Form 990 for tax year 2022

Totals

Total revenue

$10,245,280

Total expenses

$9,211,692

Contributions and grants received

$10,242,961

Grants paid

$1,388,434

Program service revenue

$0

Investment income

$2,319

Other revenue

$0

Total assets, end of year

$13,316,104

Total liabilities, end of year

$1,645,251

Net assets or fund balances, end of year

$11,670,853

Program services expenses (Part IX)

$7,634,183

Management and general expenses

$739,993

Fundraising expenses

$837,516

Program service expenses (Part III)

$7,634,183

Program services were 82.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2022

• Our mission critical program priorities include care services, research, and advocacy. These programs are provided to people with ALS and their families at no charge. Our accomplishments for fiscal year ending 1/31/23 are as follows:Care Management -Strategically based in and near patients' home communities, the Chapter's Care Managers (CMs) work directly with persons with ALS and their families and serve as part of the treatment team in collaboration with clinicians from Certified Centers and affiliated clinics. Among other things, CMs provide critical information and referrals to patients and families, help patients obtain medical and communication-related equipment, connect them with essential resources, advocate for the uninsured, explain medical directives, and offer psychosocial support. This program is available throughout the 31 counties we serve in the state of California and the state of Hawaii. This program provided service to 1,912 persons with ALS. Service was available for 365 days.

  Expenses $4,428,277 · Grants $1,388,434

• Community Outreach & Awareness/Public Policy -Community outreach events, including our Walks to Defeat ALS, are opportunities to bring hope and a sense of community to persons with ALS and their families. By coming together to share their stories,patients and their families, as well as those who have lost loved ones to ALS, find strength and support with one another. Walks to Defeat ALS create an environment of empowerment where families and friends of persons with ALS are given an opportunity to affect public policy by signing petitions that are sent to the legislators representing their districts. Walks also bring awareness to local communities of those fighting ALS and of the support available to them through The ALS Association Golden West Chapter.The Golden West Chapter's Public Policy and Leadership Development program is intended to increase understanding, education and awareness of the devastating impact of ALS and the role that Golden West plays in achieving the three core components of our mission; care services for patients and families, global research for treatments and cures, and important Public Policy initiatives. Through these efforts, we engage volunteers in the communities we serve and give them theopportunity to participate in advancing the activity of the organization and the achievement of our mission priorities.This program also encompasses the California ALS Research Summit, an annual gathering of researchers, investigators, clinicians, biotech companies, government representatives and patient advocates in ALS and related fields in the State of California. The purpose of the Summit is to help increase, expedite and promote the amount and level of amyotrophic lateral sclerosis and related research done in California; and to foster networking, collaboration and cooperation among investigators, their peers and their colleagues to identify, develop and deliver new and effective treatments, ideas and, ultimately, cures.

  Expenses $1,413,831

• ALS Clinic Support -The Golden West Chapter is committed to making sure that people living with ALS have access to specialized care that is based on best practices. Proven by research to help people with ALS live longer and better lives, access to multidisciplinary clinics is one of the cornerstones of the Golden West Chapter's wraparound model of care. Chapter care services staff members are embedded in each clinic, where they act as key members of the multidisciplinary team and provide comprehensive support to persons with ALS and their family members/caregivers. This model of care brings together a team of health care professionals specially trained to address the needs of people living with ALS, allowing them to receive care from each discipline during a single visit. The care team typically includes a neurologist, physical therapist, occupational therapist, respiratory therapist, nurse, dietitian, speech language pathologist, social worker, mental health professional, and Golden West Chapter chapter liaison. The ALS clinics supported by the Golden West Chapter provide compassionate care in a supportive, family-oriented atmosphere. In addition to supporting established clinics, the Golden West Chapter supports and promotes satellite clinics that improve access to critically needed services provided within this proven multidisciplinary, wraparound model of care.

  Expenses $1,249,636

• National ALS Association -As one of many chapters affiliated with The ALS Association, the Golden West Chapter provides ongoing financial support to The ALS Association national office to support federal public policy initiatives to improve the lives of patients and families living with ALS, as well as global cutting-edge research projects in search of ALS treatments and cures.

  Expenses $542,439

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• ALS Association Greater Sacramento Chapter

  $216,336

  To support a wraparound model of care

• ALS Association Greater San Diego Chapter

  $198,164

  To support a wraparound model of care

• ALS Association Orange County Chapter

  $173,934

  To support a wraparound model of care

• Regents of the University of California Irvine

  $100,000

  To support a wraparound model of care

• Faculty Physicians & Surgeons of LLUSM

  $100,000

  To support a wraparound model of care

• Regents of the University of California Department of Neurosciences

  $100,000

  To support a wraparound model of care

• UC Davis Multidisciplinary ALS Clinic

  $100,000

  To support a wraparound model of care

• Cedar-Sinai Medical Center

  $100,000

  To support a wraparound model of care

• Forbes Norris ALS Research Center

  $100,000

  To support a wraparound model of care

• Regents of the University of California San Francisco

  $100,000

  To support a wraparound model of care

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type

form_990

Tax year

2022

Filed

14 December 2023

IRS schema version

2022v5.0

Source object

202323489349300837

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