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Nonprofiteer
← SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC

Form 990 for tax year 2023

Filed by SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC.

Totals

Total revenue
$288,814
Total expenses
$126,464
Contributions and grants received
$270,083
Grants paid
$5,000
Program service revenue
$0
Investment income
$18,731
Other revenue
$0
Total assets, end of year
$797,678
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$797,678
Program services expenses (Part IX)
$97,378
Management and general expenses
$17,490
Fundraising expenses
$11,596
Program service expenses (Part III)
$97,378

Program services were 77.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $270,083

  • 3 · Investment income

    total $18,731 · excluded $18,731

Functional expenses

Part IX, the statement of functional expenses.

  • 3 · Grants to foreign organizations and individuals

    total $5,000 · program services $5,000

  • 5 · Compensation of officers, directors and key employees

    total $80,000 · program services $61,000 · management and general $9,500 · fundraising $9,500

  • 10 · Payroll taxes

    total $6,780 · program services $5,160 · management and general $810 · fundraising $810

  • 11b · Fees: legal

    total $2,656 · program services $2,656

  • 11c · Fees: accounting

    total $1,350 · management and general $1,350

  • 11g · Fees: other

    total $10,156 · program services $8,801 · management and general $306 · fundraising $1,049

  • 12 · Advertising and promotion

    total $1,185 · program services $1,185

  • 13 · Office expenses

    total $2,605 · program services $726 · management and general $1,822 · fundraising $57

  • 14 · Information technology

    total $10,569 · program services $7,430 · management and general $2,959 · fundraising $180

  • 19 · Conferences, conventions and meetings

    total $5,420 · program services $5,420

  • 23 · Insurance

    total $743 · management and general $743

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $625,328 · end of year $797,414

  • 4 · Accounts receivable

    beginning of year $10,000 · end of year $264

  • 27 · Net assets without donor restrictions

    beginning of year $635,328 · end of year $797,678

Mission and programs · 2023

Mission

Dedicated to building a world where Shwachman-Diamond Syndrome (SDS) is curable.

  • The SDS Alliance brings together patient families, researchers, clinicians, and other diverse stakeholders to better understand, diagnose, and treat this devastating cancer predisposition genetic disorder.

    Expenses $97,378 · Grants $5,000

As filed on the 2023 return.

Listed in Part VII

  • Eszter Hars

    President

    Total calculated
    $80,000
    From this org
    $80,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    35

  • Indrani Chatterjee

    Member

    Total calculated
    $0
    Hours/week
    1

  • Dora Erdos

    Member

    Total calculated
    $0
    Hours/week
    1

  • Marcelo G DeCastro

    Secretary

    Total calculated
    $0
    Hours/week
    1

  • William Chen

    Treasurer

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2023
Filed
27 September 2024
IRS schema version
2023v5.1
Source object
202432719349300428

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