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← NATIONAL BREAST CANCER COALITION FUND

Form 990 for tax year 2022

Filed by NATIONAL BREAST CANCER COALITION FUND.

Totals

Total revenue
$4,538,715
Total expenses
$3,461,528
Contributions and grants received
$4,515,573
Grants paid
$304,686
Program service revenue
$137,560
Investment income
$19,782
Other revenue
-$134,200
Total assets, end of year
$5,965,372
Total liabilities, end of year
$177,782
Net assets or fund balances, end of year
$5,787,590
Program services expenses (Part IX)
$3,021,082
Management and general expenses
$194,076
Fundraising expenses
$246,370
Program service expenses (Part III)
$3,021,082

Program services were 87.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $66,084

  • 1c · Fundraising events

    $578,278

  • 1e · Government grants (contributions)

    $36,716

  • 1f · All other contributions, gifts and grants

    $3,834,495

  • 1g · Noncash contributions included above

    $28,714

  • 2a · Program service revenue: OTHER PROGRAM EVENTS

    total $73,294 · related or exempt $73,294

  • 2b · Program service revenue: ADVOCATE LEADERSHIP SUMMIT

    total $64,266 · related or exempt $64,266

  • 3 · Investment income

    total $21,999 · excluded $21,999

  • 7a · Gross sales of assets other than inventory

    securities $1,000,000

  • 7b · Less cost or other basis and sales expenses

    securities $1,002,217

  • 7c · Gain or loss

    securities -$2,217

  • 7d · Net gain or loss

    total -$2,217 · excluded -$2,217

  • 8a · Fundraising events: gross income

    $37,000

  • 8a · Fundraising events: contributions included on line 1c

    $578,278

  • 8b · Fundraising events: direct expenses

    $176,810

  • 8c · Net income from fundraising events

    total -$139,810 · excluded -$139,810

  • 11a · Other revenue: MISCELLANEOUS

    total $5,610 · related or exempt $5,610

  • 11e · Other revenue, total

    $5,610

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $285,000 · program services $285,000

  • 2 · Grants to domestic individuals

    total $19,686 · program services $19,686

  • 5 · Compensation of officers, directors and key employees

    total $349,962 · program services $300,859 · management and general $22,707 · fundraising $26,396

  • 7 · Other salaries and wages

    total $1,167,628 · program services $1,004,855 · management and general $77,006 · fundraising $85,767

  • 8 · Pension plan contributions

    total $34,409 · program services $28,395 · management and general $2,840 · fundraising $3,174

  • 9 · Other employee benefits

    total $107,902 · program services $92,969 · management and general $4,630 · fundraising $10,303

  • 10 · Payroll taxes

    total $112,487 · program services $96,813 · management and general $7,413 · fundraising $8,261

  • 11b · Fees: legal

    total $1,578 · program services $772 · management and general $806

  • 11c · Fees: accounting

    total $29,400 · management and general $29,400

  • 11g · Fees: other

    total $247,785 · program services $217,818 · management and general $3,874 · fundraising $26,093

  • 12 · Advertising and promotion

    total $3,033 · program services $1,705 · management and general $128 · fundraising $1,200

  • 13 · Office expenses

    total $179,776 · program services $82,735 · management and general $30,164 · fundraising $66,877

  • 14 · Information technology

    total $54,676 · program services $45,241 · management and general $3,674 · fundraising $5,761

  • 16 · Occupancy

    total $67,190 · program services $56,598 · management and general $2,460 · fundraising $8,132

  • 17 · Travel

    total $61,826 · program services $57,712 · management and general $4,108 · fundraising $6

  • 19 · Conferences, conventions and meetings

    total $698,372 · program services $695,709 · management and general $2,663

  • 22 · Depreciation, depletion and amortization

    total $30,953 · program services $25,604 · management and general $2,064 · fundraising $3,285

  • 23 · Insurance

    total $9,865 · program services $8,611 · management and general $139 · fundraising $1,115

  • 26 · Joint costs (an allocation of the lines above)

    total $25,600 · program services $16,145 · management and general $5,246 · fundraising $4,209

Balance sheet

Part X, book values.

  • 2 · Savings and temporary cash investments

    beginning of year $3,033,626 · end of year $1,310,862

  • 3 · Pledges and grants receivable

    beginning of year $1,465,157 · end of year $1,284,962

  • 4 · Accounts receivable

    beginning of year $17,331 · end of year $3,325

  • 9 · Prepaid expenses and deferred charges

    beginning of year $257,998 · end of year $178,046

  • 10a · Land, buildings and equipment: cost or other basis

    $307,620

  • 10b · Land, buildings and equipment: accumulated depreciation

    $285,968

  • 10c · Land, buildings and equipment, net

    beginning of year $51,726 · end of year $21,652

  • 11 · Investments: publicly traded securities

    beginning of year $0 · end of year $3,166,525

  • 15 · Other assets

    beginning of year $4,111 · end of year $0

  • 17 · Accounts payable and accrued expenses

    beginning of year $117,515 · end of year $146,641

  • 25 · Other liabilities

    beginning of year $0 · end of year $31,141

  • 27 · Net assets without donor restrictions

    beginning of year $3,199,364 · end of year $3,734,983

  • 28 · Net assets with donor restrictions

    beginning of year $1,513,070 · end of year $2,052,607

Mission and programs · 2022

Mission

NBCC'S MISSION IS "TO END BREAST CANCER THROUGH THE POWER OF ACTION AND ADVOCACY." NBCC IS MADE UP OF ACTIVISTS WHO SET A PROGRAMMATIC AND RESEARCH AGENDA TO END BREAST CANCER AND USE THE POWER OF ACTION AND ADVOCACY TO FIGHT THE BREAST CANCER STATUS QUO, OVERCOME BARRIERS TO TRUE PROGRESS IN SAVING LIVES, AND EMPOWER AND TRAIN SURVIVORS AND ADVOCATES TO BE LEADERS FOR THIS CAUSE.

Activities or mission (Part I)

NBCC'S MISSION IS "TO END BREAST CANCER THROUGH THE POWER OF ACTION AND ADVOCACY."

  • EDUCATION AND TRAINING - THE CENTER FOR NBCC ADVOCACY TRAINING SUPPLIES THE EDUCATION, TOOLS, TRAINING, AND ACTION THAT ENABLE BREAST CANCER SURVIVORS AND OTHER ADVOCATES TO UNDERSTAND COMPLEX MEDICAL AND SCIENTIFIC INFORMATION AND TO TAKE LEADERSHIP ROLES IN CLINICAL, SCIENTIFIC, FUNDING, AND POLICY DECISION-MAKING THAT AFFECT BREAST CANCER.THE ADVOCATE LEADERSHIP SUMMIT IS A THREE-DAY EDUCATIONAL AND STRATEGY-BUILDING SESSION TO TRAIN AND EMPOWER BREAST CANCER SURVIVORS AND OTHER ADVOCATES BY PROVIDING INFORMATION AND BACKGROUND ABOUT BREAST CANCER AS WELL AS THE TOOLS AND TACTICS NECESSARY TO TAKE A LEADERSHIP ROLE IN BREAST CANCER ADVOCACY.PROJECT LEAD, NBCC'S INNOVATIVE SCIENCE TRAINING COURSE, IS DESIGNED TO HELP BREAST CANCER ACTIVISTS INFLUENCE RESEARCH AND PUBLIC POLICY. AN INTENSIVE TWO-TO-SIX-DAY PROGRAM, PROJECT LEAD PREPARES ADVOCATES FOR PARTICIPATION IN THE WIDE RANGE OF FORUMS WHERE BREAST CANCER RESEARCH DECISIONS ARE MADE. PROJECT LEAD INCLUDES:- PROJECT LEAD INSTITUTE: ANNUAL INTENSIVE SIX-DAY COURSE IN CORE SCIENCE TRAINING FOR ADVOCATE LEADERS TO LEARN THE LANGUAGE AND CONCEPTS OF SCIENCE WITH A FOCUS ON THE BIOLOGY OF BREAST CANCER, GENETICS, EPIDEMIOLOGY, RESEARCH DESIGN, AND ADVOCACY.- ADVANCED PROJECT LEAD: ONGOING EDUCATIONAL AND TRAINING SESSIONS FOR ADVOCATES WHO EXCEL IN SCIENCE AND HAVE SUCCESSFULLY COMPLETED PROJECT LEAD FOCUSING ON ENHANCING CRITICAL THINKING AND RESEARCH SKILLS.- CONTINUING EDUCATION FOR PROJECT LEAD GRADUATES: CONTINUED SCIENTIFIC EDUCATION AND RESEARCH INVOLVEMENT, INCLUDING LEADGRADS ONLINE RESOURCES, ADVANCED TOPICS SESSIONS AT VARIOUS SCIENTIFIC MEETINGS, AND LEADCASTS - ONLINE WEBINARS WITH WELL-KNOWN RESEARCHERS.- ONLINE CENTER FOR ADVOCACY TRAINING: NBCC'S ESTEEMED TRAINING EXPERIENCES BROUGHT DIRECTLY TO ADVOCATES IN A CONVENIENT AND UNDERSTANDABLE DIGITAL FORMAT.- TEAM LEADER TRAINING: PREPARES GRASSROOTS LEADERS TO UNDERSTAND THE LEGISLATIVE PROCESS AND TO FORWARD NBCC'S ANNUAL PUBLIC POLICY AGENDA.

    Expenses $1,311,971 · Grants $19,286 · Revenue $64,266

  • CATALYTIC RESEARCH PROJECTS AND COLLABORATIONS - NBCC'S ARTEMIS PROJECT IS CENTERED AROUND STRATEGIC SUMMITS, CATALYTIC WORKSHOPS, AND COLLABORATIVE EFFORTS WITH A MULTI- DISCIPLINARY AND DIVERSE GROUP OF STAKEHOLDERS. THIS ADVOCATE-LED, INNOVATIVE APPROACH ALLOWS SCIENTISTS, INDUSTRY REPRESENTATIVES, AND REGULATORS TO WORK COLLABORATIVELY WITH ADVOCATES TO DEVELOP AND IMPLEMENT STRATEGIC RESEARCH PLANS THAT COULD HAVE A SIGNIFICANT IMPACT ON PRIMARY PREVENTION AND SAVING LIVES. PROJECTS INCLUDE:- ARTEMIS PROJECT FOR A PREVENTIVE BREAST CANCER VACCINE: A STRATEGIC PLAN FOR THE DEVELOPMENT OF A PREVENTIVE IN BREAST CANCER.- ARTEMIS PROJECT ON THE PREVENTIVE OF METASTASIS: DETERMINING THE PROCESS BY WHICH BREAST CANCER SPREADS AND BECOMES LETHAL, AND HOW TO INTERVENE TO STOP IT. - SEED GRANTS FOR RESEARCH: NBCC HAS AWARDED SEED GRANTS TO ALLOW SCIENTISTS TO BEGIN THE RESEARCH REQUIRED IN KEY AREAS IDENTIFIED IN THE COLLABORATIVE RESEARCH PLANS.CLINICAL TRIALS INITIATIVE - NBCC WORKS WITH INDUSTRY AND THE RESEARCH COMMUNITY ON CLINICAL TRIALS THAT MEET THE CRITERIA OF NBCC'S CLINICAL TRIAL PROJECT. WE INVOLVE BREAST CANCER ACTIVISTS IN ALL ASPECTS OF CLINICAL TRIAL DESIGN, IMPLEMENTATION, AND OVERSIGHT. WE WORK TO IMPROVE ACCESS TO QUALITY CLINICAL TRIALS AND, THUS, TREATMENT AND CARE FOR WOMEN WITH BREAST CANCER AND STRATEGIES FOR THOSE AT RISK.

    Expenses $726,906

  • PUBLIC POLICY - PUBLIC POLICY PLAYS A SIGNIFICANT ROLE IN ALL ASPECTS OF BREAST CANCER. NBCC FOCUSES ITS PUBLIC POLICY ADVOCACY ON PRIORITIES THAT WILL HAVE A MAJOR IMPACT ON ENDING BREAST CANCER, INCLUDING THOSE THAT WILL INCREASE FUNDING FOR MEANINGFUL BREAST CANCER RESEARCH, PROVIDE ACCESS TO HIGH-QUALITY HEALTH CARE AND CLINICAL TRIALS, AND EXPAND THE INFLUENCE OF BREAST CANCER ADVOCATES EVERYWHERE BREAST CANCER DECISIONS ARE MADE.NBCC HOSTS A SERIES OF CONGRESSIONAL FORUMS ON CAPITOL HILL DESIGNED TO EDUCATE POLICYMAKERS ON ISSUES VITAL TO THE BREAST CANCER COMMUNITY. NBCC PROVIDES MEMBERS OF CONGRESS AND THEIR STAFF UP-TO-DATE INFORMATION ABOUT BREAST CANCER AND REPORTS ON RESEARCH DISCOVERIES THAT AFFECT POLICY AND APPROPRIATIONS. NBCC LEADERSHIP OFTEN TESTIFIES BEFORE CONGRESSIONAL COMMITTEES ON SUBSTANTIVE BREAST CANCER ISSUES.

    Expenses $456,775 · Grants $285,000

  • GRASSROOTS ADVOCACY FIELD NETWORK DEVELOPMENT AND SUPPORT - NBCC PROVIDES RESOURCES AND SUPPORT TO MEMBER ORGANIZATIONS NATIONWIDE AND ENHANCES EDUCATION AND TRAINING AMONG DIVERSE POPULATIONS OF BREAST CANCER ACTIVISTS.ALL ORGANIZATION AND INDIVIDUAL MEMBERS OF NBCC'S NATIONAL ACTION NETWORK RECEIVE EMAIL ALERTS THROUGHOUT THE YEAR, USUALLY TWICE EACH MONTH, WITH IMPORTANT INFORMATION AND TIMELY ACTIONS FOR THEIR ADVOCACY. NBCC ALSO CONVENES REGULAR CONFERENCE CALLS AND WEBINARS FOR THE GRASSROOTS FIELD NETWORK TO PROVIDE INDIVIDUALIZED GUIDANCE, INFORMATIONAL MATERIALS, AND PEER-TO-PEER SUPPORT.

    Expenses $242,064

  • PUBLIC INFORMATION, COMMUNICATIONS, AND OUTREACH - NBCC HAS UNDERTAKEN AN EXPANSIVE EFFORT TO CHANGE THE CONVERSATION AROUND BREAST CANCER TO A DIALOGUE ABOUT KNOWING HOW TO END THE DISEASE.- BREAST CANCER INFORMATION CAMPAIGNS: THE NBCC WEBSITE AND PRINT AND ELECTRONIC COMMUNICATIONS HELP EDUCATE THE PUBLIC WITH FACTS ABOUT BREAST CANCER. NBCC'S EXPERT STAFF ANALYZE RESEARCH STUDIES AND MEDIA COVERAGE AND PRESENT THE TRUTH BEHIND THE NEWS.- GLOBAL INFLUENCE: THE NBCC EXECUTIVE TEAM, BOARD OF DIRECTORS, AND ADVOCATE LEADERSHIP REPRESENT THE BREAST CANCER COMMUNITY, ADVOCATING ON ITS BEHALF AND SERVING ON SCIENTIFIC, MEDICAL, AND RESEARCH BODIES AT THE NATIONAL AND INTERNATIONAL LEVELS.THROUGH ALL OF THESE PROGRAMS, NBCC SUPPORTS AND FACILITATES THE RESEARCH NEEDED TO END BREAST CANCER, GLOBAL ACCESS TO THE NECESSARY INFORMATION AND LIFESAVING INTERVENTIONS, AND THE INFLUENCE OF LEADERS EVERYWHERE IN THE STRATEGIES TO END BREAST CANCER.

    Expenses $262,789 · Grants $400

  • OTHER PROGRAMS - THROUGH THE CLINICAL TRIALS INITIATIVE, NBCC WORKS WITH THE RESEARCH COMMUNITY TO INVOLVE BREAST CANCER ACTIVISTS IN ALL ASPECTS OF CLINICAL TRIAL DESIGN, IMPLEMENTATION AND OVERSIGHT AND INCREASE THE NUMBER OF HIGH QUALITY TRIALS CONDUCTED. NBCC'S ACCLAIMED PUBLICATION, GUIDE TO QUALITY BREAST CANCER CARE, IS AVAILABLE FREE OF CHARGE ON THE NBCC WEBSITE. THE GUIDE PROVIDES INFORMATION FOR PATIENTS TO USE WHEN EVALUATING THE QUALITY OF THEIR HEALTH CARE AND DEVELOPING STRATEGIES FOR GETTING THE BEST CARE AVAILABLE.

    Expenses $20,577 · Revenue $78,904

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Liane Martins Lindner

    CHAIR

    Total calculated
    $0
    Hours/week
    1
  • Linda Rothweiler DMD

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    1
  • Ira Hillman

    TREASURER

    Total calculated
    $0
    Hours/week
    1
  • Christine K Norton

    SECRETARY

    Total calculated
    $0
    Hours/week
    1
  • Sherry Goldman Rnnpmsn

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Judi Hirschfield-Bartek Rnmsocn

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Dennis Slamon Mdphd

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Douglas Wall

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Alec Call

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Bryan Johns

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Ann Yahner

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Michele Rakoff

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Beth Emery

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1
  • Frances Visco

    PRESIDENT

    Total calculated
    $229,924
    From this org
    $183,557
    From related orgs
    $23,942
    Other
    $22,425
    Hours/week
    46 + 6 related

    Schedule J breakdown matched by us

    Base
    $183,557 + $23,942 related
    Bonus
    $0
    Other
    $0
    Deferred
    $5,507 + $718 related
    Nontaxable benefits
    $14,331 + $1,869 related
    Filer's total
    $203,395 + $26,529 related
  • Kristin Walega

    CHIEF OPERATING OFFICER

    Total calculated
    $62,132
    From this org
    $53,623
    From related orgs
    $2,822
    Other
    $5,687
    Hours/week
    38 + 2 related
  • Mara Walker

    CHIEF OPERATING OFFICER

    Total calculated
    $92,149
    From this org
    $80,053
    From related orgs
    $4,213
    Other
    $7,883
    Hours/week
    38 + 2 related
  • Michelle Tregear

    CHIEF PROGRAMS OFFICER

    Total calculated
    $176,267
    From this org
    $165,343
    From related orgs
    $4,240
    Other
    $6,684
    Hours/week
    39 + 1 related

    Schedule J breakdown matched by us

    Base
    $165,343 + $4,240 related
    Bonus
    $0
    Other
    $0
    Deferred
    $4,977 + $128 related
    Nontaxable benefits
    $1,540 + $39 related
    Filer's total
    $171,860 + $4,407 related
  • Melanie Wyne

    CHIEF POLICY OFFICER

    Total calculated
    $191,177
    From this org
    $140,699
    From related orgs
    $35,175
    Other
    $15,303
    Hours/week
    32 + 8 related

    Schedule J breakdown matched by us

    Base
    $140,699 + $35,175 related
    Bonus
    $0
    Other
    $0
    Deferred
    $4,221 + $1,055 related
    Nontaxable benefits
    $8,022 + $2,005 related
    Filer's total
    $152,942 + $38,235 related
  • Mary Dulaney

    CHIEF ADVANCEMENT OFFICER

    Total calculated
    $181,040
    From this org
    $157,474
    From related orgs
    $8,288
    Other
    $15,278
    Hours/week
    38 + 2 related

    Schedule J breakdown matched by us

    Base
    $157,474 + $8,288 related
    Bonus
    $0
    Other
    $0
    Deferred
    $4,988 + $263 related
    Nontaxable benefits
    $9,526 + $501 related
    Filer's total
    $171,988 + $9,052 related
  • Michelle Wheeler

    DIRECTOR OF EXECUTIVE OFFICE

    Total calculated
    $122,301
    From this org
    $104,166
    From related orgs
    $5,482
    Other
    $12,653
    Hours/week
    38 + 2 related

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 1a · First-class or charter travel
  • 1b · Written policy on the line-1a expenses
  • 2 · Substantiation required before reimbursing expenses
  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2022
Filed
14 November 2023
IRS schema version
2022v5.0
Source object
202313189349316161

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