Form 990 for tax year 2022

Totals

Total revenue

$653,851

Total expenses

$683,626

Contributions and grants received

$1,351

Grants paid

$26,000

Program service revenue

$652,500

Investment income

$0

Other revenue

$0

Total assets, end of year

$0

Total liabilities, end of year

$0

Net assets or fund balances, end of year

$0

Program services expenses (Part IX)

$588,546

Management and general expenses

$95,080

Fundraising expenses

$0

Program service expenses (Part III)

$588,546

Program services were 86.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2022

• PULMONARY HYPERTENSION CARE CENTERS (PHCC ACCREDITATION): THE PULMONARY HYPERTENSION ASSOCIATION (PHA) ESTABLISHED ITS PH CARE CENTERS (PHCC) PROGRAM TO ACCREDIT CENTERS NATIONWIDE WITH SPECIAL EXPERTISE IN TREATING PULMONARY HYPERTENSION (PH), PARTICULARLY PULMONARY ARTERIAL HYPERTENSION (PAH), TO RAISE THE OVERALL QUALITY OF CARE AND OUTCOMES IN PATIENTS WITH THIS INCURABLE, PROGRESSIVE, LIFE-THREATENING RARE DISEASE. ESTABLISHED IN 2011, THE PHCC PROGRAM HAS ACCREDITED TWO TYPES OF CENTERS. CENTERS OF COMPREHENSIVE CARE (CCC) AND REGIONAL CLINICAL PROGRAMS (RCP). BOTH PHCC-ACCREDITED CCC'S AND RCP'S HAVE DEMONSTRATED A COMMITMENT TO ROVIDING EXPERT-LEVEL CARE BASED ON THE PULMONARY HYPERTENSION DIAGNOSIS AND TREATMENT CONSENSUS GUIDELINES. AT THE END OF 2022, THERE WERE 82 ACCREDITED CENTERS NATIONWIDE.

  Expenses $389,968 · Grants $26,000 · Revenue $302,500

• PULMONARY HYPERTENSION ASSOCIATION REGISTRY (PHAR): ACCREDITED PHCC'S HAVE AN OPPORTUNITY TO PARTICIPATE IN PHAR AS BOTH A QUALITY IMPROVEMENT PROCESS AND A RESEARCH ACTIVITY. A PATIENT REGISTRY IS AN ORGANIZED SYSTEM THAT COLLECTS DATA TO EVALUATE CERTAIN OUTCOMES FOR A POPULATION OF PEOPLE WITH A MEDICAL CONDITION AND IS A USEFUL TOOL FOR QUALITY IMPROVEMENT OF CARE AND FOR RESEARCH OF RARE DISEASES SUCH AS PH. PHAR COLLECTS DATA FROM WHO GROUP 1 PH (PULMONARY ARTERIAL HYPERTENSIONPAH) AND WHO GROUP 4 PH (CHRONIC THROMBOEMBOLIC PULMONARY HYPERTENSIONCTEPH) WHO ARE STARTING EVALUATION AND/OR TREATMENT AT AN ACCREDITED PHCC. DATA IS COLLECTED IN CONJUNCTION WITH ROUTINE PH CARE TEAM VISITS APPROXIMATELY EVERY 3-6 MONTHS. AT THE END OF 2022, THERE WERE 68 CENTERS PARTICIPATING AND 12,323 PATIENTS EVER ENROLLED IN PHAR.

  Expenses $198,578 · Revenue $350,000

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

• PULMONARY HYPERTENSION ASSOCIATION INC

  501(C)(3) · EXTEND AND IMPROVE THE LIVES OF THOSE WITH PULMONARY HYPERTENSION · FL

Assets distributed on this return

Schedule N, as filed: what the organization did with its assets when it liquidated or dissolved, or disposed of more than a quarter of them, and who received them. A recipient with an EIN is usually a successor organization; filers also list expenses such as legal fees here.

• PULMONARY HYPERTENSION ASSOCIATION

  $184,396

  Liquidation · DISSOLUTION - TRANSFER OF NET ASSETS (DEFICIT) TO PULMONARY HYPERTENSION ASSOCIATION. · Dec 31, 2022 · 501(C)(3)

Provenance

Return type

form_990

Tax year

2022

Filed

13 November 2023

IRS schema version

2022v5.0

Source object

202313179349309596

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.