Form 990 for tax year 2022
Filed by YAYA FOUNDATION FOR 4H LEUKODYSTROPHY.
Totals
- Total revenue
- $542,579
- Total expenses
- $506,046
- Contributions and grants received
- $535,550
- Grants paid
- $211,000
- Program service revenue
- $0
- Investment income
- $7,029
- Other revenue
- $0
- Total assets, end of year
- $743,023
- Total liabilities, end of year
- $9,197
- Net assets or fund balances, end of year
- $733,826
- Program services expenses (Part IX)
- $358,933
- Management and general expenses
- $48,205
- Fundraising expenses
- $98,908
- Program service expenses (Part III)
- $358,933
Program services were 70.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$535,550
-
3 · Investment income
total $7,029 · related or exempt $7,029
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7d · Net gain or loss
total $0
-
8c · Net income from fundraising events
total $0
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $211,000 · program services $211,000
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $95,192 · program services $39,697 · management and general $32,795 · fundraising $22,700
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $68,750 · program services $14,231 · fundraising $54,519
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $0
-
10 · Payroll taxes
total $13,254 · program services $4,124 · management and general $2,497 · fundraising $6,633
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $0
-
11c · Fees: accounting
total $1,400 · management and general $1,400
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $0
-
12 · Advertising and promotion
total $2,191 · program services $1,975 · management and general $216
-
13 · Office expenses
total $7,943 · program services $50 · management and general $5,832 · fundraising $2,061
-
14 · Information technology
total $4,556 · program services $15 · management and general $2,778 · fundraising $1,763
-
15 · Royalties
total $0
-
16 · Occupancy
total $0
-
17 · Travel
total $4,345 · program services $3,763 · fundraising $582
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $17,673 · program services $17,673
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $0
-
23 · Insurance
total $2,053 · management and general $2,053
-
24a · Other expenses: Research Director
total $60,000 · program services $60,000
-
24b · Other expenses: Interns
total $10,170 · fundraising $10,170
-
24c · Other expenses: Communications
total $3,820 · program services $2,720 · management and general $620 · fundraising $480
-
24d · Other expenses: Operational enhancements
total $3,475 · program services $3,475
-
24e · All other expenses
total $224 · program services $210 · management and general $14
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $708,156 · end of year $743,023
-
2 · Savings and temporary cash investments
end of year $0
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
end of year $0
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
end of year $0
-
10c · Land, buildings and equipment, net
end of year $0
-
11 · Investments: publicly traded securities
end of year $0
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $0
-
15 · Other assets
end of year $0
-
17 · Accounts payable and accrued expenses
beginning of year $10,863 · end of year $5,000
-
25 · Other liabilities
end of year $4,197
-
27 · Net assets without donor restrictions
beginning of year $566,471 · end of year $733,826
-
28 · Net assets with donor restrictions
beginning of year $130,822
Mission and programs · 2022
Mission
Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.
-
Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.
Expenses $277,293
-
Launched #4HLFamilies, comprised of programming and supportive resources for families affected by 4H Leukodystrophy. #4HLFamilies aims to connect affected families so that they can share experiences and best practices and provide emotional and educational support for one another, provide educational resources for families and their healthcare providers in order to streamline and improve the standard of care for patients affected by 4H Leukodystrophy, and to share patient stories to raise awareness of the disease. The Yaya Foundation held several videoconferences attended by families and children affected by 4H and began creation of a suite of educational resources for newly diagnosed families and their healthcare providers aimed at streamlining and improving their care.
Expenses $81,640
As filed on the 2022 return.
Listed in Part VII
-
Christina ButterworthCHRISTINA BUTTERWORTH
Executive Dir.
- Total calculated
- $95,192
- From this org
- $95,192
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Gabriel BassinGABRIEL BASSIN
CFO & DIRECTOR
- Total calculated
- $0
- Hours/week
- 7
-
Zhu ChengZHU CHENG
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 2
-
Chris ClearyCHRIS CLEARY
Director
- Total calculated
- $0
- Hours/week
- 2
-
Marcia ClearyMARCIA CLEARY
Director
- Total calculated
- $0
- Hours/week
- 5
-
Ron GarberRON GARBER
Secretary
- Total calculated
- $0
- Hours/week
- 15
-
Daniel GrossmanDANIEL GROSSMAN
Director
- Total calculated
- $0
- Hours/week
- 2
-
Soloman LiebermanSOLOMAN LIEBERMAN
Director
- Total calculated
- $0
- Hours/week
- 2
-
Rachel SchonbachlerRACHEL SCHONBACHLER
Director
- Total calculated
- $0
- Hours/week
- 2
-
Kurt TriptowKURT TRIPTOW
Director
- Total calculated
- $0
- Hours/week
- 2
-
Debbie TriptowDEBBIE TRIPTOW
Director
- Total calculated
- $0
- Hours/week
- 2
-
Valerie GregorVALERIE GREGOR
RESEARCH DIRECT
- Total calculated
- $0
- Hours/week
- 20
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
McGill University
$140,000
Research
-
University of MA Medical Sch
$60,000
Research
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 22 May 2023
- IRS schema version
- 2022v5.0
- Source object
- 202341429349301179
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