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Nonprofiteer
← I AM ALS

Form 990 for tax year 2022

Filed by I AM ALS.

Totals

Total revenue
$1,631,851
Total expenses
$2,291,456
Contributions and grants received
$1,609,370
Grants paid
$0
Program service revenue
$0
Investment income
$1,004
Other revenue
$21,477
Total assets, end of year
$1,680,946
Total liabilities, end of year
$38,149
Net assets or fund balances, end of year
$1,642,797
Program services expenses (Part IX)
$1,705,471
Management and general expenses
$516,844
Fundraising expenses
$69,141
Program service expenses (Part III)
$1,705,471

Program services were 74.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $1,609,370

  • 3 · Investment income

    total $1,004 · excluded $1,004

  • 10a · Gross sales of inventory

    $33,182

  • 10b · Cost of goods sold

    $11,930

  • 10c · Net income from sales of inventory

    total $21,252 · related or exempt $21,252

  • 11a · Other revenue: MISCELLANEOUS REVENUE

    total $225 · excluded $225

  • 11e · Other revenue, total

    $225

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $195,940 · program services $160,507 · management and general $29,498 · fundraising $5,935

  • 7 · Other salaries and wages

    total $985,446 · program services $807,241 · management and general $148,354 · fundraising $29,851

  • 8 · Pension plan contributions

    total $36,172 · program services $29,631 · management and general $5,445 · fundraising $1,096

  • 9 · Other employee benefits

    total $144,161 · program services $118,091 · management and general $21,703 · fundraising $4,367

  • 10 · Payroll taxes

    total $91,820 · program services $75,216 · management and general $13,823 · fundraising $2,781

  • 11b · Fees: legal

    total $63,065 · management and general $63,065

  • 11c · Fees: accounting

    total $75,207 · management and general $75,207

  • 11d · Fees: lobbying

    total $25,000 · management and general $25,000

  • 11g · Fees: other

    total $399,220 · program services $383,930 · management and general $12,386 · fundraising $2,904

  • 12 · Advertising and promotion

    total $25,340 · program services $25,340

  • 13 · Office expenses

    total $29,905 · program services $19,998 · management and general $8,752 · fundraising $1,155

  • 14 · Information technology

    total $62,503 · program services $34,083 · management and general $20,279 · fundraising $8,141

  • 16 · Occupancy

    total $55,919 · program services $43,664 · management and general $12,255

  • 17 · Travel

    total $10,669 · program services $4,078 · management and general $6,591

  • 19 · Conferences, conventions and meetings

    total $1,953 · program services $1,953

  • 23 · Insurance

    total $10,086 · management and general $10,086

  • 24a · Other expenses: RECRUITMENT FEES

    total $26,863 · program services $150 · management and general $26,713

  • 24b · Other expenses: DONATION FEES

    total $18,139 · management and general $18,139

  • 24c · Other expenses: LICENSES & REGISTRATION

    total $13,170 · management and general $259 · fundraising $12,911

  • 24d · Other expenses: PAYROLL PROCESSING

    total $10,042 · management and general $10,042

  • 24e · All other expenses

    total $10,836 · program services $1,589 · management and general $9,247

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,363,548 · end of year $924,058

  • 2 · Savings and temporary cash investments

    beginning of year $249,357 · end of year $386,710

  • 3 · Pledges and grants receivable

    beginning of year $630,000 · end of year $140,000

  • 4 · Accounts receivable

    beginning of year $173,045 · end of year $204,043

  • 9 · Prepaid expenses and deferred charges

    beginning of year $10,077 · end of year $19,581

  • 15 · Other assets

    beginning of year $6,554 · end of year $6,554

  • 17 · Accounts payable and accrued expenses

    beginning of year $55,179 · end of year $38,149

  • 27 · Net assets without donor restrictions

    beginning of year $1,557,787 · end of year $1,341,564

  • 28 · Net assets with donor restrictions

    beginning of year $819,615 · end of year $301,233

Mission and programs · 2022

Mission

I AM ALS EXISTS TO SUPPORT AND MOBILIZE THE ALS COMMUNITY FOR THE PURPOSES OF IMPROVING QUALITY OF LIFE, RAISING AWARENESS, INCREASING FUNDING FOR RESEARCH AND ACCESS, AND IDENTIFYING TREATMENTS AND CURES FOR ALS.

Activities or mission (Part I)

SEE PART III, LINE 1.

  • COMMUNITY SUPPORTTHE I AM ALS COMMUNITY SUPPORT TEAM PROVIDES DIRECT EMOTIONAL SUPPORT SERVICES, SUPPORT GROUPS, PEER MATCHING, AND INFORMATION AND RESOURCES TO INDIVIDUALS LIVING WITH ALS, LOVED ONES, AND CAREGIVERS.

    Expenses $585,949

  • GOVERNMENT AFFAIRS, POLICY, AND RESEARCHI AM ALS ALSO UTILIZES THIS COMMUNITY MOVEMENT AND EXPERTISE TO INFLUENCE CHANGES TO FEDERAL FUNDING, AND TRANSFORM RESEARCH SYSTEMS, INSTITUTIONAL POLICY, AND REGULATORY PROCESSES WITH THE GOALS OF INCREASING RESEARCH FUNDING; IMPROVING PATIENT ACCESS TO TREATMENT; AND SPEEDING THE DEVELOPMENT AND ACCESS OF TREATMENTS AND CURES FOR PEOPLE LIVING WITH ALS.

    Expenses $445,729

  • COMMUNITY ORGANIZING AND COMMUNICATIONS I AM ALS COMMUNICATES WITH AND MOBILIZES THE ALS COMMUNITY IN SELF-ORGANIZED TEAMS AND AS INDIVIDUALS TO CATALYZE POLICY CHANGE AND RESEARCH PROGRESS TO END ALS. THIS INCLUDES EFFORTS AIMED AT PUBLIC AWARENESS; POLICY OUTCOMES; IMPACT ON TRIALS AND TREATMENT ACCESS; AND MORE.

    Expenses $315,458

  • OTHER PROGRAMS

    Expenses $358,335

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Laura Pazze Dalle

    CHIEF EXECUTIVE OFFICER (START 01/22)

    Total calculated
    $195,940
    From this org
    $192,023
    From related orgs
    $0
    Other
    $3,917
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $192,023
    Bonus
    $0
    Other
    $0
    Deferred
    $438
    Nontaxable benefits
    $3,479
    Filer's total
    $195,940
  • Louise Langheier

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    5
  • Peter Bowen

    TREASURER

    Total calculated
    $0
    Hours/week
    5
  • Jessie Rossman

    SECRETARY

    Total calculated
    $0
    Hours/week
    5
  • Brian Wallach

    CO FOUNDER

    Total calculated
    $0
    Hours/week
    30
  • Sandra Abrevaya

    CO FOUNDER

    Total calculated
    $0
    Hours/week
    4
  • Daniel Tate Jr

    MEMBER

    Total calculated
    $0
    Hours/week
    15
  • Jano Cabrera

    MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Michael O'Neil

    MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Michael Slaby

    MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Neel Parekh

    MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Clare Durrett

    MEMBER

    Total calculated
    $0
    Hours/week
    15
  • Michael J Lecker

    VP OF ORGANIZING

    Total calculated
    $117,118
    From this org
    $111,376
    From related orgs
    $0
    Other
    $5,742
    Hours/week
    40
  • Aditi Narayan

    VP OF COMMUNITY SUPPORT

    Total calculated
    $162,471
    From this org
    $154,815
    From related orgs
    $0
    Other
    $7,656
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $149,815
    Bonus
    $5,000
    Other
    $0
    Deferred
    $6,193
    Nontaxable benefits
    $1,463
    Filer's total
    $162,471

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Form 990 of other organizations
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 7
DURING 2022, THE FOLLOWING EMPLOYEES RECEIVED A BONUS PAYMENT: MICHAEL J LECKER $5,000 NARAYAN ADITI $5,000

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2022
Filed
9 November 2023
IRS schema version
2022v5.0
Source object
202333139349301308

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