Totals
- Total revenue
- $917,170
- Total expenses
- $734,484
- Contributions and grants received
- $813,408
- Grants paid
- $55,000
- Program service revenue
- $75,679
- Investment income
- $28,083
- Other revenue
- $0
- Total assets, end of year
- $1,136,103
- Total liabilities, end of year
- $4,919
- Net assets or fund balances, end of year
- $1,131,184
- Program services expenses (Part IX)
- $658,178
- Management and general expenses
- $70,288
- Fundraising expenses
- $6,018
- Program service expenses (Part III)
- $658,178
Program services were 89.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$813,408
-
2a · Program service revenue: EDUCATION AND RESEARCH
total $75,679 · related or exempt $75,679
-
3 · Investment income
total $28,083 · related or exempt $28,083
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7d · Net gain or loss
total $0
-
8c · Net income from fundraising events
total $0
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $0
-
2 · Grants to domestic individuals
total $5,000 · program services $5,000
-
3 · Grants to foreign organizations and individuals
total $50,000 · program services $50,000
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $0
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $271,901 · program services $217,521 · management and general $48,942 · fundraising $5,438
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $0
-
10 · Payroll taxes
total $18,641 · program services $14,913 · management and general $3,355 · fundraising $373
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $0
-
11c · Fees: accounting
total $12,400 · management and general $12,400
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $82,087 · program services $82,087
-
12 · Advertising and promotion
total $0
-
13 · Office expenses
total $10,355 · program services $8,284 · management and general $1,864 · fundraising $207
-
14 · Information technology
total $30,895 · program services $30,895
-
15 · Royalties
total $0
-
16 · Occupancy
total $0
-
17 · Travel
total $74,680 · program services $74,680
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $137,002 · program services $137,002
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $0
-
23 · Insurance
total $3,727 · management and general $3,727
-
24a · Other expenses: Market and outreach
total $36,403 · program services $36,403
-
24b · Other expenses: Other program expenses
total $810 · program services $810
-
24c · Other expenses: Postage and Shipping
total $583 · program services $583
-
24e · All other expenses
total $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $943,017 · end of year $516,115
-
2 · Savings and temporary cash investments
end of year $607,988
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
end of year $0
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $11,583 · end of year $12,000
-
10c · Land, buildings and equipment, net
end of year $0
-
11 · Investments: publicly traded securities
end of year $0
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $0
-
15 · Other assets
end of year $0
-
17 · Accounts payable and accrued expenses
beginning of year $6,102 · end of year $4,919
-
27 · Net assets without donor restrictions
beginning of year $485,515 · end of year $159,777
-
28 · Net assets with donor restrictions
beginning of year $462,983 · end of year $971,407
Mission and programs · 2023
Mission
The Hypersomnia Foundation engages, informs and champions our global community to improve the lives of people with idiopathic hypersomnia and related sleep disorders.
Activities or mission (Part I)
Providing high-quality, timely information to people with hypersomnias, their supporters and health care providers.Increasing awareness and knowledge of hypersomnias in medical and educational communities in order to reduce time to diagnosis.Supporting the discovery of scientific breakthroughs on the causes and treatments of central hypersomnias.Translating new discoveries into improved outcomes and quality of life for people with hypersomnias.
-
Further Hypersomnia awareness, education and research
Expenses $658,178 · Grants $813,408 · Revenue $75,679
As filed on the 2023 return.
Listed in Part VII
-
David BurleyDAVID BURLEY
Chairman
- Total calculated
- $0
- Hours/week
- 4
-
Rebecca KingREBECCA KING
Secretary
- Total calculated
- $0
- Hours/week
- 10
-
Anjel Burgess
Board Member
- Total calculated
- $0
- Hours/week
- 4
-
Andrew Powell
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 10
-
Veronica Moore
Board Member
- Total calculated
- $0
- Hours/week
- 4
-
Michael Sparace
Board Member
- Total calculated
- $0
- Hours/week
- 4
-
Bob Ambrefe
Board Member
- Total calculated
- $0
- Hours/week
- 4
-
Diana Kimmel
Board Member
- Total calculated
- $0
- Hours/week
- 4
-
Ed Stepanski
Board Member
- Total calculated
- $0
- Hours/week
- 4
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 28 June 2024
- IRS schema version
- 2023v5.1
- Source object
- 202411809349300031
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