Totals
- Total revenue
- $3,330,862
- Total expenses
- $5,082,795
- Contributions and grants received
- $2,665,104
- Grants paid
- $1,642,777
- Program service revenue
- $122,233
- Investment income
- $142,568
- Other revenue
- $400,957
- Total assets, end of year
- $8,646,714
- Total liabilities, end of year
- $306,896
- Net assets or fund balances, end of year
- $8,339,818
- Program services expenses (Part IX)
- $4,591,927
- Management and general expenses
- $342,646
- Fundraising expenses
- $148,222
- Program service expenses (Part III)
- $4,591,927
Program services were 90.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$563,554
-
1f · All other contributions, gifts and grants
$2,101,550
-
1g · Noncash contributions included above
$19,985
-
2a · Program service revenue: Program services
total $122,233 · unrelated business $0 · excluded $0
-
3 · Investment income
total $151,070 · unrelated business $0 · excluded $151,070
-
7a · Gross sales of assets other than inventory
securities $78,492 · other assets $26,737
-
7b · Less cost or other basis and sales expenses
securities $80,803 · other assets $32,928
-
7c · Gain or loss
securities -$2,311 · other assets -$6,191
-
7d · Net gain or loss
total -$8,502 · related or exempt $0 · unrelated business $0 · excluded -$8,502
-
8a · Fundraising events: gross income
$1,074,345
-
8a · Fundraising events: contributions included on line 1c
$563,554
-
8b · Fundraising events: direct expenses
$673,388
-
8c · Net income from fundraising events
total $400,957 · unrelated business $0 · excluded $400,957
Functional expenses
Part IX, the statement of functional expenses.
-
2 · Grants to domestic individuals
total $1,642,777 · program services $1,642,777
-
5 · Compensation of officers, directors and key employees
total $207,617 · program services $186,855 · management and general $10,381 · fundraising $10,381
-
7 · Other salaries and wages
total $1,702,243 · program services $1,624,352 · management and general $74,419 · fundraising $3,472
-
9 · Other employee benefits
total $171,528 · program services $163,287 · management and general $7,544 · fundraising $697
-
10 · Payroll taxes
total $155,739 · program services $147,740 · management and general $6,910 · fundraising $1,089
-
11a · Fees: management
total $230,917 · program services $0 · management and general $153,945 · fundraising $76,972
-
11b · Fees: legal
total $1,840 · program services $0 · management and general $1,840 · fundraising $0
-
11c · Fees: accounting
total $20,500 · program services $0 · management and general $20,500 · fundraising $0
-
11f · Fees: investment management
total $10,624 · program services $0 · management and general $10,624 · fundraising $0
-
11g · Fees: other
total $21,248 · program services $11,241 · management and general $7,157 · fundraising $2,850
-
12 · Advertising and promotion
total $22,640 · program services $1,097 · management and general $6,990 · fundraising $14,553
-
13 · Office expenses
total $54,220 · program services $29,395 · management and general $20,039 · fundraising $4,786
-
16 · Occupancy
total $53,576 · program services $50,824 · management and general $2,377 · fundraising $375
-
17 · Travel
total $79,862 · program services $76,528 · management and general $295 · fundraising $3,039
-
20 · Interest
total $1,118 · program services $1,118 · management and general $0 · fundraising $0
-
22 · Depreciation, depletion and amortization
total $329,142 · program services $327,813 · management and general $1,329 · fundraising $0
-
23 · Insurance
total $123,905 · program services $118,744 · management and general $5,057 · fundraising $104
-
24a · Other expenses: Postage & Printing
total $126,262 · program services $86,998 · management and general $9,447 · fundraising $29,817
-
24b · Other expenses: Landscapin
total $60,808 · program services $60,808 · management and general $0 · fundraising $0
-
24c · Other expenses: Retreat Center Repairs
total $55,399 · program services $55,399 · management and general $0 · fundraising $0
-
24d · Other expenses: Other
total $9,222 · program services $5,343 · management and general $3,792 · fundraising $87
-
24e · All other expenses
total $1,608 · program services $1,608 · management and general $0 · fundraising $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $242,466 · end of year $579,377
-
2 · Savings and temporary cash investments
beginning of year $1,662,138 · end of year $346,794
-
3 · Pledges and grants receivable
beginning of year $1,044,541 · end of year $2,750
-
4 · Accounts receivable
beginning of year $168,978 · end of year $26,245
-
9 · Prepaid expenses and deferred charges
beginning of year $54,668 · end of year $56,151
-
10a · Land, buildings and equipment: cost or other basis
$6,340,955
-
10b · Land, buildings and equipment: accumulated depreciation
$1,843,834
-
10c · Land, buildings and equipment, net
beginning of year $4,791,064 · end of year $4,497,121
-
11 · Investments: publicly traded securities
beginning of year $2,292,584 · end of year $3,071,056
-
15 · Other assets
beginning of year $68,058 · end of year $67,220
-
17 · Accounts payable and accrued expenses
beginning of year $197,562 · end of year $107,142
-
19 · Deferred revenue
end of year $121,447
-
23 · Secured mortgages and notes payable
beginning of year $19,230 · end of year $13,160
-
25 · Other liabilities
beginning of year $62,802 · end of year $65,147
-
27 · Net assets without donor restrictions
beginning of year $8,649,458 · end of year $8,046,193
-
28 · Net assets with donor restrictions
beginning of year $1,395,445 · end of year $293,625
Mission and programs · 2024
Mission
Assistance to individuals and families with ALS
-
The organization provides assistance to individuals and families in dealing with the complexities of ALS.
Expenses $4,591,927 · Grants $1,642,777 · Revenue $122,233
As filed on the 2024 return.
Listed in Part VII
-
Patty Oakley
Director
- Total calculated
- $0
- Hours/week
- 1
-
Luke Baxter
Director
- Total calculated
- $0
- Hours/week
- 1
-
Mikell Scarborough
Director
- Total calculated
- $0
- Hours/week
- 1
-
Darlene Salatto Rose
Director
- Total calculated
- $0
- Hours/week
- 1
-
Adrienne Martin
Director
- Total calculated
- $0
- Hours/week
- 1
-
Ed Hurley
Director
- Total calculated
- $0
- Hours/week
- 1
-
Chris Lambton
Director
- Total calculated
- $0
- Hours/week
- 1
-
Kenny Meharg
Director
- Total calculated
- $0
- Hours/week
- 1
-
Peter Quinn
Director
- Total calculated
- $0
- Hours/week
- 1
-
Brian Bossman
President
- Total calculated
- $0
- Hours/week
- 1
-
Elia Tessicini
Vice President
- Total calculated
- $0
- Hours/week
- 1
-
Michael J McLaughlin
Treasurer
- Total calculated
- $0
- Hours/week
- 1
-
Ronald Hoffman
Founder/Clerk
- Total calculated
- $207,617
- From this org
- $195,934
- From related orgs
- $0
- Other
- $11,683
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $188,624
- Bonus
- $7,310
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $11,683
- Filer's total
- $207,617
-
Suzana Makowski
Medical Director
- Total calculated
- $224,115
- From this org
- $207,692
- From related orgs
- $0
- Other
- $16,423
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $207,692
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $16,423
- Filer's total
- $224,115
-
Christopher Curtin
Senior Family Care Liaison
- Total calculated
- $137,835
- From this org
- $121,412
- From related orgs
- $0
- Other
- $16,423
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
None.
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 6 November 2025
- IRS schema version
- 2024v5.2
- Source object
- 202503219349306395
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