Form 990 for tax year 2023

Totals

Total revenue

$1,638,645

Total expenses

$1,630,738

Contributions and grants received

$1,573,144

Grants paid

$500,970

Program service revenue

$31,696

Investment income

$26,805

Other revenue

$7,000

Total assets, end of year

$1,400,026

Total liabilities, end of year

$450,112

Net assets or fund balances, end of year

$949,914

Program services expenses (Part IX)

$1,284,612

Management and general expenses

$346,126

Fundraising expenses

$0

Program service expenses (Part III)

$1,284,612

Program services were 78.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2023

• ANNUAL CONFERENCE - PEDRA'S ANNUAL CONFERENCE WELCOMES DEDICATED SCIENTISTS, PARTNERS FROM INDUSTRY AND GOVERNMENT, PATIENTS, ADVOCATES, AND CAREGIVERS TO LEARN, SHARE, AND ADVANCE DIRECT RESEARCH THAT IMPROVES THE LIVES OF CHILDREN AND FAMILIES FACING THE BURDEN OF PEDIATRIC SKIN DISEASES.

  Expenses $386,521 · Grants $40,850 · Revenue $31,696

• DIRECT RESEARCH - PEDRA IS DEDICATED TO ACCELERATING THE PACE OF DIRECT RESEARCH AND EQUIPPING HEALTH CARE PROVIDERS WITH TREATMENT OPTIONS THAT IMPROVE PATIENTS' LIVES ON A MEANINGFUL TIMELINE. PEDRA PROVIDES RESOURCES TO RESEARCHERS INTERESTED IN IMPROVING THE LIVES OF CHILDREN WITH SKIN DISEASE AND ALSO PROVIDES FUNDING IN SUPPORT OF STUDIES, INVESTIGATORS, AND IMPORTANT INITIATIVES.

  Expenses $591,886 · Grants $460,120

• OUTREACH AND EDUCATION - PEDRA PROVIDES DIRECT RESEARCH-RELATED EDUCATION AND OUTREACH TO THOSE WHO TREAT CHILDHOOD SKIN DISEASE, PATIENTS, PARENTS, AND SCIENTISTS.

  Expenses $201,029

• Expenses $105,176

As filed on the 2023 return.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

• THE MEDICAL COLLEGE OF WISCONSIN

  $80,000

  DEVELOPMENT OF THE MORPHEA ACTIVITY AND DAMAGE MEASURE (MADM)

• STANFORD UNIVERSITY

  $60,000

  A RANDOMIZED PHASE 2 CLINICAL TRIAL TO EVALUATE A TEMPORARY SKIN SUBSTITUTE

• UNIVERSITY OF MISSISSIPPI

  $42,975

  ELUCIDATING PSYCHOLOGICAL WELL-BEING AND ACCESS TO SUPPORT IN FAMILIES OF CH

• CHILDREN'S HOSPITAL OF PHILADELPHIA

  $25,000

  GENETIC LANDSCAPE OF PEDIATRIC PATIENTS WITH MONOGENIC SUSCEPTIBILITIES TO

• CHILDREN'S NATIONAL HOSPITAL

  $25,000

  SHARED JOURNEYS: A QUALITATIVE EXPLORATION OF PATIENT AND PARENT PERSPECTIVE

• JOHNS HOPKINS HOSPITAL

  $25,000

  UNDERSTANDING PATIENT-REPORTED OUTCOMES IN PEDIATRIC PATIENTS RECEIVING SYST

• ALBERT EINSTEIN COLLEGE OF MEDICINE

  $25,000

  NOVEL USE OF ORAL MINOXIDIL IN PEDIATRIC ALOPECIA PATIENTS

• UNIVERSITY OF CALIFORNIA SAN FRANCISCO

  $20,000

  PEDIATRIC AUTOIMMUNE DISEASE: COMPREHENSIVE CHARACTERIZATION OF A RHEUMATOLO

• UNIVERSITY OF PENNSYLVANIA

  $20,000

  THERMOGRAPHY TO MONITOR PROLIFERATION IN EVOLVING HEMANGIOMAS AT RISK FOR AG

• HARVARD MEDICAL SCHOOL

  $20,000

  QUALITY OF LIFE IN CHILDHOOD CANCER AND TRANSPLANT SURVIVORS WITH PERMANENT

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type

form_990

Tax year

2023

Filed

24 October 2024

IRS schema version

2023v5.1

Source object

202412989349301756

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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