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Nonprofiteer
← KCNQ2 CURE ALLIANCE INC

Form 990 for tax year 2022

Filed by KCNQ2 CURE ALLIANCE INC.

Totals

Total revenue
$172,403
Total expenses
$43,702
Contributions and grants received
$115,903
Grants paid
$0
Program service revenue
$56,500
Investment income
$0
Other revenue
$0
Total assets, end of year
$730,127
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$730,127
Program services expenses (Part IX)
$41,029
Management and general expenses
$2,410
Fundraising expenses
$263
Program service expenses (Part III)
$41,029

Program services were 93.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $115,903

  • 1g · Noncash contributions included above

    $34,289

  • 2a · Program service revenue: SUMMIT REGISTRATION

    total $56,500 · related or exempt $56,500

Functional expenses

Part IX, the statement of functional expenses.

  • 13 · Office expenses

    total $5,722 · program services $4,154 · management and general $1,568

  • 14 · Information technology

    total $14,811 · program services $14,263 · management and general $391 · fundraising $157

  • 19 · Conferences, conventions and meetings

    total $21,258 · program services $21,258

  • 23 · Insurance

    total $1,805 · program services $1,354 · management and general $451

  • 24a · Other expenses: FUNDRAISING EXPENSES

    total $106 · fundraising $106

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $601,426 · end of year $718,627

  • 4 · Accounts receivable

    end of year $11,500

  • 27 · Net assets without donor restrictions

    beginning of year $601,426 · end of year $730,127

Mission and programs · 2022

Mission

KCNQ2 CURE ALLIANCE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING RESEARCH FUNDS FOR KCNQ2 EPILEPTIC ENCEPHALOPATHY, A RARE AND CATASTROPHIC FORM OF EPILEPSY. BY OFFERING RESEARCH GRANTS FOR KCNQ2 RESEARCH WITH A NOVEL APPROACH, WE CAN MOVE RESEARCHERS AND THE MEDICAL COMMUNITY FORWARD TO FIND BETTER TREATMENTS AND A CURE WHILE ASSISTING AFFLICTED INDIVIDUALS AND THEIR FAMILIES.

  • IN COLLABORATION WITH BOSTON CHILDREN'S HOSPITAL THE GRANT FUNDED THE ACQUISITION AND CHARACTERISATION TO AN UPDATED KCNQ2 REGISTRY AND DRAFT NATURAL HISTORY STUDY OF OVER 100 INTERNATIONAL PATIENTS. COUNTRIES THUS INVOLVED AND EXPANDED IN THE STUDY INCLUDE BULGARIA, CHINA, AUSTRALIA, CANADA, NORWAY, SPAIN, CROATIA, UNITED KINGDOM AND THE UNITED STATES. ADDITIONALLY, THE GRANT RESEARCH LEADS AT BCH ARE PREPARING A REPORT ON THE OVERALL STATISTICAL IMPACT OF BUILDING OUT A REGISTRY BACKED WITH PUBLISHED ARTICLES DETAILING THE IMPACT THE DATA HAS PROVIDED TO ASSIST WITH THE CREATION OF HUMAN CELL LINES, CRISPR WORK AND ADDITIONAL INPUT TO TRANSLATIONAL THERAPIES SUCH AS RNA AND OTHER GENE THERAPY APPROACHES.

    Expenses $41,029 · Revenue $56,500

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Jim Johnson

    PRESIDENT

    Total calculated
    $0
    Hours/week
    5

  • Sara James

    VICE PRESIDE

    Total calculated
    $0
    Hours/week
    5

  • Caroline Lowey

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • Scotty Sims

    SECRETARY

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2022
Filed
22 August 2023
IRS schema version
2022v5.0
Source object
202302359349301320

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