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Nonprofiteer
← MOVEMENT DISORDERS FOUNDATION

Form 990 for tax year 2025

Filed by MOVEMENT DISORDERS FOUNDATION.

Totals

Total revenue
$255,709
Total expenses
$277,793
Contributions and grants received
$220,385
Grants paid
$175,000
Program service revenue
$0
Investment income
$35,324
Other revenue
$0
Total assets, end of year
$596,239
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$596,239
Program services expenses (Part IX)
$261,788
Management and general expenses
$12,508
Fundraising expenses
$3,497
Program service expenses (Part III)
$261,788

Program services were 94.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $0

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $220,385

  • 1g · Noncash contributions included above

    $0

  • 3 · Investment income

    total $35,324 · related or exempt $35,324 · unrelated business $0 · excluded $0

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6a · Gross rents

    real property $0 · personal property $0

  • 6b · Less rental expenses

    real property $0 · personal property $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 6d · Net rental income or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 7a · Gross sales of assets other than inventory

    securities $0 · other assets $0

  • 7b · Less cost or other basis and sales expenses

    securities $0 · other assets $0

  • 7c · Gain or loss

    securities $0 · other assets $0

  • 7d · Net gain or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 8a · Fundraising events: gross income

    $0

  • 8a · Fundraising events: contributions included on line 1c

    $0

  • 8b · Fundraising events: direct expenses

    $0

  • 8c · Net income from fundraising events

    total $0 · unrelated business $0 · excluded $0

  • 9a · Gaming: gross income

    $0

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 10a · Gross sales of inventory

    $0

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11d · All other revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $175,000 · program services $175,000

  • 2 · Grants to domestic individuals

    total $0 · program services $0

  • 3 · Grants to foreign organizations and individuals

    total $0 · program services $0

  • 4 · Benefits paid to or for members

    total $0 · program services $0

  • 5 · Compensation of officers, directors and key employees

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 6 · Compensation of disqualified persons

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 7 · Other salaries and wages

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 8 · Pension plan contributions

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 9 · Other employee benefits

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 10 · Payroll taxes

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11a · Fees: management

    total $64,625 · program services $52,480 · management and general $9,020 · fundraising $3,125

  • 11b · Fees: legal

    total $150 · program services $0 · management and general $150 · fundraising $0

  • 11c · Fees: accounting

    total $813 · program services $0 · management and general $813 · fundraising $0

  • 11d · Fees: lobbying

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11e · Fees: professional fundraising services

    total $0 · fundraising $0

  • 11f · Fees: investment management

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11g · Fees: other

    total $30,575 · program services $30,575 · management and general $0 · fundraising $0

  • 12 · Advertising and promotion

    total $466 · program services $94 · management and general $0 · fundraising $372

  • 13 · Office expenses

    total $579 · management and general $579

  • 14 · Information technology

    total $2,497 · program services $1,500 · management and general $997 · fundraising $0

  • 15 · Royalties

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 16 · Occupancy

    total $0 · management and general $0 · fundraising $0

  • 17 · Travel

    total $1,319 · program services $1,319 · management and general $0 · fundraising $0

  • 18 · Travel or entertainment for public officials

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 19 · Conferences, conventions and meetings

    total $750 · program services $750 · management and general $0 · fundraising $0

  • 20 · Interest

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 21 · Payments to affiliates

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 22 · Depreciation, depletion and amortization

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 23 · Insurance

    total $250 · program services $0 · management and general $250 · fundraising $0

  • 24a · Other expenses: Meals

    total $644 · program services $0 · management and general $644 · fundraising $0

  • 24b · Other expenses: Video services

    total $70 · program services $70 · management and general $0 · fundraising $0

  • 24c · Other expenses: CO Secretary of State registration fees

    total $55 · program services $0 · management and general $55 · fundraising $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $83,755 · end of year $157,380

  • 2 · Savings and temporary cash investments

    beginning of year $0 · end of year $0

  • 3 · Pledges and grants receivable

    beginning of year $0 · end of year $0

  • 4 · Accounts receivable

    beginning of year $55,251 · end of year $10,150

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 7 · Other notes and loans receivable

    beginning of year $0 · end of year $0

  • 8 · Inventories for sale or use

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $0 · end of year $0

  • 10c · Land, buildings and equipment, net

    beginning of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $481,265 · end of year $428,709

  • 17 · Accounts payable and accrued expenses

    beginning of year $0 · end of year $0

  • 18 · Grants payable

    beginning of year $0 · end of year $0

  • 19 · Deferred revenue

    beginning of year $0 · end of year $0

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $0 · end of year $0

  • 29 · Capital stock, trust principal or current funds

    beginning of year $0 · end of year $0

  • 30 · Paid-in or capital surplus, or land, building or equipment fund

    beginning of year $0 · end of year $0

  • 31 · Retained earnings, endowment or other funds

    beginning of year $620,271 · end of year $596,239

Mission and programs · 2025

Mission

We accelerate breakthroughs in Parkinson's disease, Huntington's disease, dystonia, essential tremor and related movement disorders by funding bold, cutting edge research; empowering scientists to pursue innovative ideas that translate laboratory discoveries into life-extending and life-enriching treatments and therapies; fostering collaboration across the global research community; and bridging the gap between scientists and society by mobilizing public engagement in movement disorders research.

  • In 2025, the Movement Disorders Foundation (MDF) Board of Directors provided ongoing oversight and strategic development of the YOUNG INVESTIGATOR PILOT GRANT (YIPG) program, a cornerstone of MDF's research mission. The Board focused on strengthening scientific review, enhancing accountability for funded research, refining program scope, and positioning the program for long-term growth and donor engagement. Board members reviewed progress reports from active grantees, applying qualitative and quantitative criteria. Funding decisions were contingent in some cases on clarification, revised reporting, or adjusted timelines, balancing scientific accountability with support for early-career investigators. By year-end, all 2024 awardees had received full $50,000 grants, phased according to demonstrated progress. The Board also developed draft criteria for second-year funding, considering progress, likelihood of external support, adherence to acknowledgment requirements, and alignment with MDF research priorities. Beyond grant administration, the Board emphasized donor-facing strategies, including framing YIPGs as catalytic seed investments, exploring flexible funding models, and planning salon-style donor events to highlight investigator work. The Board also evaluated a high-impact translational research opportunity at the University of Denver, considering potential alignment and collaboration with YIPG-funded projects. By the end of 2025, MDF had established a more strategic research framework, positioning the YIPG program to expand impact, support innovative early-career investigators, and bridge promising science to larger-scale funding opportunities.

    Expenses $200,000 · Grants $175,000 · Revenue $200,000

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $36,788 · Revenue $36,500

  • In 2025, the Movement Disorders Foundation (MDF) advanced its mission by modernizing communications and digital infrastructure. The weekly electronic newsletter was rebranded as MOVEMENT DISORDERS RESEARCH NEWS, emphasizing its role as a nationally relevant, research-focused publication supporting innovative, disease-modifying studies. Despite a net loss of 252 subscribers, engagement remained strong, with a 46% open rate and stable click-through activity. Editorial enhancements expanded coverage of global research developments, emerging therapies, and scientific advances, providing readers with accessible, in-depth content. MDF also initiated sponsorship planning and conducted outreach through clinical centers, professional networks, and conferences, increasing visibility and strengthening donor messaging. MDF redesigned its website to prioritize donor engagement, simplify navigation, and provide clear access to research funding opportunities. Integration with the Colorado Gives platform streamlined online giving and reinforced transparency regarding impact. Strategic planning included exploring digital marketing and AI tools to optimize outreach, engagement, and fundraising. These initiatives strengthened MDF's public identity, elevated its research-focused brand, and expanded national visibility, positioning the organization for continued donor support and investment in early-career investigators and innovative movement disorders research.

    Expenses $25,000 · Revenue $25,000

As filed on the 2025 return. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

  • Eugene H Sobczak

    Executive Director

    Total calculated
    $65,000
    From this org
    $0
    From related orgs
    $0
    Other
    $65,000
    Hours/week
    12.5

  • Rajeev Kumar MD

    Board member

    Total calculated
    $0
    Hours/week
    2

  • Elizabeth Mathies

    Board member

    Total calculated
    $0
    Hours/week
    1

  • Meagen Salinas MD

    Board member

    Total calculated
    $0
    Hours/week
    1

  • Betty Ross

    Chairperson

    Total calculated
    $0
    Hours/week
    2

  • Morris Susman MD

    Secretary

    Total calculated
    $0
    Hours/week
    1

  • Peter McKown

    Treasurer

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2025
Filed
6 May 2026
IRS schema version
2025v4.0
Source object
202611319349303121

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