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Nonprofiteer
← NATIONAL MPS SOCIETY INC

Form 990 for tax year 2023

Filed by NATIONAL MPS SOCIETY INC.

Totals

Total revenue
$2,296,659
Total expenses
$2,758,261
Contributions and grants received
$1,771,031
Grants paid
$565,222
Program service revenue
$451,952
Investment income
$107,962
Other revenue
-$34,286
Total assets, end of year
$4,013,909
Total liabilities, end of year
$286,091
Net assets or fund balances, end of year
$3,727,818
Program services expenses (Part IX)
$2,242,321
Management and general expenses
$296,275
Fundraising expenses
$219,665
Program service expenses (Part III)
$2,242,321

Program services were 81.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $3,589

  • 1b · Membership dues

    $2,150

  • 1c · Fundraising events

    $787,499

  • 1f · All other contributions, gifts and grants

    $977,793

  • 1g · Noncash contributions included above

    $3,318

  • 2a · Program service revenue: CONFERENCE INCOME

    total $451,952 · related or exempt $451,952

  • 3 · Investment income

    total $124,182 · excluded $124,182

  • 7a · Gross sales of assets other than inventory

    securities $1,043,626

  • 7b · Less cost or other basis and sales expenses

    securities $1,059,846

  • 7c · Gain or loss

    securities -$16,220

  • 7d · Net gain or loss

    total -$16,220 · related or exempt -$16,220

  • 8a · Fundraising events: gross income

    $120,999

  • 8a · Fundraising events: contributions included on line 1c

    $787,499

  • 8b · Fundraising events: direct expenses

    $155,285

  • 8c · Net income from fundraising events

    total -$34,286

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $369,242 · program services $369,242

  • 2 · Grants to domestic individuals

    total $145,980 · program services $145,980

  • 3 · Grants to foreign organizations and individuals

    total $50,000 · program services $50,000

  • 5 · Compensation of officers, directors and key employees

    total $302,065 · program services $180,954 · management and general $58,566 · fundraising $62,545

  • 7 · Other salaries and wages

    total $381,547 · program services $228,567 · management and general $73,978 · fundraising $79,002

  • 8 · Pension plan contributions

    total $10,729 · program services $6,427 · management and general $2,080 · fundraising $2,222

  • 9 · Other employee benefits

    total $38,550 · program services $23,094 · management and general $7,474 · fundraising $7,982

  • 10 · Payroll taxes

    total $54,121 · program services $32,422 · management and general $10,493 · fundraising $11,206

  • 11c · Fees: accounting

    total $32,915 · management and general $32,915

  • 11d · Fees: lobbying

    total $81,076 · program services $81,076

  • 11f · Fees: investment management

    total $30,779 · management and general $30,779

  • 11g · Fees: other

    total $91,879 · program services $55,743 · management and general $21,795 · fundraising $14,341

  • 13 · Office expenses

    total $91,294 · program services $45,472 · management and general $25,680 · fundraising $20,142

  • 16 · Occupancy

    total $61,419 · program services $36,852 · management and general $24,567

  • 17 · Travel

    total $121,266 · program services $121,266

  • 19 · Conferences, conventions and meetings

    total $453,659 · program services $453,659

  • 22 · Depreciation, depletion and amortization

    total $7,176 · program services $4,305 · management and general $2,871

  • 23 · Insurance

    total $7,060 · program services $4,236 · management and general $2,824

  • 24a · Other expenses: SPONSORED EXPENSES

    total $372,126 · program services $372,126

  • 24b · Other expenses: DUES AND SUBSCRIPTIONS

    total $49,484 · program services $25,006 · management and general $2,253 · fundraising $22,225

  • 24c · Other expenses: BEREAVEMENT

    total $5,894 · program services $5,894

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $114,068 · end of year $169,899

  • 2 · Savings and temporary cash investments

    beginning of year $855,891 · end of year $460,922

  • 4 · Accounts receivable

    beginning of year $85,837 · end of year $9,971

  • 9 · Prepaid expenses and deferred charges

    beginning of year $25,833 · end of year $34,545

  • 10a · Land, buildings and equipment: cost or other basis

    $78,725

  • 10b · Land, buildings and equipment: accumulated depreciation

    $41,293

  • 10c · Land, buildings and equipment, net

    beginning of year $11,812 · end of year $37,432

  • 11 · Investments: publicly traded securities

    beginning of year $3,193,143 · end of year $3,114,291

  • 15 · Other assets

    beginning of year $238,424 · end of year $186,849

  • 17 · Accounts payable and accrued expenses

    beginning of year $189,041 · end of year $45,304

  • 18 · Grants payable

    end of year $50,000

  • 19 · Deferred revenue

    beginning of year $170,000

  • 25 · Other liabilities

    beginning of year $234,764 · end of year $190,787

  • 27 · Net assets without donor restrictions

    beginning of year $1,926,230 · end of year $1,665,445

  • 28 · Net assets with donor restrictions

    beginning of year $2,004,973 · end of year $2,062,373

Mission and programs · 2023

Mission

THE NATIONAL MPS SOCIETY EXISTS TO CURE, SUPPORT, AND ADVOCATE FOR MUCOPOLYSACCHARIDOSIS (MPS) AND MUCOLIPIDOSIS (ML).

  • THE SOCIETY FUNDED APPROXIMATELY 9 RESEARCH GRANTS DURING 2023 FOR THE PURPOSE OF FINDING TREATMENTS AND CURES FOR MPS AND RELATED DISEASES.

    Expenses $631,756 · Grants $419,242

  • THE SOCIETY PROVIDED MEDICAL EQUIPMENT SCHOLARSHIPS, FUNERAL EXPENSE GRANTS, EDUCATION SCHOLARSHIPS, MEDICAL TRAVEL & EXTENDED HOSPITAL STAY ASSISTANCE, AND TRAVEL TO CONFERENCES SCHOLARSHIPS FOR THE PURPOSE OF PROVIDING FAMILY SUPPORT FOR PEOPLE AND THEIR FAMILIES WHO ARE IN SOME WAY AFFECTED BY MPS.

    Expenses $350,109 · Grants $145,980

  • THE SOCIETY PROVIDED INFORMATION SERVICES AND EDUCATIONAL SUPPORT FOR AFFECTED FAMILIES (NEWSLETTERS, SYNDROME BOOKLETS, FACT SHEETS, WEBSITE, DIRECTORY) AND INCREASED PUBLIC AWARENESS OF THESE RARE GENETIC DISEASES (CONFERENCES & ADVOCACY).

    Expenses $1,260,456 · Revenue $451,952

As filed on the 2023 return.

Listed in Part VII

  • Matthew Ellinwood

    CSO

    Total calculated
    $167,467
    From this org
    $162,589
    From related orgs
    $0
    Other
    $4,878
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $156,589
    Bonus
    not reported
    Other
    $6,000
    Deferred
    $4,878
    Nontaxable benefits
    not reported
    Filer's total
    $167,467

  • Terri Klein

    PRESIDENT &

    Total calculated
    $134,600
    From this org
    $130,785
    From related orgs
    $0
    Other
    $3,815
    Hours/week
    55

  • Nicole Bennett

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Maureen Cote

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Stephanie Cozine

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Tamara Cullere

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Steve Amy Holland

    VICE CHAIRMA

    Total calculated
    $0
    Hours/week
    1

  • Lynn Scott Hopkins

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Austin Noll

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Lisa Todd

    BOARD CHAIRM

    Total calculated
    $0
    Hours/week
    1

  • Sheri Wise

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Mercedes Johnson

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Carl Kapes

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Patricia Espinal

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jason Madison

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Stacey Montgomery

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
9 August 2024
IRS schema version
2023v5.0
Source object
202422259349300122

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