Form 990 for tax year 2023

What the amendment changed

Compared with the latest return for 2023 , filed 15 November 2024. matched by us Only the return's totals, a 990-PF's accounting method and the names listed in Part VII (Part VIII on a 990-PF) are compared. We relate returns by organization, tax year and form, and order them by each return's own timestamp; the filer's own "amended return" checkbox is a separate fact.

Total revenue

$163,144 →changed to $22,533

Total expenses

$145,189 →changed to $103,448

Contributions and grants received

$224,375 →changed to $21,361

Grants paid

$135,000 →changed to $92,513

Investment income

$0 →changed to $1,172

Other revenue

-$61,231 →changed to $0

Total assets, end of year

$80,915 →changed to $0

Net assets or fund balances, end of year

$80,915 →changed to $0

Program services expenses

$135,000 →changed to $92,513

Management and general expenses

$10,189 →changed to $10,935

Program service expenses (Part III)

$135,000 →changed to $92,513

Totals

Total revenue

$163,144

Total expenses

$145,189

Contributions and grants received

$224,375

Grants paid

$135,000

Program service revenue

$0

Investment income

$0

Other revenue

-$61,231

Total assets, end of year

$80,915

Total liabilities, end of year

$0

Net assets or fund balances, end of year

$80,915

Program services expenses (Part IX)

$135,000

Management and general expenses

$10,189

Fundraising expenses

$0

Program service expenses (Part III)

$135,000

Program services were 93.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2023

• **ALLOCATIONS WERE MADE TO THE FANCONI ANEMIA RESEARCH FUND TO SUPPORT MEDICAL, SCIENTIFIC AND TREATMENT RESEARCH OF FANCONI ANEMIA AND ITS RELATED CANCERS.*$100,000 WAS ALLOCATED TO FUND RESEARCH ENTITLED TRANSFORMING TREATMENT OF INHERITED BONE MARROW FAILURE IN FANCONI ANEMIA BY PRECISE IN VIVO GENOME EDITINGPEOPLE WITH FA, WHO HAVE BONE MARROW FAILURE, ARE CURRENTLY TREATED WITH ALLOGENEIC HEMATOPOIETIC STEM CELL TRANSPLANTS. HOWEVER, THESE PROCEDURES REMAIN SOMEWHAT LIMITED DUE TO HIGH COST, LACK OF APPROPRIATE DONORS IN SOME REGIONS, AND HEIGHTENED RISK OF LONG-TERM HEALTH EFFECTS SUCH AS AN INCREASED RISK OF CANCER. INVIVO GENE THERAPIES OFFER PROMISE AND GREAT POTENTIAL FOR A SAGE EASILY ACCESSIBLE, AND COST-EFFECTIVE THERAPEUTIC OPTION TO TREAT FA-RELATED BONE MARROW FAILURE THAT CAN BE USED WORLDWIDE. THIS CONSORTIUM WILL TEST GENE EDITING TECHNOLOGIES FOR ALL MAJOR FA MUTATIONS USING LABORATORY-BASED TECHNIQUES OVER THE NEXT TWO YEARS. THE GOAL IS TO RAPIDLY DEVELOP A TRANSLATIONAL PROTOCOL THAT WILL EVENTUALLY BE TESTED IN CLINICAL TRIALS.**ALLOCATIONS WERE MADE TO THE UNIVERSITY OF COLORADO FOUNDATION. *AN ALLOCATION WAS MADE TO THE UNIVERSITY OF COLORADO FOUNDATION FOR THE KENNETH R ATKINSON MD ENDOWED MEMORIAL SCHOLARSHIPDISTRIBUTION OF FUNDS WAS MADE TO AN ENDOWED SCHOLARSHIP TO BE AWARDED ANNUALLY TO A STUDENT ENROLLED IN THE SCHOOL OF MEDICINE AT THE UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS. SCHOLARSHIP IS NEED BASED WITH PREFERENCE GIVEN TO 4TH YEAR MEDICAL STUDENTS WHO PLAN ON GOING INTO PRIMARY CARE MEDICINE. PREFERENCE WILL ALSO BE GIVEN TO STUDENTS INTENDING TO PRACTICE PRIMARY CARE IN THE STATE OF COLORADO.**ALLOCATIONS WERE MADE TO CAMP BARNABAS*AN ALLOCATION OF $17,500 WAS MADE TO CAMP BARNABAS IN SOUTHWEST MISSOURI TO ENHANCE THE CAMP EXPERIENCE FOR KIDS WITH SPECIAL NEEDS AND TO MEET THE MEDICAL NEEDS OF ALL CAMPERS.CAMP BARNABAS PROVIDES A UNIQUE CAMP EXPERIENCE FOR INDIVIDUALS WITH SPECIAL NEEDS. THE CAMP WANTS ITS CAMPERS TO HAVE A SUMMER JUST LIKE EVERYONE ELSE BECAUSE, FOR MOST OF THE YEAR, ITS CAMPERS ARE ON THE OUTSIDE. SPECIAL NEEDS INDIVIDUALS SPEND THEIR YEAR ADAPTING AND MAKING MODIFICATIONS TO THEIR LIVES AND ROUTINES IN ORDER TO FUNCTION IN THE WORLD AROUND THEM. CAMP BARNABAS WANTS CAMPERS TO FEEL LIMITLESS AND TO CREATE A PLACE WHERE THEY CAN FEEL THE FREEDOM TO BE WHO THEY WERE DESIGNED TO BE. THE CAMP INCLUDES AN ONSITE MEDICAL FACILITY WITH NURSES AND DOCTORS TO ACCOMMODATE THE MEDICAL NEEDS OF ITS CAMPERS.

  Expenses $135,000 · Grants $135,000

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

• FANCONI ANEMIA RESEARCH FUND

  $100,000

  TO SUPPORT SCIENTIFIC, MEDICAL, AND TREATMENT RESEARCH OF FANCONI ANEMIA AND ITS RELATED CANCERS AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES.

• UNIVERSITY OF COLORADO FOUNDATION

  $17,500

  KENNETH R ATKINSON MD ENDOWED MEMORIAL SCHOLARSHIP

• CAMP BARNABAS

  $17,500

  CAMP BARNABAS

Provenance

Return type

form_990

Tax year

2023

Filed

10 July 2024

IRS schema version

2023v5.1

Source object

202411929349300536

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