Form 990 for tax year 2022

Totals

Total revenue

$223,165

Total expenses

$14,195

Contributions and grants received

$208,925

Grants paid

$0

Program service revenue

$0

Investment income

$13,219

Other revenue

$1,021

Total assets, end of year

$1,036,049

Total liabilities, end of year

$1,028

Net assets or fund balances, end of year

$1,035,021

Program services expenses (Part IX)

$338

Management and general expenses

$11,336

Fundraising expenses

$2,521

Program service expenses (Part III)

$338

Program services were 2.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2022

• JOEY'S FOUNDATION WILL BE THE SUPPORTING ORGANIZATION AND FINANCIAL SPONSOR OF THE BFIT PROGRAM IN NORTHERN VIRGINIA. BFIT ENCOURAGES PHYSICAL ACTIVITY AND PARTICIPATION FOR CHILDREN WITH CEREBRAL PALSY (CP), THE MOST COMMON MOTOR DISABILITY IN CHILDHOOD, AFFECTING AN ESTIMATED 500,000 CHILDREN AND ADULTS IN THE UNITED STATES. CP IS A COLLECTION OF NON-PROGRESSIVE CONDITIONS AFFECTING THE BRAIN. IMPAIRMENTS ARE CAUSED BY ABNORMAL DEVELOPMENT OF THE NERVOUS SYSTEM CHARACTERIZED BY SPASTICITY, MUSCLE WEAKNESS, AND POOR MOTOR CONTROL. THIS VULNERABLE POPULATION IS OFTEN EXCLUDED FROM PARTICIPATING IN COMMUNITY-BASED PHYSICAL ACTIVITY.BFIT IS AN INDIVIDUALLY MENTORED PHYSICAL ACTIVITY PROGRAM FOR CHILDREN WITH NEUROMUSCULOSKELETAL CONDITIONS SUCH AS CEREBRAL PALSY, FOCUSING ON FAST MOVEMENTS TO BUILD STRENGTH, POWER, AND COORDINATION. THE PROGRAM'S SUPPORTIVE SOCIAL ENVIRONMENT REDUCES BARRIERS TO PARTICIPATION AND FOCUSES ON INCREASING NOT ONLY PHYSICAL BUT ALSO SOCIAL FUNCTIONING. THE 12-WEEK PROGRAM, DESIGNED AND BASED AT SHRINERS HOSPITALS FOR CHILDREN SPRINGFIELD MA, CONSISTS OF TWO 90-MINUTE ACTIVITY SESSIONS EACH WEEK. OUTCOME MEASURES FOR EACH ATHLETE ARE BASED ON STANDARDIZED ASSESSMENTS DONE AT THE START OF THE PROGRAM WITH GOALS SET BY THE ATHLETES AND THEIR FAMILIES. BFIT ENABLES ADOLESCENTS WITH PHYSICAL DISABILITIES TO PURSUE THEIR DESIRE TO PARTICIPATE IN RECREATIONAL SPORTS AND INCREASE PHYSICAL ACTIVITY. WITH POSITIVE REINFORCEMENT AND INCREASED SELF-ESTEEM, ATHLETES LEARN THAT THEY ARE CAPABLE OF PARTICIPATING IN MANY DIFFERENT TYPES OF EXERCISES, UTILIZING A VARIETY OF EQUIPMENT AND LEARNING NEW MOTOR SKILLS.THE PROGRAM IMPLEMENTATION REQUIRES EXERCISE SPACE, EQUIPMENT, PROGRAM COORDINATION, VOLUNTEER TRAINERS FROM A LOCAL PT SCHOOL AND MEDICAL OVERSIGHT.DEPENDING ON FUNDING LEVELS, THE PROGRAM COULD SUPPORT THE PARTICIPATION OF TENS TO HUNDREDS OF CHILDREN WITH CEREBRAL PALSY IN A PHYSICAL ACTIVITY PROGRAM THAT IS DEMONSTRATED TO IMPROVE FUNCTIONAL OUTCOMES AS WELL AS BENEFITS FOR MENTAL HEALTH AND SOCIALIZATION FOR PARTICIPANTS AND FAMILIES ALIKE.

  Expenses $338

• CONTINUED SPONSORSHIP OF A MAJOR CLINICAL DEVICE DEVELOPMENT ENTITLED PEDIACORE, AN IMMERSIVE, INTERACTIVE MOVEMENT TRAINING SYSTEM FOR TODDLERS AND PRE-SCHOOL AGED CHILDREN CREATED UNDER THE AUSPICES OF THE CHIEF SCIENCE OFFICER OF THE KENNEDY KRIEGER INSTITUTE AND THE CENTER FOR BIOENGINEERING INNOVATION AND DESIGN PROGRAM OF JOHNS HOPKINS UNIVERSITY. THIS DEVICE WAS CREATED TO IMPROVE TRUNK STABILITY IN YOUNG CHILDREN WITH CEREBRAL PALSY. TRUNK STABILITY IS IMPORTANT FOR MANY DAY-TO-DAY FUNCTIONS, INCLUDING SITTING, STANDING AND WALKING. A SECOND-GENERATION PROTOTYPE SYSTEM HAS BEEN CONSTRUCTED AND IS IN CLINICAL TRIAL. JOEY'S FOUNDATION WILL CONTINUE SPONSORSHIP OF THE SYSTEM THROUGH A SINGLE-BLIND RANDOMIZED CONTROLLED TRIAL. THE PRIMARY OUTCOME WILL BE A CLINICAL MEASURE OF POSTURAL (TRUNK) CONTROL THAT IS COLLECTED THROUGHOUT THE INTERVENTION PHASE AND AT TWO FOLLOW-UP POINTS AFTER THERAPY (THREE AND SIX MONTHS). THIS DEVICE COULD IMPACT NEW PHYSICAL THERAPY TECHNIQUES.

• JOEY'S CORNER PROVIDES BOOKS FOR CHILDREN WITH AND WITHOUT DISABILITIES. THE ORGANIZATION IS ENGAGED IN THE CREATION AND DISTRIBUTION OF MULTISENSORY ADAPTIVE BOOKS FOR CHILDREN WITH MOTOR SKILL IMPAIRMENT. TO CREATE THESE ADAPTED BOOKS, JOEY'S FOUNDATION IS SPONSORING WORKSHOPS TO MAKE BOOKS MORE ACCESSIBLE, AVAILABLE AND UNDERSTANDABLE FOR ALL LEARNERS. THIS IS ACCOMPLISHED BY ADDING MATERIAL TO PROVIDE STABILIZATION AND HELP WITH INDEPENDENT PAGE TURNING. ADAPTED TEXT AND SYMBOL-SUPPORTED VERSIONS OF READING MATERIAL WILL BRING BOOKS TO LIFE IN A VISUAL AND PHYSICAL WAY. PROPS LIKE PUPPETS OR TOYS ENHANCE A STORY AND INCREASE UNDERSTANDING. REMOVABLE, LAMINATED COPIES OF IMAGE OR CHARACTERS MAKE THE READING MATERIAL INTERACTIVE. FINALLY, THE USE OF SPEECH-GENERATING DEVICES ALIGNED TO A TEXT WILL INCREASE INTERACTION AND UNDERSTANDING OF THE STORY. MULTISENSORY BOOKS ARE CREATIVE, FUN AND ENHANCE COMPREHENSION. AS MORE BOOKS ARE ADAPTED, THE ORGANIZATION WILL BE ABLE TO SUPPORT JOEY'S CORNER IN MORE LOCATIONS.

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type

form_990

Tax year

2022

Filed

6 May 2024

IRS schema version

2022v5.0

Source object

202411299349303956

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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