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Nonprofiteer
← ASH REGISTRY INC

Form 990 for tax year 2024

Filed by ASH REGISTRY INC.

Totals

Total revenue
$4,973,130
Total expenses
$10,038,615
Contributions and grants received
$4,358,950
Grants paid
$730,473
Program service revenue
$614,180
Investment income
$0
Other revenue
$0
Total assets, end of year
$3,937,364
Total liabilities, end of year
$51,550,725
Net assets or fund balances, end of year
-$47,613,361
Program services expenses (Part IX)
$7,998,220
Management and general expenses
$2,040,395
Fundraising expenses
$0
Program service expenses (Part III)
$7,998,220

Program services were 79.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1d · Related organizations

    $607,837

  • 1f · All other contributions, gifts and grants

    $3,751,113

  • 2a · Program service revenue: PROJECTS

    total $614,180 · related or exempt $614,180

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $730,473 · program services $730,473

  • 5 · Compensation of officers, directors and key employees

    total $351,567 · program services $316,411 · management and general $35,156

  • 7 · Other salaries and wages

    total $2,103,370 · program services $1,414,681 · management and general $688,689

  • 8 · Pension plan contributions

    total $185,756 · program services $126,444 · management and general $59,312

  • 9 · Other employee benefits

    total $271,628 · program services $186,779 · management and general $84,849

  • 10 · Payroll taxes

    total $180,560 · program services $126,392 · management and general $54,168

  • 11b · Fees: legal

    total $65,577 · program services $65,475 · management and general $102

  • 11g · Fees: other

    total $3,972,586 · program services $3,965,256 · management and general $7,330

  • 12 · Advertising and promotion

    total $89,058 · program services $89,058

  • 13 · Office expenses

    total $4,735 · program services $2,952 · management and general $1,783

  • 17 · Travel

    total $48,279 · program services $26,909 · management and general $21,370

  • 19 · Conferences, conventions and meetings

    total $53,421 · program services $29,776 · management and general $23,645

  • 22 · Depreciation, depletion and amortization

    total $61,444 · management and general $61,444

  • 23 · Insurance

    total $311,112 · program services $311,112

  • 24a · Other expenses: COST AGREEMENT

    total $980,000 · management and general $980,000

  • 24b · Other expenses: STIPENDS

    total $367,005 · program services $367,005

  • 24c · Other expenses: HONORARIA

    total $205,859 · program services $205,859

  • 24d · Other expenses: SUBSCR/PUBLICATIONS

    total $32,499 · program services $32,448 · management and general $51

  • 24e · All other expenses

    total $23,686 · program services $1,190 · management and general $22,496

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $515,987 · end of year $472,074

  • 3 · Pledges and grants receivable

    beginning of year $1,813,209 · end of year $3,333,171

  • 9 · Prepaid expenses and deferred charges

    beginning of year $51,500 · end of year $72,420

  • 10a · Land, buildings and equipment: cost or other basis

    $307,220

  • 10b · Land, buildings and equipment: accumulated depreciation

    $247,521

  • 10c · Land, buildings and equipment, net

    beginning of year $121,143 · end of year $59,699

  • 17 · Accounts payable and accrued expenses

    beginning of year $251,143 · end of year $430,180

  • 25 · Other liabilities

    beginning of year $44,798,572 · end of year $51,120,545

  • 27 · Net assets without donor restrictions

    beginning of year -$42,548,922 · end of year -$50,829,407

  • 28 · Net assets with donor restrictions

    beginning of year $1,046 · end of year $3,216,046

Mission and programs · 2024

Mission

THE ASH RESEARCH COLLABORATIVE (ASH RC) IS WORKING TO ACCELERATE CHANGE BY MAKING IT MORE EFFICIENT TO CONDUCT RESEARCH, FROM INCREASING ACCESS TO HIGH-QUALITY CLINICAL DATA TO MAKING IT EASIER FOR INDIVIDUALS WITH HEMATOLOGIC CONDITIONS TO PARTICIPATE IN STUDIES.

Activities or mission (Part I)

ASH RC ACCELERATES HEMATOLOGY RESEARCH THROUGH REAL-WORLD DATA, NETWORKS, AND INCLUSIVE STUDY ACCESS.

  • THE ASH RC DATA HUB WAS CREATED TO FACILITATE THE SHARING OF DATA ON BENIGN AND MALIGNANT HEMATOLOGIC CONDITIONS IN SUPPORT OF SCIENTIFIC INQUIRY AND DISCOVERY. AS A MAJOR INITIATIVE WITHIN ASH RC, THE DATA HUB AIMS TO CREATE THE LARGEST SHARED INFORMATION RESOURCE WITHIN THE GLOBAL HEMATOLOGY COMMUNITY. THE DATA HUB IS CURRENTLY COLLECTING DATA ON PATIENTS WITH MULTIPLE MYELOMA (MM) AND SICKLE CELL DISEASE (SCD). THE LONG-TERM GOAL OF THE ASH RC IS TO ADDRESS THE ENTIRE SPECTRUM OF MALIGNANT AND NONMALIGNANT HEMATOLOGIC DISEASES, WHICH MEANS THE DATA HUB WILL EXPAND ITS SCOPE ONCE THESE INITIAL EFFORTS HAVE REACHED MATURITY. CURRENTLY, THE DATA HUB HOUSES DATA ON MORE THAN 24,000 PATIENTS WITH SCD AND 6,300 PATIENTS WITH MM.

    Expenses $7,998,220 · Grants $730,473 · Revenue $614,180

As filed on the 2024 return.

Listed in Part VII

  • Mark Crowthermdmscfrcpcfrsc

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    2
  • Gary Shiller

    SECRETARY/TREASURER

    Total calculated
    $0
    Hours/week
    2
  • Linda Burns MD

    APPOINTED MEMBER

    Total calculated
    $0
    Hours/week
    2 + 2 related
  • Roy Silverstein MD

    LIAISON TO ASH EC

    Total calculated
    $0
    Hours/week
    2 + 2 related
  • Christopher Boone PhD Fache

    FHIMSS - APPOINTED MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Helen Burstin MD MPH

    APPOINTED MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Andrew Evens Do MBA Msc

    APP MEM TILL 03/25, VICE CHAIRPERSON

    Total calculated
    $0
    Hours/week
    2
  • Marc Ginsky JD

    APPOINTED MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Bob Lowenberg MD PhD

    APPOINTED MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Chris McEntee

    APPOINTED MEMBER AS OF 05/25

    Total calculated
    $0
    Hours/week
    2
  • Martha Liggett Esq

    EX-OFFICIO

    Total calculated
    $0
    Hours/week
    2 + 2 related
  • Matthew Gertzog

    EXECUTIVE DIRECTOR

    Total calculated
    $744,060
    From this org
    $324,492
    From related orgs
    $324,492
    Other
    $95,076
    Hours/week
    18 + 17 related

    Schedule J breakdown matched by us

    Base
    $286,568 + $286,568 related
    Bonus
    $20,000 + $20,000 related
    Other
    $17,924 + $17,924 related
    Deferred
    $29,250 + $29,250 related
    Nontaxable benefits
    $18,288 + $18,288 related
    Filer's total
    $372,030 + $372,030 related
  • Kathleen Torres

    SENIOR DIRECTOR, DATA HUB

    Total calculated
    $486,107
    From this org
    $398,919
    From related orgs
    $0
    Other
    $87,188
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $392,545
    Bonus
    $0
    Other
    $6,374
    Deferred
    $57,800
    Nontaxable benefits
    $29,388
    Filer's total
    $486,107
  • Christopher Dowd

    DEPUTY DIR., BUSINESS DEVELOPMENT

    Total calculated
    $513,307
    From this org
    $412,041
    From related orgs
    $0
    Other
    $101,266
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $367,893
    Bonus
    $40,000
    Other
    $4,148
    Deferred
    $58,496
    Nontaxable benefits
    $42,770
    Filer's total
    $513,307
  • Michelle Walser

    DEPUTY DIRECTOR, OPERATIONS

    Total calculated
    $352,107
    From this org
    $278,287
    From related orgs
    $0
    Other
    $73,820
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $260,601
    Bonus
    $15,000
    Other
    $2,686
    Deferred
    $40,924
    Nontaxable benefits
    $32,896
    Filer's total
    $352,107
  • Susan Rogers Senior Manager

    LEARNING COMMUNITY PROGRAMS

    Total calculated
    $217,214
    From this org
    $192,116
    From related orgs
    $0
    Other
    $25,098
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $188,561
    Bonus
    $0
    Other
    $3,555
    Deferred
    $18,856
    Nontaxable benefits
    $6,242
    Filer's total
    $217,214
  • Emily Semmel

    DEPUTY DIRECTOR, DATA HUB

    Total calculated
    $218,343
    From this org
    $177,432
    From related orgs
    $0
    Other
    $40,911
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $175,866
    Bonus
    $0
    Other
    $1,566
    Deferred
    $14,099
    Nontaxable benefits
    $26,812
    Filer's total
    $218,343

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 1a · Health or social club dues or initiation fees
  • 1b · Written policy on the line-1a expenses
  • 7 · Other non-fixed payments

Answered no

  • 2 · Substantiation required before reimbursing expenses
  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 1A
THE ORGANIZATION PROVIDED HEALTH CLUB DUES AS PART OF ITS WELLNESS PROGRAM.
PART I, LINE 3
ASH RC RELIED ON AMERICAN SOCIETY OF HEMATOLOGY, INC. (ASH), A RELATED ORGANIZATION, TO DETERMINE COMPENSATION. ASH USED THE FOLLOWING METHODS TO DETERMINE COMPENSATION: - INDEPENDENT COMPENSATION CONSULTANT - COMPENSATION SURVEY OR STUDY - APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE - FORM 990 OF OTHER ORGANIZATIONS - COMPENSATION COMMITTEE
PART I, LINE 7
MATTHEW GERTZOG AND CHRISTOPHER DOWD RECIEVED NON-FIXED DISCRETIONARY BONUS OF $40,000 EACH IN CALENDAR YEAR 2025.
PARTS I AND II:
ASH RC DOES NOT DIRECTLY HIRE OR COMPENSATE EMPLOYEES. AMERICAN SOCIETY OF HEMATOLOGY, INC., A RELATED ORGANIZATION EXEMPT UNDER IRS SECTION 501(C)(3), IS RESPONSIBLE FOR FILING FORMS W-2S FOR ALL EMPLOYEES. THE COMPENSATION AND RELATED NON-TAXABLE BENEFITS ARE REPORTED ON PART VII, SECTION A AS WELL AS PART IX OF EACH ORGANIZATION AS INCURRED.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2024
Filed
21 April 2026
IRS schema version
2024v5.5
Source object
202641129349300234

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