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← THE IGA NEPHROPATHY FOUNDATION OF AMERICA INC

Form 990 for tax year 2022

Filed by THE IGA NEPHROPATHY FOUNDATION OF AMERICA INC.

What the amendment changed

Compared with the return it replaced , filed 9 November 2023. matched by us Only the return's totals, a 990-PF's accounting method and the names listed in Part VII (Part VIII on a 990-PF) are compared. We relate returns by organization, tax year and form, and order them by each return's own timestamp; the filer's own "amended return" checkbox is a separate fact.

Total revenue
$1,466,953 changed to $1,466,952
Total expenses
$1,193,514 changed to $1,261,962
Grants paid
$59,050 changed to $100,000
Program service revenue
$1,197,825 changed to $1,197,824
Total assets, end of year
$710,704 changed to $710,705
Total liabilities, end of year
$3,959 changed to $89,908
Net assets or fund balances, end of year
$706,745 changed to $620,797
Program services expenses
$1,001,695 changed to $859,174
Management and general expenses
$139,240 changed to $137,438
Fundraising expenses
$52,579 changed to $265,350
Program service expenses (Part III)
$1,001,695 changed to $859,174

Totals

Total revenue
$1,466,952
Total expenses
$1,261,962
Contributions and grants received
$269,128
Grants paid
$100,000
Program service revenue
$1,197,824
Investment income
$0
Other revenue
$0
Total assets, end of year
$710,705
Total liabilities, end of year
$89,908
Net assets or fund balances, end of year
$620,797
Program services expenses (Part IX)
$859,174
Management and general expenses
$137,438
Fundraising expenses
$265,350
Program service expenses (Part III)
$859,174

Program services were 68.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $269,128

  • 2a · Program service revenue: PROGRAM SERVICE REVENU

    total $1,197,824 · related or exempt $1,197,824

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $100,000 · program services $100,000

  • 5 · Compensation of officers, directors and key employees

    total $70,000 · program services $56,000 · management and general $7,000 · fundraising $7,000

  • 7 · Other salaries and wages

    total $83,600 · program services $47,214 · management and general $28,026 · fundraising $8,360

  • 10 · Payroll taxes

    total $15,111 · program services $9,822 · management and general $3,778 · fundraising $1,511

  • 11b · Fees: legal

    total $1,679 · management and general $1,679

  • 11c · Fees: accounting

    total $1,240 · management and general $1,240

  • 11g · Fees: other

    total $655,531 · program services $586,996 · management and general $26,704 · fundraising $41,831

  • 12 · Advertising and promotion

    total $38,771 · fundraising $38,771

  • 14 · Information technology

    total $14,046 · management and general $11,459 · fundraising $2,587

  • 16 · Occupancy

    total $42,408 · program services $3,685 · management and general $33,027 · fundraising $5,696

  • 19 · Conferences, conventions and meetings

    total $161,186 · program services $9,991 · management and general $6,924 · fundraising $144,271

  • 23 · Insurance

    total $1,128 · management and general $1,128

  • 24a · Other expenses: PATIENT EDUCATION

    total $43,986 · program services $39,635 · fundraising $4,351

  • 24b · Other expenses: OTHER COSTS

    total $18,395 · program services $2,737 · management and general $14,581 · fundraising $1,077

  • 24c · Other expenses: PRODUCTION

    total $13,817 · program services $3,094 · management and general $828 · fundraising $9,895

  • 24d · Other expenses: DUES & SUBSCRIPTIONS

    total $1,064 · management and general $1,064

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $435,197 · end of year $510,705

  • 2 · Savings and temporary cash investments

    end of year $200,000

  • 17 · Accounts payable and accrued expenses

    end of year $89,908

  • 28 · Net assets with donor restrictions

    beginning of year $435,197 · end of year $620,797

Mission and programs · 2022

Mission

THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT. AS A PATIENT RUN ORGANIZATION, WE WORK TOGETHER WITH THE HOPE OF FINDING BETTER TREATMENT OPTIONS AND ULTIMATE CARE.

Activities or mission (Part I)

THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT.

  • SPARK IS A 2 DAY IN PERSON PATIENT CONFERENCE HELD IN NASHVILLE, TN ATTENDED BY 190 PATIENTS AND FAMILY MEMBERS. THE EVENT IS HELD TO EDUCATE PATIENTS AND CREATE A NETWORK FOR PATIENTS.

    Expenses $229,187 · Revenue $233,685

  • EDUCATION AND ADVOCACYTHE FOUNDATION PROVIDES SUPPORT AND EDUCATIONAL RESOURCES TO PATIENTS AND THEIR FAMILIES WHO ARE HANDLING IGA NEPHROPATHY.

    Expenses $529,987 · Revenue $964,139

  • RESEARCH GRANTS

    Expenses $100,000 · Grants $100,000

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Bonnie Schneider

    EXECUTIVE DIRECTOR

    Total calculated
    $70,000
    From this org
    $70,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    35
  • Leonard Erlanger

    PRESIDENT

    Total calculated
    $0
    Hours/week
    5
  • Brian Parlato

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    5
  • Mary Kate Schneider

    SECRETARY

    Total calculated
    $0
    Hours/week
    5
  • Susan Smith

    TREASURER

    Total calculated
    $0
    Hours/week
    5
  • Jody Morse

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Margaret K Warner

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Julie Scroggins

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Michael Warner

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Edward Schneider

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
1 March 2024
IRS schema version
2022v5.0
Source object
202420789349301402

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