARE AND CANCER POLICY. THROUGH GRASSROOTS ADVOCACY AND PRESENTATIONS TO GOVERNMENT AGENCIES, POLICY MAKERS, COALITIONS, AND STAKEHOLDERS, THIS PROGRAM PROVIDES INFORMATION ON THE IMPACT OF FEDERAL POLICY ON CHILDREN WITH CANCER AND SURVIVORS. THE PURPOSE IS TO FACILITATE THE DEVELOPMENT AND APPROVAL OF MORE EFFECTIVE AND LESS TOXIC THERAPIES FOR CHILDREN WITH CANCER AND ENSURES APPROPRIATE CARE FOR SURVIVORS THROUGH EDUCATION ON THE BARRIERS TO DRUG DEVELOPMENT AND THE CONSEQUENCES OF CURRENT TREATMENTS. WORKING CLOSELY WITH LEADERS IN CONGRESS, FEDERAL AGENCIES, INDUSTRY, AND THE BROADER CANCER COMMUNITY, WE SERVE AS A DEDICATED VOICE OF CHILDREN WITH CANCER, FAMILIES, AND SURVIVORS IN NATIONAL DEBATES ON HEALTH CARE AND CANCER POLICY. THE ORGANIZATION ALSO UTILIZES WEBSITE EDUCATION, AN ADVOCACY TOOLKIT AND MONTHLY NEWSLETTERS TO FACILITATE ITS CAUSE. IN ADDITION THE ORGANIZATION HAS INITIATED A 'COLLEGE SCHOLARS' PROGRAM PROVIDING SCHOLARSHIPS TO SURVIVORS OF CHILDHOOD CANCER.

  Expenses $815,817 · Grants $39,000

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• PHOENIX CHILDREN'S HOSPITAL SURVIVORSHIP PROGRAM

  $10,000

  DEVELOPING INTITIATIVES TO ADDRESS THE MEDICAL AND PSYCHOSOCIAL CARE NEEDS OF PEDIATRIC CANCER SURVIVORS.

Provenance

Return type

form_990

Tax year

2022

Filed

13 March 2024

IRS schema version

2022v5.0

Source object

202410759349301341

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