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Nonprofiteer
← FORE BATTEN FOUNDATION

Form 990 for tax year 2022

Filed by FORE BATTEN FOUNDATION.

Totals

Total revenue
$1,452,603
Total expenses
$1,160,011
Contributions and grants received
$1,576,666
Grants paid
$1,066,532
Program service revenue
$96
Investment income
$2,876
Other revenue
-$127,035
Total assets, end of year
$2,172,966
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$2,172,966
Program services expenses (Part IX)
$1,094,640
Management and general expenses
$45,569
Fundraising expenses
$19,802
Program service expenses (Part III)
$1,094,640

Program services were 94.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $932,177

  • 1f · All other contributions, gifts and grants

    $644,489

  • 1g · Noncash contributions included above

    $644,489

  • 2f · All other program service revenue

    total $96 · unrelated business $96

  • 3 · Investment income

    total $2,876 · excluded $2,876

  • 8a · Fundraising events: gross income

    $644,489

  • 8a · Fundraising events: contributions included on line 1c

    $932,177

  • 8b · Fundraising events: direct expenses

    $771,524

  • 8c · Net income from fundraising events

    total -$127,035 · excluded -$127,035

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $991,532 · program services $991,532

  • 3 · Grants to foreign organizations and individuals

    total $75,000 · program services $75,000

  • 7 · Other salaries and wages

    total $59,583 · program services $17,875 · management and general $23,833 · fundraising $17,875

  • 10 · Payroll taxes

    total $4,867 · program services $1,460 · management and general $1,947 · fundraising $1,460

  • 11c · Fees: accounting

    total $16,611 · program services $8,306 · management and general $8,305

  • 11g · Fees: other

    total $1,556 · program services $467 · management and general $622 · fundraising $467

  • 13 · Office expenses

    total $2,069 · management and general $2,069

  • 17 · Travel

    total $8,253 · management and general $8,253

  • 24a · Other expenses: DUES AND SUBSCRIPTIONS

    total $480 · management and general $480

  • 24b · Other expenses: BANK FEE

    total $60 · management and general $60

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $259,015 · end of year $238,791

  • 2 · Savings and temporary cash investments

    beginning of year $1,621,359 · end of year $1,934,175

  • 29 · Capital stock, trust principal or current funds

    beginning of year $0 · end of year $0

  • 30 · Paid-in or capital surplus, or land, building or equipment fund

    beginning of year $0 · end of year $0

  • 31 · Retained earnings, endowment or other funds

    beginning of year $1,880,374 · end of year $2,172,966

Mission and programs · 2022

Mission

TO FUND PIONEERING RESEARCH AND COMPASSIONATELY SUPPORT THE BATTEN COMMUNITY. THE ORGANIZATION WORKS TIRELESSLY TO GIVE CHILDREN WITH BATTEN DISEASE THE BEST POSSIBLE LIFE, TO SPREAD AWARENESS OF THE URGENCY TO FUND NEW TREATMENTS, AND TO HELP ALL FAMILIES AFFECTED BY BATTEN DISEASE.

Activities or mission (Part I)

THIS ORGANIZATION IS ORGANIZED EXCLUSIVELY FOR EDUCATIONAL AND CHARITABLE PURPOSES, INCLUDING TO EDUCATE THE PUBLIC ABOUT AND TO OBTAIN FUNDING FOR RESEARCH TO CURE RARE DISEASES, INCLUDING SPECIFICALLY JUVENILE BATTEN DISEASE.

  • THIS ORGANIZATION MADE GRANTS TO SEVERAL TAX-EXEMPT 501(C)(3) ORGANIZATIONS THAT ADVANCE THE OBJECTIVES OF THIS ORGANIZATION TO PROMOTE AWARENESS OF BATTEN DISEASE AS WELL AS TO PROMOTE OPPORTUNITIES FOR SCIENTISTS TO COME TOGETHER TO CREATE AND FUND INNOVATIVE RESEARCH PROPOSALS TO WORK TOWARD A CURE FOR BATTEN DISEASE.

    Expenses $1,094,640 · Grants $1,066,532

  • N/A

  • N/A

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • David Kahn

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Karen Kahn

    PRESIDENT/CEO

    Total calculated
    $0
    Hours/week
    7.5

  • Kathryn Niederer

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Jennifer McGinn

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Marlena Kahn

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

  • SANFORD RESEARCH

    $334,500

    TO SUPPORT AND PROMOTE THE PURSUIT OF THE HIGHEST CALIBER, PUBLISHABLE RESEARCH (1) RELATING TO THE DEVELOPMENT/DELIVERY OF QUALITY MEDICAL AND HEALTH CARE SERVICES, (2) ADVANCING MEDICAL OR SCIENTIFIC KNOWLEDGE AND SKILLS, AND/OR (3) BENEFITING THE EDUCATION OF HEALTH SCIENCE STUDENTS, RESIDENTS, HEALTH PROFESSIONALS AND THE GENERAL PUBLIC

  • ROSALIND FRANKLIN UNIVERSITY OF MEDICINE & SCIENCE

    $259,258

    TO FUND RESEARCH OF ADVANCING KNOWLEDGE AND CREATING KNOWLEDGE THAT CAN BE TRANSLATED INTO IMPROVING THE HEALTH OF THE POPULATION

  • UNIVERSITY OF ROCHESTER

    $186,753

    TO SUPPORT THE RESEARCH FOR THE PURPOSE OF THE EVALUATION OF PHOTORECEPTOR OUTER SEGMENT PHAGOCYTOSIS FUNCTION IN THE RETINA/RETINAL CELLS OBTAINED FROM A PORCINE MODEL OF CLN3-BATTEN DISEASE

  • THE WASHINGTON UNIVERSITY

    $135,653

    TO SUPPORT THE RESEARCH FOR THE PURPOSE OF DISCOVERING AND MAKING AVAILABLE TO THE PUBLIC NEW AND IMPROVED MEDICAL PROCEDURES AND INFORMATION

  • BDSRA

    $65,000

    TO FUND RESEARCH FOR A CURE FOR AND TO PROMOTE AWARENESS OF BATTEN DISEASE.

  • OUR PROMISE TO NICK FOUNDATION

    $10,000

    TO PURCHASE HOLIDAY CARE PACKAGES TO SUPPORT CHILDREN

Provenance

Return type
form_990
Tax year
2022
Filed
13 November 2023
IRS schema version
2022v5.0
Source object
202313199349329631

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