Totals
- Total revenue
- $1,722,681
- Total expenses
- $567,231
- Contributions and grants received
- $1,671,904
- Grants paid
- $0
- Program service revenue
- $0
- Investment income
- $50,777
- Other revenue
- $0
- Total assets, end of year
- $2,036,989
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $2,036,989
- Program services expenses (Part IX)
- $567,231
- Management and general expenses
- $0
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $567,231
Program services were 100.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$1,671,904
-
3 · Investment income
total $50,777 · related or exempt $50,777
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7d · Net gain or loss
total $0
-
8c · Net income from fundraising events
total $0
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $0
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $72,753 · program services $72,753
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $125,708 · program services $125,708
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $0
-
10 · Payroll taxes
total $17,116 · program services $17,116
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $4,350 · program services $4,350
-
11c · Fees: accounting
total $4,200 · program services $4,200
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $26,085 · program services $26,085
-
12 · Advertising and promotion
total $0
-
13 · Office expenses
total $391 · program services $391
-
14 · Information technology
total $0
-
15 · Royalties
total $0
-
16 · Occupancy
total $0
-
17 · Travel
total $0
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $51,599 · program services $51,599
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $0
-
23 · Insurance
total $770 · program services $770
-
24a · Other expenses: Discovery Research
total $238,538 · program services $238,538
-
24b · Other expenses: Disease & Support Expenses
total $13,200 · program services $13,200
-
24c · Other expenses: Board expenses
total $8,946 · program services $8,946
-
24d · Other expenses: Payroll processing fee
total $1,917 · program services $1,917
-
24e · All other expenses
total $1,658 · program services $1,658
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $125,706 · end of year $130,380
-
2 · Savings and temporary cash investments
beginning of year $755,833 · end of year $1,906,609
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
end of year $0
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
end of year $0
-
10c · Land, buildings and equipment, net
end of year $0
-
11 · Investments: publicly traded securities
end of year $0
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $0
-
15 · Other assets
end of year $0
-
27 · Net assets without donor restrictions
beginning of year $881,539 · end of year $2,036,989
Mission and programs · 2024
Mission
Myhre Syndrome Foundation is a Funding research and patient advocacy organization dedicated providing hope and improving the lives of those impacted by Myhre syndrome.
-
Research Assistant
Expenses $364,580
-
Patient Advocacy Support
Expenses $202,651
As filed on the 2024 return.
Listed in Part VII
-
Armelle pindon
Chief Scientific Officer
- Total calculated
- $120,000
- From this org
- $120,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Kate Wears
Executive Dir.
- Total calculated
- $64,921
- From this org
- $64,921
- From related orgs
- $0
- Other
- $0
- Hours/week
- 21
-
Justin Smith
Treasurer
- Total calculated
- $0
- Hours/week
- 5
-
Ines White
President
- Total calculated
- $0
- Hours/week
- 5
-
Don Clark
Vice President
- Total calculated
- $0
- Hours/week
- 3
-
Kathy Young
Director
- Total calculated
- $0
- Hours/week
- 3
-
Michelle Smith
Director
- Total calculated
- $0
- Hours/week
- 3
-
Betsy Cox
Director
- Total calculated
- $0
- Hours/week
- 3
-
Jessica Simkins
Director
- Total calculated
- $0
- Hours/week
- 3
-
Zac Burns
Director
- Total calculated
- $0
- Hours/week
- 10
-
Matthew Kantor
Director
- Total calculated
- $0
- Hours/week
- 3
-
Susan Murphy
Director
- Total calculated
- $0
- Hours/week
- 3
-
Mary Young
Director
- Total calculated
- $0
- Hours/week
- 3
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 13 November 2025
- IRS schema version
- 2024v5.2
- Source object
- 202543189349307834
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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