Totals
- Total revenue
- $4,438,510
- Total expenses
- $2,003,149
- Contributions and grants received
- $4,397,214
- Grants paid
- $2,500
- Program service revenue
- $0
- Investment income
- $47,166
- Other revenue
- -$5,870
- Total assets, end of year
- $5,973,877
- Total liabilities, end of year
- $2,517,905
- Net assets or fund balances, end of year
- $3,455,972
- Program services expenses (Part IX)
- $1,754,491
- Management and general expenses
- $142,276
- Fundraising expenses
- $106,382
- Program service expenses (Part III)
- $1,754,491
Program services were 87.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$560,766
-
1e · Government grants (contributions)
$1,652,002
-
1f · All other contributions, gifts and grants
$2,184,446
-
3 · Investment income
total $47,166 · excluded $47,166
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6a · Gross rents
real property $461,311
-
6b · Less rental expenses
real property $544,185
-
6c · Rental income or loss
real property -$82,874
-
6d · Net rental income or loss
total -$82,874 · unrelated business -$82,874
-
7d · Net gain or loss
total $0
-
8a · Fundraising events: gross income
$228,570
-
8a · Fundraising events: contributions included on line 1c
$560,766
-
8b · Fundraising events: direct expenses
$212,165
-
8c · Net income from fundraising events
total $16,405 · excluded $16,405
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11a · Other revenue: OTHER REVENUE
total $60,599 · related or exempt $60,599
-
11e · Other revenue, total
$60,599
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $2,500 · program services $2,500
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $236,057 · program services $205,246 · management and general $11,362 · fundraising $19,449
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $84,032 · program services $73,064 · management and general $4,045 · fundraising $6,923
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $10,282 · program services $7,731 · management and general $2,551
-
10 · Payroll taxes
total $26,681 · program services $22,767 · management and general $1,787 · fundraising $2,127
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $52,333 · program services $49,439 · management and general $2,894
-
11c · Fees: accounting
total $43,857 · program services $2,267 · management and general $41,590
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $19,445 · program services $6,040 · management and general $13,300 · fundraising $105
-
12 · Advertising and promotion
total $107,853 · program services $101,355 · management and general $658 · fundraising $5,840
-
13 · Office expenses
total $25,243 · program services $5,913 · management and general $7,030 · fundraising $12,300
-
14 · Information technology
total $0
-
15 · Royalties
total $0
-
16 · Occupancy
total $249,986 · program services $224,987 · management and general $24,999
-
17 · Travel
total $26,679 · program services $19,895 · management and general $1,758 · fundraising $5,026
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $0
-
20 · Interest
total $77,560 · program services $69,804 · management and general $7,756
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $651 · management and general $651
-
23 · Insurance
total $13,912 · program services $6,246 · management and general $7,666
-
24a · Other expenses: RESEARCH & DEVELOPMENT
total $1,369,117 · program services $1,369,117
-
24b · Other expenses: PROPERTY TAXES
total $47,847 · program services $43,062 · management and general $4,785
-
24c · Other expenses: RECRUITMENT
total $45,688 · program services $490 · management and general $18,000 · fundraising $27,198
-
24d · Other expenses: BANK FEES
total $31,562 · program services $416 · management and general $3,732 · fundraising $27,414
-
24e · All other expenses
total -$468,136 · program services -$455,848 · management and general -$12,288
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $42,786 · end of year $140,463
-
2 · Savings and temporary cash investments
beginning of year $350,573 · end of year $1,412,422
-
3 · Pledges and grants receivable
end of year $345,468
-
4 · Accounts receivable
beginning of year $58,102 · end of year $5,250
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $38,812 · end of year $101,310
-
10a · Land, buildings and equipment: cost or other basis
$2,171,405
-
10b · Land, buildings and equipment: accumulated depreciation
$93,373
-
10c · Land, buildings and equipment, net
beginning of year $2,111,098 · end of year $2,078,032
-
11 · Investments: publicly traded securities
beginning of year $314,779 · end of year $89,536
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
beginning of year $5,443 · end of year $5,217
-
15 · Other assets
beginning of year $355,974 · end of year $1,796,179
-
17 · Accounts payable and accrued expenses
beginning of year $322,460 · end of year $269,189
-
19 · Deferred revenue
beginning of year $88,801 · end of year $391,123
-
22 · Loans and payables to officers and key people
beginning of year $350,000 · end of year $338,887
-
23 · Secured mortgages and notes payable
beginning of year $1,476,508 · end of year $1,443,824
-
24 · Unsecured notes and loans payable
end of year $46,025
-
25 · Other liabilities
beginning of year $18,037 · end of year $28,857
-
27 · Net assets without donor restrictions
beginning of year $965,954 · end of year $3,122,498
-
28 · Net assets with donor restrictions
beginning of year $55,807 · end of year $333,474
Mission and programs · 2023
Mission
OUR MISSION IS TO ENABLE AND FINANCE THE DEVELOPMENT OF LIFE-SAVING GENETIC MEDICINES FOR ULTRA-RARE PATIENT POPULATIONS PREVIOUSLY DEEMED TOO RARE TO TREAT. TO REALIZE THIS, OUR UNIQUE ECOSYSTEMS FACILITATES COLLABORATION BETWEEN WORLD-RENOWNED RESEARCHERS AND CLINICIANS, POLICY EXPERTS AND OUR GENEROUS DONORS. TOGETHER, WE ARE FUNDAMENTALLY CHANGING THE ULTRA-RARE DISEASE EXPERIENCE AND BURDEN FOR MILLIONS OFPEOPLE AROUND THE WORLD WITH OUR DISCOVERIES AND METHODS - WHILE BRINGING HOPE TO PATIENTS WAITING FOR A CURE.
-
TO ADVANCE THE DEVELOPMENT OF ULTRA-RARE DISEASE THERAPEUTICS.
Expenses $1,754,491 · Grants $2,500
As filed on the 2023 return.
Listed in Part VII
-
Richard HorganRICHARD HORGAN
FOUNDER & CEO
- Total calculated
- $174,441
- From this org
- $164,275
- From related orgs
- $0
- Other
- $10,166
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $164,275
- Bonus
- not reported
- Other
- not reported
- Deferred
- not reported
- Nontaxable benefits
- $10,166
- Filer's total
- $174,441
-
Brent WarnerBRENT WARNER
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Mark SmithMARK SMITH
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Kwesi AcquayKWESI ACQUAY
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Stephanie HerzogSTEPHANIE HERZOG
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Mike WilliamsMIKE WILLIAMS
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Jeremy SternbergJEREMY STERNBERG
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Jessica CurranJESSICA CURRAN
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Klaus VeitingerKLAUS VEITINGER
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Greg KlassenGREG KLASSEN
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Cody TranbargerCODY TRANBARGER
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Alexandra UrmanALEXANDRA URMAN
MEMBER
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
None.
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
No itemized grants to organizations on this return.
Taxable family on this return
Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.
Disregarded entities
Part I: entities that legally are the filer and file no return of their own.
-
FOUR RESEARCH LLC
NONRESIDENTIAL REAL ESTATE · CT · income $1,328,890 · assets $3,882,969
Directly controlled by CURE RARE DISEASE
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 4 June 2025
- IRS schema version
- 2023v6.0
- Source object
- 202541559349300334
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