Form 990 for tax year 2023

Totals

Total revenue

$397,502

Total expenses

$279,607

Contributions and grants received

$397,502

Grants paid

$0

Program service revenue

$0

Investment income

$0

Other revenue

$0

Total assets, end of year

$120,320

Total liabilities, end of year

$8,236

Net assets or fund balances, end of year

$112,084

Program services expenses (Part IX)

$133,175

Management and general expenses

$95,989

Fundraising expenses

$50,443

Program service expenses (Part III)

$133,175

Program services were 47.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2023

• TO ESTABLISH STANDARDS AND ENSURE CONSISTENCY ACROSS DIVERSE INDIVIDUALIZED TREATMENT PROGRAMS WORLDWIDE. SPECIFIC EXAMPLE ACCOMPLISHMENT: BEST PRACTICES HAVE BEEN DISSEMINATED THROUGH COLLABORATIVE EFFORTS, INCLUDING WORKGROUPS, SEMINARS, PEER-REVIEWED PUBLICATIONS, AND IN-PERSON MEETINGS. THIS EXCHANGE OF KNOWLEDGE HAS DIRECTLY BENEFITTED OUR COMMUNITY OF 500 MEMBERS, COMPRISING ACADEMIC RESEARCHERS, CLINICIANS, PATIENTS, AND INDUSTRY STAKEHOLDERS. ADDITIONALLY, NON-MEMBERS SEEKING EDUCATIONAL RESOURCES FOR INDIVIDUALIZED MEDICINES CAN FREELY ACCESS THE INFORMATION.

  Expenses $59,929

• TO AGGREGATE AND DISSEMINATE PRECLINICAL AND CLINICAL DATA TO ENHANCE THE SAFETY AND EFFICACY OF INDIVIDUALIZED TREATMENTS AND SUPPORT REGULATORY DECISION-MAKING. SPECIFIC EXAMPLE: INITIATED PILOT PROJECTS TO ESTABLISH PRECLINICAL AND CLINICAL DATABASES, AIMING TO IDENTIFY THE MINIMUM VIABLE STRUCTURE REQUIRED FOR SUCH DATABASES. THIS ENDEAVOR ALLOWED US TO GAIN INSIGHTS INTO THE TECHNICAL, REGULATORY AND LEGAL FRAMEWORKS ESSENTIAL FOR SUPPORTING THESE DATABASES. APPROXIMATELY THIRTY PEOPLE DIRECTLY BENEFITED FROM THE PILOT PROJECTS, WITH A SIGNIFICANT NUMBER OF INDIRECT BENEFICIARIES ANTICIPATED ONCE THE PILOT IS EXPANDED TO THE PUBLIC.

  Expenses $59,929

• TO FACILITATE CONNECTIONS AND COLLABORATION AMONG STAKEHOLDERS INVOLVED IN THE DEVELOPMENT OF INDIVIDUALIZED MEDICINES VIA A COLLABORATIVE PLATFORM WHERE STAKEHOLDERS OFFERING GOODS, SERVICES, REFERRALS, AND SUPPORT CAN CONNECT WITH THOSE SEEKING THEM, THEREBY FOSTERING IMPROVED COMMUNICATION AND ADVANCEMENT WITHIN THE FIELD. SPECIFIC EXAMPLE ACCOMPLISHMENT: VALIDATED THE NECESSITY FOR THE DESCRIBED PLATFORM, INITIATED THE FORMULATION OF PROJECT SCOPES, ENGAGED IN DISCUSSIONS WITH KEY STAKEHOLDERS, AND BEGAN DEVELOPING INITIAL RESOURCES. APPROXIMATELY 20 PEOPLE DIRECTLY BENEFITED FROM INITIAL SCOPING ACTIVITIES, WITH A SIGNIFICANT NUMBER OF DIRECT AND INDIRECT BENEFICIARIES ANTICIPATED AS THE PROJECT DEVELOPS FURTHER.

  Expenses $13,317

As filed on the 2023 return.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type

form_990

Tax year

2023

Filed

19 July 2024

IRS schema version

2023v5.0

Source object

202412399349301321

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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