Totals
- Total revenue
- $1,124,356
- Total expenses
- $928,208
- Contributions and grants received
- $1,168,372
- Grants paid
- $277
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- -$44,016
- Total assets, end of year
- $1,307,590
- Total liabilities, end of year
- $36,633
- Net assets or fund balances, end of year
- $1,270,957
- Program services expenses (Part IX)
- $680,258
- Management and general expenses
- $36,542
- Fundraising expenses
- $211,408
- Program service expenses (Part III)
- $680,258
Program services were 73.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$188,432
-
1f · All other contributions, gifts and grants
$979,940
-
8a · Fundraising events: gross income
$14,482
-
8a · Fundraising events: contributions included on line 1c
$188,432
-
8b · Fundraising events: direct expenses
$58,498
-
8c · Net income from fundraising events
total -$44,016 · excluded -$44,016
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $277 · program services $277
-
5 · Compensation of officers, directors and key employees
total $113,913 · program services $74,043 · management and general $17,087 · fundraising $22,783
-
7 · Other salaries and wages
total $162,838 · program services $88,992 · management and general $5,666 · fundraising $68,180
-
9 · Other employee benefits
total $23,140 · program services $13,629 · management and general $1,898 · fundraising $7,613
-
10 · Payroll taxes
total $21,739 · program services $12,804 · management and general $1,783 · fundraising $7,152
-
11b · Fees: legal
total $2,650 · program services $1,561 · management and general $217 · fundraising $872
-
11c · Fees: accounting
total $11,045 · program services $6,505 · management and general $906 · fundraising $3,634
-
11g · Fees: other
total $87,362 · program services $20,723 · management and general $3,434 · fundraising $63,205
-
12 · Advertising and promotion
total $475 · management and general $475
-
13 · Office expenses
total $19,411 · program services $6,160 · management and general $2,729 · fundraising $10,522
-
14 · Information technology
total $461 · program services $272 · management and general $38 · fundraising $151
-
16 · Occupancy
total $15,015 · program services $8,844 · management and general $1,231 · fundraising $4,940
-
17 · Travel
total $80 · management and general $80
-
19 · Conferences, conventions and meetings
total $6,882 · program services $5,339 · management and general $867 · fundraising $676
-
22 · Depreciation, depletion and amortization
total $1,595 · program services $939 · management and general $131 · fundraising $525
-
24a · Other expenses: FAMILY ASSISTANCE
total $443,678 · program services $435,358 · fundraising $8,320
-
24b · Other expenses: FUNDRAISING
total $12,835 · fundraising $12,835
-
24c · Other expenses: PODCAST
total $4,478 · program services $4,478
-
24d · Other expenses: RESEARCH
total $334 · program services $334
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $1,053,592 · end of year $1,202,422
-
3 · Pledges and grants receivable
beginning of year $3,562
-
4 · Accounts receivable
beginning of year $15,817 · end of year $57,265
-
9 · Prepaid expenses and deferred charges
beginning of year $698 · end of year $22,998
-
10a · Land, buildings and equipment: cost or other basis
$10,776
-
10b · Land, buildings and equipment: accumulated depreciation
$9,551
-
10c · Land, buildings and equipment, net
beginning of year $2,820 · end of year $1,225
-
15 · Other assets
beginning of year $0 · end of year $23,680
-
17 · Accounts payable and accrued expenses
beginning of year $1,680 · end of year $12,953
-
25 · Other liabilities
beginning of year $0 · end of year $23,680
-
27 · Net assets without donor restrictions
beginning of year $311,919 · end of year $200,319
-
28 · Net assets with donor restrictions
beginning of year $762,890 · end of year $1,070,638
Mission and programs · 2022
Mission
SEE SCHEDULE O
Activities or mission (Part I)
OUR PRIMARY MISSION INCLUDES FUNDING RESEARCH TO FIND A CURE OR TREATMENT FOR DUCHENNE MUSCULAR DYSTROPHY. WE ARE COMMITTED TO SAVING THIS GENERATION OF CHILDREN. WHEN WE WORK SMART, LEVERAGE EACH DOLLAR AND WORK IN CLOSE PARTNERSHIP WITH SCIENTISTS AND RESEARCH COMPANIES, THERE IS THE PROMISE FOR AN END TO DUCHENNE. WE ARE PROUD THAT 2 PROJECTS WE'VE SUPPORTED IN EARLY STAGES ARE NOW IN CLINCIAL TRIAL, AND ONE IS UNDER REVIEW FOR FDA APPROVAL. IN THE MEANTIME, WHILE WE FIGHT FOR THE FUTURE FOR THESE BOYS, WE ARE COMMITTED TO BEING THERE FOR THEM AND HELPING FAMILIES RIGHT NOW IN THE PRESENT MOMENT.
-
TO FUND CUTTING EDGE RESEARCH IN ORDER TO FIND A CURE OR TREATMENT FOR DUCHENNE MUSCULAR DYSTROPHY.
Expenses $277 · Grants $277
-
TO ASSIST FAMILIES WITH EXPENSES DIRECTLY RELATED TO THE CARE OF A CHILD DIAGNOSED WITH DUCHENNE MUSCULAR DYSTROPHY.
Expenses $679,981
As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Marissa PenrodMARISSA PENROD
FOUNDER & CEO
- Total calculated
- $113,913
- From this org
- $113,913
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Harry PackmanHARRY PACKMAN
PRESIDENT
- Total calculated
- $0
- Hours/week
- 2
-
Matt RileyMATT RILEY
SECRETARY
- Total calculated
- $0
- Hours/week
- 2
-
Dina KenkelDINA KENKEL
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Pat FuellingPAT FUELLING
TREASURER
- Total calculated
- $0
- Hours/week
- 2
-
Lynda SnageLYNDA SNAGE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 15 November 2023
- IRS schema version
- 2022v5.0
- Source object
- 202333199349305378
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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