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Nonprofiteer
← LIVING BEYOND BREAST CANCER

Form 990 for tax year 2023

Filed by LIVING BEYOND BREAST CANCER.

Totals

Total revenue
$7,062,786
Total expenses
$5,787,907
Contributions and grants received
$6,707,474
Grants paid
$405,071
Program service revenue
$31,560
Investment income
$494,495
Other revenue
-$170,743
Total assets, end of year
$19,547,530
Total liabilities, end of year
$381,732
Net assets or fund balances, end of year
$19,165,798
Program services expenses (Part IX)
$4,799,643
Management and general expenses
$511,853
Fundraising expenses
$476,411
Program service expenses (Part III)
$4,799,643

Program services were 82.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $648,052

  • 1e · Government grants (contributions)

    $520,900

  • 1f · All other contributions, gifts and grants

    $5,538,522

  • 1g · Noncash contributions included above

    $14,450

  • 2a · Program service revenue: CONFERENCE FEES

    total $31,560 · related or exempt $31,560

  • 3 · Investment income

    total $546,471 · excluded $546,471

  • 7a · Gross sales of assets other than inventory

    securities $1,532,974

  • 7b · Less cost or other basis and sales expenses

    securities $1,584,950

  • 7c · Gain or loss

    securities -$51,976

  • 7d · Net gain or loss

    total -$51,976 · excluded -$51,976

  • 8a · Fundraising events: gross income

    $82,400

  • 8a · Fundraising events: contributions included on line 1c

    $648,052

  • 8b · Fundraising events: direct expenses

    $253,143

  • 8c · Net income from fundraising events

    total -$170,743 · excluded -$170,743

Functional expenses

Part IX, the statement of functional expenses.

  • 2 · Grants to domestic individuals

    total $405,071 · program services $405,071

  • 5 · Compensation of officers, directors and key employees

    total $318,114 · program services $190,868 · management and general $31,813 · fundraising $95,433

  • 7 · Other salaries and wages

    total $2,221,341 · program services $1,876,074 · management and general $225,380 · fundraising $119,887

  • 8 · Pension plan contributions

    total $110,905 · program services $93,436 · management and general $14,270 · fundraising $3,199

  • 9 · Other employee benefits

    total $203,787 · program services $165,994 · management and general $25,551 · fundraising $12,242

  • 10 · Payroll taxes

    total $171,877 · program services $137,076 · management and general $21,204 · fundraising $13,597

  • 11b · Fees: legal

    total $21,350 · program services $20,078 · management and general $706 · fundraising $566

  • 11c · Fees: accounting

    total $27,229 · program services $25,607 · management and general $900 · fundraising $722

  • 11f · Fees: investment management

    total $93,931 · management and general $93,931

  • 11g · Fees: other

    total $1,014,496 · program services $975,970 · management and general $11,566 · fundraising $26,960

  • 12 · Advertising and promotion

    total $261,201 · program services $245,768 · management and general $8,647 · fundraising $6,786

  • 13 · Office expenses

    total $57,473 · program services $32,482 · management and general $9,304 · fundraising $15,687

  • 14 · Information technology

    total $91,094 · program services $50,353 · management and general $3,740 · fundraising $37,001

  • 16 · Occupancy

    total $108,296 · program services $88,543 · management and general $10,970 · fundraising $8,783

  • 17 · Travel

    total $31,484 · program services $28,347 · management and general $2,496 · fundraising $641

  • 19 · Conferences, conventions and meetings

    total $457,486 · program services $321,892 · management and general $12,453 · fundraising $123,141

  • 22 · Depreciation, depletion and amortization

    total $110,100 · program services $90,018 · management and general $11,153 · fundraising $8,929

  • 23 · Insurance

    total $11,650 · program services $9,525 · management and general $1,180 · fundraising $945

  • 24a · Other expenses: DUES AND SUBSCRIPTIONS

    total $33,607 · program services $16,368 · management and general $16,224 · fundraising $1,015

  • 24b · Other expenses: MISSION DELIVERY

    total $25,607 · program services $25,607

  • 24c · Other expenses: EQUIPMENT

    total $11,808 · program services $566 · management and general $10,365 · fundraising $877

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,432,440 · end of year $2,561,693

  • 2 · Savings and temporary cash investments

    beginning of year $2,433,377 · end of year $2,433,377

  • 3 · Pledges and grants receivable

    beginning of year $417,777 · end of year $172,386

  • 9 · Prepaid expenses and deferred charges

    beginning of year $53,849 · end of year $55,905

  • 10a · Land, buildings and equipment: cost or other basis

    $429,014

  • 10b · Land, buildings and equipment: accumulated depreciation

    $228,738

  • 10c · Land, buildings and equipment, net

    beginning of year $298,902 · end of year $200,276

  • 11 · Investments: publicly traded securities

    beginning of year $12,151,743 · end of year $13,913,080

  • 15 · Other assets

    beginning of year $282,310 · end of year $210,813

  • 17 · Accounts payable and accrued expenses

    beginning of year $363,359 · end of year $216,832

  • 25 · Other liabilities

    beginning of year $252,893 · end of year $164,900

  • 27 · Net assets without donor restrictions

    beginning of year $15,472,667 · end of year $17,694,931

  • 28 · Net assets with donor restrictions

    beginning of year $981,479 · end of year $1,470,867

Mission and programs · 2023

Mission

LIVING BEYOND BREAST CANCER (LBBC) WAS FOUNDED IN 1991 AND IS A NATIONAL NONPROFIT ORGANIZATION THAT SEEKS TO CREATE A WORLD THAT UNDERSTANDS THERE IS MORE THAN ONE WAY TO HAVE BREAST CANCER. TO FULFILL ITS MISSION OF PROVIDING TRUSTED INFORMATION AND A COMMUNITY OF SUPPORT TO THOSE IMPACTED BY THE DISEASE, LBBC OFFERS ON-DEMAND EMOTIONAL, PRACTICAL, AND EVIDENCE-BASED CONTENT. LBBC ADDRESSES THE CURRENT NEEDS OF PEOPLE AFFECTED BY BREAST CANCER, WHETHER THEY ARE NEWLY DIAGNOSED, IN TREATMENT, RECOVERY OR LIVING WITH A HISTORY OF OR MANAGING A METASTATIC BREAST CANCER. RESOURCES ARE DEVELOPED IN COLLABORATION WITH THE NATION'S LEADING ONCOLOGISTS, HEALTH PROFESSIONALS, AND ALLIED ORGANIZATIONS AND ARE DELIVERED BY PEOPLE WHO UNDERSTAND THE PHYSICAL AND EMOTIONAL COMPLEXITIES OF BREAST CANCER IN A VARIETY OF WAYS - IN PERSON, PRINTED AND DIGITAL FORMATS.

Activities or mission (Part I)

TO CONNECT PEOPLE WITH TRUSTED BREAST CANCER INFORMATION AND A COMMUNITY OF SUPPORT.

  • EDUCATIONAL AND STORYTELLING WEBSITE:LBBC.ORG: THE WEBSITE GATHERS AND PRESENTS MEDICAL AND PSYCHOSOCIAL INFORMATION THAT PEOPLE RELY ON TO HELP THEM UNDERSTAND THEIR TYPE OF BREAST CANCER, THE IMPACT IT HAS ON THEIR LIVES AND INTRODUCES THEM TO THE COMMUNITY THAT IS AVAILABLE TO SUPPORT THEM. THE WEBSITE CONTAINS A RICH ARRAY OF RESOURCES FROM WRITTEN CONTENT TO VIDEOS, TO NEWS AND VIEWS ABOUT BREAST CANCER. THE WEBSITE REFLECTS LBBC'S COMMITMENT TO PROVIDING INFORMATION AND SUPPORT TO ALL PEOPLE IMPACTED BY BREAST CANCER, THOSE DIAGNOSED, THEIR FAMILIES AND CAREGIVERS AS WELL AS HEALTHCARE PROVIDERS.BLOGS: LBBC KNOWS THERE IS POWER IN TELLING PERSONAL STORIES AND SHARING EXPERIENCES, FOR BOTH THE WRITER AND THE READER. THE LBBC BLOG FEATURES STORIES OF WOMEN AND MEN IMPACTED BY BREAST CANCER AS WELL AS THOSE OF FAMILY MEMBERS, FRIENDS, AND CAREGIVERS. THESE FIRST-PERSON STORIES, IN PRINT AND BY VIDEO, SHARE THE LIVED EXPERIENCE OF BREAST CANCER.

    Expenses $61,142

  • EDUCATIONAL PROGRAMS:CONFERENCES, SUMMITS, AND WEBINARS: IN PERSON AND VIRTUALLY DELIVERED EDUCATIONAL PROGRAMS PROVIDE INFORMATION IN AN ARRAY OF FORMATS - FROM PLENARY SESSIONS TO INTERACTIVE WORKSHOPS LED BY BREAST CANCER EXPERTS, THESE PROGRAMS HELP PARTICIPANTS MAKE INFORMED DECISION ABOUT THEIR CARE AND CONNECT WITH OTHERS. KNOWLEDGE IS POWER: UNDERSTANDING THE BLACK BREAST CANCER EXPERIENCE. THIS ANNUAL EDUCATIONAL SERIES FEATURES CONNECTED VIRTUAL WORKSHOPS DESIGNED BY A BLACK BREAST CANCER ADVISORY COUNCIL. THIS PROGRAM SEEKS TO REDUCE HEALTHCARE DISPARITIES THROUGH EDUCATION AND SUPPORTIVE INFORMATION.HEAR MY VOICE OUTREACH AND ADVOCACY PROGRAM: EVERY YEAR LBBC TRAINS A NEW HEAR MY VOICE CLASS COMPRISED OF WOMEN AND MEN LIVING WITH METASTATIC BREAST CANCER TO BE ADVOCATES IN THEIR COMMUNITIES, AS WELL AS ON A NATIONAL LEVEL AND TO PROVIDE PEER SUPPORT TO OTHERS LIVING WITH METASTATIC BREAST CANCER.YOUNG WOMEN'S INITIATIVE: LBBC IS IN THE FIFTH YEAR OF A FIVE-YEAR COOPERATIVE AGREEMENT WITH THE CENTERS FOR DISEASE CONTROL AND PREVENTION. THIS FUNDING IS USED TO PROVIDE DEDICATED PROGRAMS AND SERVICES FOR WOMEN UNDER THE AGE OF 45 DIAGNOSED WITH BREAST CANCER. PROGRAMS INCLUDE SURVIVORSHIP SERIES FOR YOUNG WOMEN, YOUNG ADVOCATE PROGRAM AND PARENTING RESOURCES.

    Expenses $663,199 · Revenue $31,560

  • FINANCIAL ASSISTANCE:LBBC FUND: ONE-TIME GRANTS OF UP TO $1,250 FOR WOMEN IN ACTIVE TREATMENT FOR BREAST CANCER WHO ARE FACING FINANCIAL HARDSHIPS. THESE GRANTS ARE AVAILABLE TO ANYONE LIVING IN THE UNITED STATES.

    Expenses $405,071 · Grants $405,071

  • OTHER PROGRAM SERVICES:BREAST CANCER HELPLINE: STAFFED BY VOLUNTEERS WHO HAVE A PERSONAL HISTORY OF BREAST CANCER, THIS SERVICE PROVIDES PEER SUPPORT AND PRACTICAL INFORMATION THROUGH A CONFIDENTIAL EXCHANGE.CLOSED FACEBOOK COMMUNITIES: LBBC HOSTS CLOSED FACEBOOK COMMUNITIES TO ALLOW THE BREAST CANCER COMMUNITY TO EASILY ACCESS PEER SUPPORT. THERE ARE NOW THREE CLOSED COMMUNITIES FOR THESE GROUPS: YOUNG WOMEN, ALL AGES/ALL STAGES, AND HIGH RISK FOR BREAST CANCER.HEALTHCARE PROVIDER EDUCATION AND OUTREACH: LBBC OFFERS WEBINARS AND RESOURCES DIRECTLY TO HEALTHCARE PROVIDERS ON SPECIFIC TOPICS TO HELP THEM BETTER SUPPORT THEIR PATIENTS.GUIDES TO UNDERSTANDING BREAST CANCER AND METASTATIC BREAST CANCER SERIES: AVAILABLE ONLINE AND IN PRINT, ARE GUIDES THAT ADDRESS THE NEEDS OF PEOPLE WHO ARE NEWLY DIAGNOSED, IN TREATMENT, OR LIVING WITH METASTATIC DISEASE.SOCIAL MEDIA CONTENT AND LIVE WEBCAST PROGRAMS.

    Expenses $3,670,231

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Jean Sachs Mss Mlsp

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $318,114
    From this org
    $275,302
    From related orgs
    $0
    Other
    $42,812
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $220,302
    Bonus
    $55,000
    Other
    $0
    Deferred
    $25,244
    Nontaxable benefits
    $17,568
    Filer's total
    $318,114
  • Catherine Ormerod

    EXECUTIVE VP (RETIRED AUG 2023)

    Total calculated
    $111,961
    From this org
    $102,947
    From related orgs
    $0
    Other
    $9,014
    Hours/week
    37.5
  • Joanne Bursich

    VP ADMINISTRATION

    Total calculated
    $149,506
    From this org
    $126,259
    From related orgs
    $0
    Other
    $23,247
    Hours/week
    37.5
  • Monica Steigerwald

    VP DEVELOPMENT

    Total calculated
    $142,606
    From this org
    $120,886
    From related orgs
    $0
    Other
    $21,720
    Hours/week
    37.5
  • Megan Rutt

    CHAIR

    Total calculated
    $0
    Hours/week
    2
  • Gina J Range

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2
  • Walter Kowal

    TREASURER

    Total calculated
    $0
    Hours/week
    2
  • Crystal Thompson

    SECRETARY

    Total calculated
    $0
    Hours/week
    2
  • Caroline Abi-Khattar

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Linda Brassington

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Amy Burkholder

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Christiane Shuman Campbell

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Donna Noce Colaco

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Andi Drucker

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Amy Gavin

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Jason Geipel

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Sameer Gupta

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Felicia Johnson

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Nancy A Lyskawa

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Reshma L Mahtani

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Abby Match

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Neetna Mehta

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Atiba Page

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Amy Reichbach

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • John Riesch

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Jamil Rivers

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Robert F Stiles

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Marissa Thomas

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Keya Williams

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 7
CEO COMPENSATION IS REVIEWED AND APPROVED ON A YEARLY BASIS BY THE BOARD COMPENSATION COMMITTEE. CHANGES TO BASE SALARY AND YEARLY BONUS INCENTIVE PAYMENTS ARE DETERMINED BASED ON CEO PERFORMANCE, ORGANIZATIONAL PERFORMANCE AND COMPENSATION BENCHMARK SURVEY DATA.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2023
Filed
18 June 2024
IRS schema version
2023v5.1
Source object
202411729349301101

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