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Nonprofiteer
← NATIONAL BRAIN TUMOR SOCIETY INC

Form 990 for tax year 2025

Filed by NATIONAL BRAIN TUMOR SOCIETY INC.

Totals

Total revenue
$15,062,192
Total expenses
$13,397,744
Contributions and grants received
$14,551,548
Grants paid
$2,502,000
Program service revenue
$0
Investment income
$508,507
Other revenue
$2,137
Total assets, end of year
$19,726,326
Total liabilities, end of year
$1,126,361
Net assets or fund balances, end of year
$18,599,965
Program services expenses (Part IX)
$11,315,207
Management and general expenses
$1,001,514
Fundraising expenses
$1,081,023
Program service expenses (Part III)
$11,315,207

Program services were 84.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $14,551,548

  • 1g · Noncash contributions included above

    $715,615

  • 3 · Investment income

    total $487,375 · excluded $487,375

  • 7a · Gross sales of assets other than inventory

    securities $21,132

  • 7b · Less cost or other basis and sales expenses

    securities $0

  • 7c · Gain or loss

    securities $21,132

  • 7d · Net gain or loss

    total $21,132 · excluded $21,132

  • 11a · Other revenue: OTHER INCOME

    total $2,137 · excluded $2,137

  • 11e · Other revenue, total

    $2,137

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $2,275,000 · program services $2,275,000

  • 2 · Grants to domestic individuals

    total $27,000 · program services $27,000

  • 3 · Grants to foreign organizations and individuals

    total $200,000 · program services $200,000

  • 5 · Compensation of officers, directors and key employees

    total $1,059,993 · program services $708,636 · management and general $55,856 · fundraising $295,501

  • 7 · Other salaries and wages

    total $4,526,002 · program services $3,668,058 · management and general $427,252 · fundraising $430,692

  • 8 · Pension plan contributions

    total $107,277 · program services $87,232 · management and general $10,287 · fundraising $9,758

  • 9 · Other employee benefits

    total $383,143 · program services $320,835 · management and general $39,235 · fundraising $23,073

  • 10 · Payroll taxes

    total $405,256 · program services $318,736 · management and general $35,498 · fundraising $51,022

  • 11b · Fees: legal

    total $21,667 · management and general $21,667

  • 11c · Fees: accounting

    total $51,400 · management and general $51,400

  • 11d · Fees: lobbying

    total $383,289 · program services $383,289

  • 11f · Fees: investment management

    total $33,360 · management and general $33,360

  • 11g · Fees: other

    total $338,080 · program services $315,546 · management and general $3,689 · fundraising $18,845

  • 12 · Advertising and promotion

    total $341,359 · program services $321,690 · fundraising $19,669

  • 13 · Office expenses

    total $69,764 · program services $37,113 · management and general $27,858 · fundraising $4,793

  • 14 · Information technology

    total $549,242 · program services $388,409 · management and general $70,790 · fundraising $90,043

  • 16 · Occupancy

    total $135,089 · program services $69,392 · management and general $46,426 · fundraising $19,271

  • 17 · Travel

    total $354,313 · program services $299,812 · management and general $44,795 · fundraising $9,706

  • 22 · Depreciation, depletion and amortization

    total $78,016 · program services $66,525 · management and general $2,977 · fundraising $8,514

  • 23 · Insurance

    total $40,391 · program services $23,180 · management and general $11,474 · fundraising $5,737

  • 24a · Other expenses: SPECIAL EVENTS

    total $1,893,826 · program services $1,735,624 · management and general $67,530 · fundraising $90,672

  • 24b · Other expenses: TRAINING AND RECRUITING

    total $40,476 · program services $9,327 · management and general $30,406 · fundraising $743

  • 24c · Other expenses: DUES AND SUBSCRIPTIONS

    total $37,620 · program services $33,122 · management and general $1,514 · fundraising $2,984

  • 24d · Other expenses: DONATED GOODS

    total $26,681 · program services $26,681

  • 24e · All other expenses

    total $19,500 · management and general $19,500

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $738,571 · end of year $1,121,103

  • 2 · Savings and temporary cash investments

    beginning of year $7,613,041 · end of year $8,598,252

  • 3 · Pledges and grants receivable

    beginning of year $343,000 · end of year $164,700

  • 7 · Other notes and loans receivable

    beginning of year $690,647 · end of year $397,438

  • 9 · Prepaid expenses and deferred charges

    beginning of year $321,815 · end of year $313,467

  • 10a · Land, buildings and equipment: cost or other basis

    $248,875

  • 10b · Land, buildings and equipment: accumulated depreciation

    $234,971

  • 10c · Land, buildings and equipment, net

    beginning of year $74,556 · end of year $13,904

  • 11 · Investments: publicly traded securities

    beginning of year $6,400,510 · end of year $7,618,494

  • 12 · Investments: other securities

    beginning of year $650,014 · end of year $1,092,026

  • 14 · Intangible assets

    beginning of year $34,728 · end of year $17,364

  • 15 · Other assets

    beginning of year $143,588 · end of year $389,578

  • 17 · Accounts payable and accrued expenses

    beginning of year $509,434 · end of year $434,925

  • 18 · Grants payable

    beginning of year $250,000 · end of year $300,000

  • 25 · Other liabilities

    beginning of year $153,388 · end of year $391,436

  • 27 · Net assets without donor restrictions

    beginning of year $10,577,674 · end of year $12,152,018

  • 28 · Net assets with donor restrictions

    beginning of year $5,519,974 · end of year $6,447,947

Mission and programs · 2025

Mission

NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, ANDUNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS,AND ADVOCATE FOR PATIENTS AND CARE PARTNERS.

  • OUR DEFEAT STRATEGY DRIVES AND INFLUENCES BEST-IN-CLASS MEDICAL RESEARCH TO DEVELOP AND DELIVER NEW INNOVATIVE TREATMENTS AND POTENTIAL CURES TO PATIENTS WITH BRAIN TUMORS AS QUICKLY AS POSSIBLE. PATIENTS AND CAREGIVERS ARE OUR PRIORITY. WE FOCUS ON GROUNDBREAKING RESEARCH INITIATIVES WITH THE POTENTIAL TO TRANSLATE PROMISING SCIENCE FROM THE LAB INTO TREATMENTS THAT IMPROVE SURVIVAL AND QUALITY OF LIFE. WE'RE ACCELERATING BREAKTHROUGHS THAT WILL HAVE A PROFOUND IMPACT ON THE BRAIN TUMOR COMMUNITY. OUR RESEARCH INITIATIVES ADVANCE TREATMENTS FOR PATIENTS OF ALL AGES ACROSS BRAIN TUMOR TYPES. WE INCENTIVIZE AND FACILITATE COLLABORATION BETWEEN PHARMACEUTICAL COMPANIES, INVESTORS, AND WORLD-CLASS SCIENTISTS TO GET RESULTS FOR PATIENTS.

    Expenses $5,541,233 · Grants $2,502,000

  • OUR CONNECT STRATEGY CONVENES, EDUCATES, AND UNITES THE BRAIN TUMOR COMMUNITY. WE BRING STAKEHOLDERS TOGETHER, TO ADDRESS BARRIERS TO THE DEVELOPMENT OF NEW TREATMENTS AND BETTER HEALTH CARE. NBTS LEADS SEVERAL NATIONAL AWARENESS CAMPAIGNS TO EDUCATE THE PUBLIC ABOUT BRAIN TUMORS AND THE IMPORTANCE OF REDUCING THE BURDEN OF THEM. WE EQUIP PATIENTS AND CARE PARTNERS WITH TOOLS AND RESOURCES TO NAVIGATE EVERY STEP OF THEIR UNIQUE HEALTH CARE JOURNEYFROM UNDERSTANDING THEIR DIAGNOSIS AND BUILDING THEIR MEDICAL TEAM TO MAKING DECISIONS ABOUT TREATMENT. WE ORGANIZE EVENTS THAT BRING THE BRAIN TUMOR COMMUNITY TOGETHER TO HONOR, LEARN, DEVELOP MEANINGFUL RELATIONSHIPS, TURN GRIEF INTO ACTION, AND FUEL MOMENTUM FOR OUR CAUSE. OUR SUPPORT GROUPS FOSTER CONNECTIONS SHOWING PATIENTS AND CARE PARTNERS THAT THEY ARE NOT ALONE.

    Expenses $3,966,378

  • OUR CHANGE STRATEGY FUELS THE VOICE OF THE BRAIN TUMOR COMMUNITY TO ADVOCATE PUBLIC POLICY. WE ENSURE THE COMMUNITY'S NEEDS ARE REFLECTED IN NATIONAL MEDICAL RESEARCH AND HEALTH CARE POLICY. TOGETHER, WE ADVOCATE FOR THE FEDERAL GOVERNMENT TO MAKE STRATEGIC INVESTMENTS IN BRAIN TUMOR RESEARCH, IMPROVE HEALTH CARE DELIVERY, REDUCE HEALTH DISPARITIES, AND RAISE THE PRIORITY LEVEL FOR OUR COMMUNITY'S NEEDS. OVER 18,000 VOLUNTEER ADVOCATES ACROSS ALL 50 STATES AFFECT CHANGE AT ALL LEVELS ANNUALLY. WE MOBILIZE OUR COMMUNITY ON POLICY ISSUES TO URGE GOVERNMENT OFFICIALS TO ENACT POLICIES THAT SUPPORT OUR VISION OF CONQUERING AND CURING BRAIN TUMORSONCE AND FOR ALL. THROUGH OUR ADVOCACY, WE AFFECT THE LIVES OF NEARLY ONE MILLION AMERICANS LIVING WITH A BRAIN TUMOR TODAY, AND THOSE WHO WILL BE DIAGNOSED.

    Expenses $1,807,596

As filed on the 2025 return.

Listed in Part VII

  • LEAH RECHT JD

    CHAIR

    Total calculated
    $0
    Hours/week
    2

  • ERICA BIRKE

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    1

  • MIL PAREKH

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • FRANK MACCHIAROLA

    CLERK

    Total calculated
    $0
    Hours/week
    1

  • ALLISON BISHOF

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • DR JOOHEE SUL

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • CORIE YUTKIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • ADAM HAYDEN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • KABIR SETHI

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • CHRIS BROWN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • KAREN TURNER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • JONATHAN WEINBERG

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • JIGAR RAYTHATHA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • SARAH DURHAM

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • JAY NADLER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • DAVID ARONS

    CEO

    Total calculated
    $359,892
    From this org
    $337,934
    From related orgs
    $0
    Other
    $21,958
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $337,934
    Bonus
    $0
    Other
    $0
    Deferred
    $10,194
    Nontaxable benefits
    $11,764
    Filer's total
    $359,892

  • MARISA PETRILLO

    CHIEF OPERATING OFFICER

    Total calculated
    $214,284
    From this org
    $175,357
    From related orgs
    $0
    Other
    $38,927
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $175,357
    Bonus
    $0
    Other
    $0
    Deferred
    $5,534
    Nontaxable benefits
    $33,393
    Filer's total
    $214,284

  • RICHARD LESCARBEAU

    CHIEF FINANCIAL OFFICER

    Total calculated
    $198,678
    From this org
    $157,708
    From related orgs
    $0
    Other
    $40,970
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $157,708
    Bonus
    $0
    Other
    $0
    Deferred
    $5,166
    Nontaxable benefits
    $35,804
    Filer's total
    $198,678

  • ASHLEY BRENNAN

    CHIEF DEVELOPMENT OFFICER

    Total calculated
    $287,139
    From this org
    $246,498
    From related orgs
    $0
    Other
    $40,641
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $246,498
    Bonus
    $0
    Other
    $0
    Deferred
    $6,801
    Nontaxable benefits
    $33,840
    Filer's total
    $287,139

  • JOHN HIGGINS

    MANAGING DIRECTOR, BTIF

    Total calculated
    $252,802
    From this org
    $225,984
    From related orgs
    $0
    Other
    $26,818
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $225,984
    Bonus
    $0
    Other
    $0
    Deferred
    $5,346
    Nontaxable benefits
    $21,472
    Filer's total
    $252,802

  • GARY HEIMBERG

    VP AND COUNSEL, GOVERNMENT RELATIONS

    Total calculated
    $209,513
    From this org
    $174,989
    From related orgs
    $0
    Other
    $34,524
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $174,989
    Bonus
    $0
    Other
    $0
    Deferred
    $5,444
    Nontaxable benefits
    $29,080
    Filer's total
    $209,513

  • KATIE GERMAIN

    CHIEF OF MARKETING & COMMUNICATIONS

    Total calculated
    $194,984
    From this org
    $188,204
    From related orgs
    $0
    Other
    $6,780
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $188,204
    Bonus
    $0
    Other
    $0
    Deferred
    $5,641
    Nontaxable benefits
    $1,139
    Filer's total
    $194,984

  • ELIZABETH RYU

    SR. DIRECTOR OF RESEARCH

    Total calculated
    $190,905
    From this org
    $163,496
    From related orgs
    $0
    Other
    $27,409
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $163,496
    Bonus
    $0
    Other
    $0
    Deferred
    $4,745
    Nontaxable benefits
    $22,664
    Filer's total
    $190,905

  • LAUREN GAINOR

    ASSISTANT VP OF PHILANTHROPIC GIVING

    Total calculated
    $155,223
    From this org
    $148,603
    From related orgs
    $0
    Other
    $6,620
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $148,603
    Bonus
    $0
    Other
    $0
    Deferred
    $4,483
    Nontaxable benefits
    $2,137
    Filer's total
    $155,223

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Taxable family on this return

Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.

Disregarded entities

Part I: entities that legally are the filer and file no return of their own.

  • BRAIN TUMOR INVESTMENT FUND LLC

    BRAIN TUMOR RESEARCH · DE · income $1,125,227 · assets $2,882,524

    Directly controlled by NATIONAL BRAIN TUMOR SOCIETY INC

  • NBTS TDG LLC

    BRAIN TUMOR RESEARCH · DE · income $2,164,668 · assets $1,277,376

    Directly controlled by NATIONAL BRAIN TUMOR SOCIETY INC

  • CURE GBM

    BRAIN TUMOR RESEARCH · DE · income $0 · assets $0

    Directly controlled by NATIONAL BRAIN TUMOR SOCIETY INC

Provenance

Return type
form_990
Tax year
2025
Filed
1 July 2026
IRS schema version
2025v4.2
Source object
202631879349301403

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