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Nonprofiteer
← CYSTIC FIBROSIS RESEARCH INSTITUTE

Form 990 for tax year 2023

Filed by CYSTIC FIBROSIS RESEARCH INSTITUTE.

Totals

Total revenue
$2,150,402
Total expenses
$1,617,754
Contributions and grants received
$2,058,910
Grants paid
$611,672
Program service revenue
$15,045
Investment income
$81,091
Other revenue
-$4,644
Total assets, end of year
$3,727,841
Total liabilities, end of year
$19,808
Net assets or fund balances, end of year
$3,708,033
Program services expenses (Part IX)
$1,370,456
Management and general expenses
$109,348
Fundraising expenses
$137,950
Program service expenses (Part III)
$1,370,456

Program services were 84.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $101,387

  • 1f · All other contributions, gifts and grants

    $1,957,523

  • 1g · Noncash contributions included above

    $27,359

  • 2a · Program service revenue: EDUCATION PROGRAM

    total $15,045 · related or exempt $15,045

  • 3 · Investment income

    total $81,091 · excluded $81,091

  • 8a · Fundraising events: gross income

    $4,600

  • 8a · Fundraising events: contributions included on line 1c

    $101,387

  • 8b · Fundraising events: direct expenses

    $9,244

  • 8c · Net income from fundraising events

    total -$4,644 · excluded -$4,644

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $611,672 · program services $611,672

  • 5 · Compensation of officers, directors and key employees

    total $111,488 · program services $89,312 · management and general $7,596 · fundraising $14,580

  • 7 · Other salaries and wages

    total $244,699 · program services $196,025 · management and general $16,673 · fundraising $32,001

  • 9 · Other employee benefits

    total $43,505 · program services $36,788 · management and general $3,455 · fundraising $3,262

  • 10 · Payroll taxes

    total $25,722 · program services $20,509 · management and general $1,581 · fundraising $3,632

  • 11g · Fees: other

    total $76,258 · program services $8,866 · management and general $63,191 · fundraising $4,201

  • 13 · Office expenses

    total $61,658 · program services $40,640 · management and general $501 · fundraising $20,517

  • 16 · Occupancy

    total $71,032 · program services $56,352 · management and general $4,226 · fundraising $10,454

  • 19 · Conferences, conventions and meetings

    total $253,271 · program services $253,271

  • 22 · Depreciation, depletion and amortization

    total $945 · program services $756 · management and general $57 · fundraising $132

  • 23 · Insurance

    total $5,790 · program services $4,632 · management and general $347 · fundraising $811

  • 24a · Other expenses: OTHER EXPENSES

    total $84,355 · program services $51,633 · management and general $11,721 · fundraising $21,001

  • 24b · Other expenses: NONFINANCIAL EXPENSES

    total $27,359 · fundraising $27,359

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,739,194 · end of year $2,292,412

  • 3 · Pledges and grants receivable

    beginning of year $230,250 · end of year $160,000

  • 4 · Accounts receivable

    beginning of year $5,698 · end of year $217

  • 9 · Prepaid expenses and deferred charges

    beginning of year $16,611 · end of year $21,388

  • 10a · Land, buildings and equipment: cost or other basis

    $108,786

  • 10b · Land, buildings and equipment: accumulated depreciation

    $106,760

  • 10c · Land, buildings and equipment, net

    beginning of year $2,971 · end of year $2,026

  • 11 · Investments: publicly traded securities

    beginning of year $1,199,475 · end of year $1,246,655

  • 15 · Other assets

    beginning of year $5,143 · end of year $5,143

  • 17 · Accounts payable and accrued expenses

    beginning of year $37,586 · end of year $19,808

  • 27 · Net assets without donor restrictions

    beginning of year $2,303,751 · end of year $2,373,804

  • 28 · Net assets with donor restrictions

    beginning of year $858,005 · end of year $1,334,229

Mission and programs · 2023

Mission

TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATIONAL AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE.

Activities or mission (Part I)

TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATION AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE THREATENING GENETIC DISEASE.

  • TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATION AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE THREATENING GENETIC DISEASE.

    Expenses $1,370,456 · Grants $611,672 · Revenue $15,045

As filed on the 2023 return.

Listed in Part VII

  • Francine Bion

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Zoe Davies

    BOARD SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Julie Desch

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Colleen Dunn

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Oscar A Flamenco

    BOARD TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Elyse Elconin Goldberg

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Jean Hanley

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Bill Hult

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Jessica Martens

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Doug Modlin

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Richard B Moss

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Arek Puzia

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Ahmet Uluer

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Siri Vaeth

    EXECUTIVE DIRECTOR

    Total calculated
    $111,488
    From this org
    $111,488
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
21 October 2024
IRS schema version
2023v5.1
Source object
202422969349301927

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