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Nonprofiteer
← PEDIATRIC DERMATOLOGY RESEARCH ALLIANCE INC

Form 990 for tax year 2024

Filed by PEDIATRIC DERMATOLOGY RESEARCH ALLIANCE INC.

Totals

Total revenue
$1,815,349
Total expenses
$1,661,100
Contributions and grants received
$1,747,126
Grants paid
$388,967
Program service revenue
$29,440
Investment income
$35,766
Other revenue
$3,017
Total assets, end of year
$1,637,456
Total liabilities, end of year
$487,637
Net assets or fund balances, end of year
$1,149,819
Program services expenses (Part IX)
$1,353,574
Management and general expenses
$307,526
Fundraising expenses
$0
Program service expenses (Part III)
$1,353,574

Program services were 81.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1b · Membership dues

    $34,389

  • 1c · Fundraising events

    $2,685

  • 1e · Government grants (contributions)

    $74,999

  • 1f · All other contributions, gifts and grants

    $1,635,053

  • 2a · Program service revenue: ANNUAL CONFRENCE

    total $29,440 · related or exempt $29,440

  • 3 · Investment income

    total $35,766 · excluded $35,766

  • 8a · Fundraising events: gross income

    $5,548

  • 8a · Fundraising events: contributions included on line 1c

    $2,685

  • 8b · Fundraising events: direct expenses

    $4,061

  • 8c · Net income from fundraising events

    total $1,487 · excluded $1,487

  • 11a · Other revenue: ADVERTISING

    total $1,530 · unrelated business $1,530

  • 11e · Other revenue, total

    $1,530

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $383,967 · program services $383,967

  • 3 · Grants to foreign organizations and individuals

    total $5,000 · program services $5,000

  • 5 · Compensation of officers, directors and key employees

    total $156,894 · program services $105,865 · management and general $51,029

  • 7 · Other salaries and wages

    total $334,230 · program services $225,523 · management and general $108,707

  • 8 · Pension plan contributions

    total $13,228 · program services $8,730 · management and general $4,498

  • 9 · Other employee benefits

    total $43,215 · program services $28,522 · management and general $14,693

  • 10 · Payroll taxes

    total $43,750 · program services $28,875 · management and general $14,875

  • 11b · Fees: legal

    total $79 · management and general $79

  • 11c · Fees: accounting

    total $29,388 · management and general $29,388

  • 11g · Fees: other

    total $77,790 · program services $64,290 · management and general $13,500

  • 12 · Advertising and promotion

    total $9,871 · program services $6,235 · management and general $3,636

  • 13 · Office expenses

    total $119,178 · program services $84,310 · management and general $34,868

  • 14 · Information technology

    total $95,567 · program services $89,357 · management and general $6,210

  • 17 · Travel

    total $47,243 · program services $32,001 · management and general $15,242

  • 19 · Conferences, conventions and meetings

    total $297,251 · program services $289,372 · management and general $7,879

  • 23 · Insurance

    total $4,449 · program services $1,527 · management and general $2,922

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $371,400 · end of year $336,307

  • 2 · Savings and temporary cash investments

    beginning of year $732,256 · end of year $1,013,678

  • 4 · Accounts receivable

    beginning of year $296,370 · end of year $282,851

  • 9 · Prepaid expenses and deferred charges

    end of year $4,620

  • 17 · Accounts payable and accrued expenses

    beginning of year $77,236 · end of year $86,749

  • 18 · Grants payable

    beginning of year $312,926 · end of year $226,488

  • 19 · Deferred revenue

    beginning of year $59,950 · end of year $174,400

  • 27 · Net assets without donor restrictions

    beginning of year $684,271 · end of year $992,031

  • 28 · Net assets with donor restrictions

    beginning of year $265,643 · end of year $157,788

Mission and programs · 2024

Mission

CREATE, INSPIRE, AND SUSTAIN RESEARCH TO PREVENT, TREAT, AND CURE CHILDHOOD SKIN DISEASE.

  • ANNUAL CONFERENCE - PEDRA'S ANNUAL CONFERENCE WELCOMES DEDICATED SCIENTISTS, PARTNERS FROM INDUSTRY AND GOVERNMENT, PATIENTS, ADVOCATES, AND CAREGIVERS TO LEARN, SHARE, AND ADVANCE DIRECT RESEARCH THAT IMPROVES THE LIVES OF CHILDREN AND FAMILIES FACING THE BURDEN OF PEDIATRIC SKIN DISEASES.

    Expenses $456,997 · Grants $13,685 · Revenue $29,440

  • DIRECT RESEARCH - PEDRA IS DEDICATED TO ACCELERATING THE PACE OF DIRECT RESEARCH AND EQUIPPING HEALTH CARE PROVIDERS WITH TREATMENT OPTIONS THAT IMPROVE PATIENTS' LIVES ON A MEANINGFUL TIMELINE. PEDRA PROVIDES RESOURCES TO RESEARCHERS INTERESTED IN IMPROVING THE LIVES OF CHILDREN WITH SKIN DISEASE AND ALSO PROVIDES FUNDING IN SUPPORT OF STUDIES, INVESTIGATORS, AND IMPORTANT INITIATIVES.

    Expenses $569,725 · Grants $375,282

  • OUTREACH AND EDUCATION - PEDRA PROVIDES DIRECT RESEARCH-RELATED EDUCATION AND OUTREACH TO THOSE WHO TREAT CHILDHOOD SKIN DISEASE, PATIENTS, PARENTS, AND SCIENTISTS.

    Expenses $326,852

As filed on the 2024 return.

Listed in Part VII

  • Megha Tollefson MD

    PRESIDENT-ELECT

    Total calculated
    $0
    Hours/week
    5
  • Anna Bruckner MD

    IMMEDIATE PAST PRESIDENT

    Total calculated
    $0
    Hours/week
    5
  • Keith Choate MD PhD

    PRESIDENT

    Total calculated
    $0
    Hours/week
    5
  • Leslie Lawley MD

    TREASURER

    Total calculated
    $0
    Hours/week
    5
  • Andrea Zaenglein MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Carrie Coughlin MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Colleen Cotton MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Heather Brandling-Bennett MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Jeffrey Sugarman MD PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Jennifer Huang MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Jiade Yu MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Lara Wine Lee MD PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Meredith Weiss JD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Raegan Hunt MD PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Yvonne Chiu MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Michael Siegel PhD

    EXECUTIVE DIRECTOR

    Total calculated
    $156,894
    From this org
    $156,894
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $156,894
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $156,894

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Written employment contract
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

  • DEVELOPING A COLLABORATIVE NETWORK AND PATIENT DRIVEN PHYSICIAN VERIFIED REGISTRY FOR FURTHERING THE SCIENCE OF CONGENITAL MELANOCYTIC NEVI (CMN) AND IMPROVING PATIENT OUTCOMES

  • PHENOTYPING HIDRADENITIS SUPPURATIVA IN PEDIATRIC PATIENTS

  • USING DUPILUMAB TO IMPROVE CIRCADIAN FUNCTION, SLEEP AND PRURITUS IN CHILDREN WITH MODERATE/SEVERE ATOPIC DERMATITIS

  • NON-INVASIVE GENOMIC TESTING OF LARGE AND GIANT CONGENITAL NEVI

  • LONG-TERM MANAGEMENT OF SYSTEMIC TREATMENTS FOR PEDIATRIC ATOPIC DERMATITIS: A PILOT CLINICAL TRIAL AND MULTI-CENTER REGISTRY DEVELOPMENT

  • DEFINING PREDICTIVE NONINVASIVE BIOMARKERS FOR PEDIATRIC ATOPIC DERMATITIS PATIENTS

  • DEVELOPING AN ACNE PATIENT DECISION AID WITH AND FOR HISPANIC TEENAGERS

  • EMORY UNIVERSITY

    $25,000

    ACNE INCIDENCE AND TREATMENT IN TRANSGENDER ADOLESCENTS: A MULTI-CENTER, VALIDATED COHORT STUDY

  • CINCINNATI CHILDREN'S HOSPITAL

    $10,000

    CONSENSUS STATEMENT ON PULSED-DYE LASER TREATMENT FOR PORT-WINE BIRTHMARKS

  • DRUG SURVIVAL OF BIOLOGICS IN PEDIATRIC PATIENTS WITH HIDRADENITIS SUPPURATIVA SEEN AT DUKE, MGH AND UMASS MEMORIAL HEALTH

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2024
Filed
12 May 2025
IRS schema version
2024v5.1
Source object
202501329349301810

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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